4 new tricks!


 Two hands raised high!


By herself!!! (Click on picture for video!)

1. Now Laelia can grab her left arm and use her stronger right arm to lift it  over her head while she’s on her back!  Sometimes she just hooks her fingers, like in the video above, but other times she just grabs a fistful of  chubby left arm and hoists it in a jerking motion over her head and then laughs when it falls back down. :) While she was  with the speech therapist, she grabbed her left arm that way and brought it over to the table leg so she could grab it with both hands! So smart!

2. Speaking of the speech therapist, we found out that Laelia has no speech problems!!! We got a speech therapist to come to our home for free through the Early Start program. She spent a lot of time with us and loved Laelia to pieces! (And of course Laelia performed for her the whole time!)  The therapist  said not to worry because the few things  Lali seems to be  behind in are  still in the ever-widening  normal range. Also  her speech  doesn’t seem to be affected by  the arthrogryposis at all! (In other words it  looks like there are no  joint contratures  in her jaw!*)  Based on other things  Lali does say, and the way she eats and moves that incredibly flexible tongue of hers, she will catch up in no time! She is doing things like singing now, so it’s very encouraging! (She even dances! Click here to see that!)

*We  were told before I even left the hospital where Lali was born (and diagnosed),  to be prepared for some  random delays due to the fact that babies need to explore their world kinetically (physically, by touch and taste)  in order to learn well.  We were also told that this could even delay things like speech and reading. But  kids with arthrogryposis tend to  catch up (and even  surpass)  peers eventually! (I’ll just  be happy  if she can pronounce her own condition one day. Took me weeks! :))  

3. Laelia now has a trimmable 7th toe nail! After her bath this afternoon I went to cut her toenails and discovered that a 7th one has started to grow! It, like many others, grows straight out instead of up. I love her tiny curly toes! She didn’t have many toenails when she was born, but after the serial casting and tendon release surgeries  her feet got a bit straighter and allowed the toenails  room to grow properly. (Now all ten toes have some sort of growth where a nail should be, but only 7 are really getting any real growth or direction.)

4. And her last trick?  Laelia is going to be  a ball player like her mom! My sister will tell you that I have played ball since I was four or five until I was sixteen. (Qualified for a college scholarship too, but the league disbanded before I  could get it.)  Then when I worked at In-N-Out Burger I was on their league for a short time too. I love fast-pitch softball. Well my dream (that I shared with a few people when I was pregnant) is to coach  my kid’s  soft ball team. I know a ton about coaching. My pastor paid for me to go to softball camp when I was little  when we didn’t have the money, because I loved the game so well (and he loved me).  Then my last year I was helping coach  my teammates and loved it.  And then more recently when I  was visiting home I watched my brother-in-law’s game, and the need to be a part of the game was overwhelming. I loved the benches and the smell of dirt and grass. I loved the dusty mitts and uniforms and everything. So the fact that Lali already shows hand-eye coordination is really great! I’m honestly really excited about this! (I’m not even going to start thinking logistics for now.)


Um… I have no idea what this is…. :)

2 Responses to “4 new tricks!”

  1. Robin Clark says:

    What good news about Laelia’s speech! That is just awesome. When I watch the videos of her, she has such an outgoing personality and shines. Hurray to Laelia for using her knowledge about herself to move her arms and do all the things that she does. She’s amazing!

  2. Kiersten says:

    We LOVED the video of Laelia dancing (and of course, Daddy’s singing). That was great. Thank you for sharing all of her wonderful tricks.

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