We’re still in casts. For those of you who don’t know, thanks to three mistakes (two on our insurance’s end by losing paperwork and never returning our phone calls and  one mistake  on Orthotic’s end by scheduling  an  appointment for cast removal they KNEW braces weren’t ready for) our kid will be in casts ONE MONTH longer than medically necessary. We showed up to get the new braces only to  be informed  that they were not made and wouldn’t be ready for two MORE weeks. We also were informed of an appointment we don’t recall making with orthopedics for recasting (painful and unnecessary if people did their jobs) on Monday.

Her legs are stuck in an L shape while what muscle she has slowly atrophies. This puts future walking attempts, heck even leg straightening attempts, way behind schedule. She began casting when she was three weeks old and tomorrow she turns four months old. 1/4th of her life in casts will have been totally unnecessary as we wait on incompetent people! How ridiculous!

So I have set my goal at 4. Four second opinions for my daughter’s care. We have one appointment set up for a couple of weeks from now. So three more. If that means driving to LA (which it most likely does mean) we’ll make it happen. My orthopedics doctor is nice and professional and experienced, but not working for us.

I don’t know why we don’t have AFOs and instead are only offered braces. I want KAFOs even. I want the legs casted straight if  we are doing so much casting. I want doctors to LISTEN!!!!

So if you know a really good orthopedics doctor, please email me their number.  

One Response to “Chachachachanges.”

  1. Kristine Bunyan says:

    Hello Alexes:

    I forgot to give you my daughter’s orthopedic surgeon’s name.

    He is suppose to be the top surgeons in this field and surgeons study from him as well. His name is Dr. Vernon T. Tolo, Children’s Hospital, 4650 Sunset Blvd., Los Angeles, CA 90027 323-669-4658.
    Call me if you’d like.

    Blessings to you,

    Kristine Bunyan

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