AMCers to keep in your thoughts and prayers
It’s a busy week for me and my friends!
Laelia - She has her muscle clinic on Wednesday that we got her in using the “back door” so to speak. We found out a social worker will be there to answer questions! We hope she will qualify for the muscle clinic. If she does, she may be eligable for help with durable medical equipment and different devices to bypass muscle use.
Kyle - His parents are the first people with any understanding of AMC to really reach out to me when we got Laelia’s diagnosis. Kyle is affected in all four limbs as well. Kyle will need to have surgery on his right foot. Two bones will be taken out so that his foot will be able to lie flat. Kyle’s last surgery was when he was 17 months old. He’s now five and understands that surgery is scary. His parents are asking for prayer for him. The surgery is on Wednesday.
Ryan - This little guy is in New Jersey for his Christening this week. He also has all four limbs affected and turned one month old a few days ago. I don’t envy his parents flying back to California with a newborn. *eep* He is also in the first weeks of serial casting which is just hard on everybody.
Michele - Michele works with the YMCA to provide respite workers for families who have been touched by a disability. We recently were awarded this. Michele told me that she is excited to add our little one to the system since she is adopting a little girl from India with the same diagnosis! She’ll get to meet her new daughter very soon! I’m hoping to get lots of visits from this little cutie!
Bonnie - This amazing super star is crawling!!!!!!!!!! Here’s a link to her video: LINK! It’s cool, Bonnie gives permission in the video to show everyone. 
Bonnie’s mom, Beverly, has been a huge encouragement to me. She is the one who pulled me out of a dark place after the orthopedic doctors first told us that laelia would never walk. It gives me hope that Laelia will do this someday!
June 10th, 2008 at 10:24 am
I will pray for these kiddos as well as Laelia (love her name!). I pray the muscle clinic will accept her, too and that she can benefit from that!
June 11th, 2008 at 5:41 am
I just watched Bonnie crawl and I would have commented while crying with joy for her but I don’t have a My Space account and need to get ready for work. Please tell Shari that she has a very beautiful, strong daughter! I believe that will be Laelia in the future.
Blessings,
Robin Clark