My invention, patent totally pending. ;)

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How to make: Cut a plastic hanger  to correct length then  duct tape  a Velcro strap (or modified thumb splint as seen above) to hanger at a slight angle. Tie to screaming child’s wrist until she calms down  enough to  learn to use it. Enjoy! :)

I took a couple quick videos while Chelsea was over. This is the first time  Laelia had ever worn these and look how good she does!

Laelia is able to play with toys at eye level!

Laelia can pick up a toy and then bring it to eye level!  

Ideally I am hoping she can use her shoulders to plant the sticks in the carpet then lean back a little to bring her hands up! (It doesn’t really work  on hardwood floors since it slides around…  but maybe if I add puddy to the ends…)   She  definitely shows the potential to plant and lift in the second video. Although she had only been wearing them for a couple of minutes, she still figured it out pretty quick. She could even maybe feed herself using these!

I  got this idea at  the Fellowship of San Diego  on Sunday. Charley and I were  on nursery duty hanging out with the toys and toddlers. We  left Laelia  playing by herself with a  long plastic toy filled with  beads while we wrestled the other kids.. I mean, “lovingly cared for them.” ;)  And since  Laelia is not generally  one of our adorable troublemakers, we ignored her for the most part.  So it was a suprise to glance over a  little while later and  see her holding  her toy upright!  With her  hand  at eye level!  Then just when I was about to beat myself up over not bringing my camera, David  Powell pulled out  his cell phone and took this.  

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Let’s just mention that before stretch therapy she was not able to lift her arm that high in the first place! And without biceps, this is not something I imagined she could do! But it all makes sense. She used her leg to anchor the bottom and then just reached out and used her body to bring  the toy  upright. Then she watched in awe as all the little beads swirled around to the bottom.  My child the genius! :-D

So I ran around the house when we got home looking for other long toys. Then I thought of the Muppets and how Kermit’s arms  were held up by stiff wires. Then I thought, What if I can get some sticks or something so she can use the same motion with the toy to get her arms up in the air anytime she wants, but use something as thin as wire so it doesn’t get in the way! I thought of using drum sticks, but they were too heavy. We planned to go to Michael’s (you know the craft store) but they were closed early on Sunday. I actually got kinda panicked about it, like if I didn’t make this thing in my head RIGHT NOW it would disappear forever.  Then I actually prayed that God would help me. The very  next cabinet I opened a hanger fell out! It was the perfect weight and length and everything! I don’t know when I had shoved a hanger in that cabinet, but it fell into my hands right after I asked for it!

So even if she doesn’t master these contraptions, it was still a cool idea. And it’s nice to feel like God cares about the little things. And it’s exciting to see her hands up in front of her eyes!

So now what to call them. Arthrogryposis Helpers? Amyoplasia Applications? Biceps Shmiceps? Um, Kermit Arms? :) Laelia Limb Lifters? I could go on, but I’ll spare you all. :)

7 Responses to “My invention, patent totally pending. ;)”

  1. Amy says:

    OH, WOW!!! That is the coolest thing!! You are brilliant! Brilliant! So is Laelia. :)

  2. thainamu says:

    Wow, very clever. I bet this is just the beginning of adaptive devices you’ll think up.

  3. melissa Rowe says:

    Wow that is really cool, good thinking ;) And yay to Laelia…the videos looked awesome.

  4. Anonymous says:

    call them baby canes

  5. Lauren B says:

    So thats where the idea came from! You’d better give Laelia a percentage of your patent $, hahaha. God is so good. I got goosebumps from that story.

  6. Kiersten says:

    Super cool – we’ll be making a set tomorrow!!!!

  7. Kiersten says:

    We’ve adopted the name “Lali-canes” in our home for your new and amazing invention. When’s the infommercial coming out??
    Ryan is too busy playing with the cane part rather than trying to raise that arm of his!

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