My friend Tammi sent Laelie a letter

My friend Tammi sent Laelie a letter and I wanted to share a part of it. It’s based on the Full Story on this site that I wrote back when we first found out about Laelie’s condition. But Tammi realized this Bible passage seemed to speak to my words like God and my thoughts were having their own conversation.

She wrote:

You have been born with a disabillity called Amyoplasia Congenita Disruption Sequence, something that not many doctors have seen;

“For You created my inmost being, You knit me together in my mother’s womb”;

the symptom of Amyoplasia Congenita Disruption Sequence is Arthrogryposis or multiple joint contractures;

“I praise You because I am fearfully and wonderfully made; Your works are wonderful, I know that full well”;

what this means is that because of a “vascular accident” while you were in the womb due to unknown causes, you cannot move or bend your arms, legs, knees, wrists and other joints;

“My frame was not hidden from You when I was made in the secret place”;

your parents have a special, physically disabled little girl;

“When I was woven together in the depths of the earth, Your eyes saw my unformed body”;

when they thought of all the challenges of parenthood, they never imaged having a daughter who may not walk, write, ride a bike, type, do sign language or hold a spoon;

“All the days ordained for me were written in Your book before one of them came to be”-Psalm 139:13-16.

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