Archive for July, 2009

Add one more Eve to the group

Friday, July 17th, 2009

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Adam (from the band Adams and Eves) and Laelia

Christina’s Pictures

Wednesday, July 1st, 2009

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Me, Laelia and the giant fuzzy kitty

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Introducing “Uncle” Panzer

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Kisses for Uncle Panzer

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Before Squirrel

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After Squirrel

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Goofy faces!!!

Melissa’s Pictures

Wednesday, July 1st, 2009

Here are a few  pictures from a day with Laelia, captured by Melissa. I kept her original comments too. (Hopefully I didn’t ruin them too bad when I resized them.)

Smiling at her mobile, getting ready to nap it up.

Smiling at her mobile, getting ready to nap it up.

"I really have to take a nap?"

“I really have to take a nap?”

"Ok...this duck is cool but I still don't want to take a nap."

“Ok…this duck is cool but I still don’t want to take a nap.”

Why babies are great...they can have so much fun with the most random objects. :)

Why babies are great…they can have so much fun with the most random objects. :)

Playing after stretches

Playing after stretches.

Giving her stuffed toy a reciprocated kiss :)

Giving her stuffed toy a reciprocated kiss :)

I learned she liked it better when my face wasn't behind the camera, hence the cut off. But still cute ;)

I learned she liked it better when my face wasn’t behind the camera, hence the cut off. But still cute ;)

Laelia

Favorite June Pictures

Wednesday, July 1st, 2009

Here are my favorite pictures from June.

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Pokeylope refused to get off the changing table.

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Lali is giving her bear stretches! (I  heard about a study where kids who are spanked at home will spank their stuffed animals… hmmm… in this household we stretch our stuffies. Poor bear!  :))

(Note: Stretches are the official thearpy for arthrogryposis.)

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Attempt at feeding herself rice.

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Laelia can now stack five blocks while on her side!

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On the plane back  from visiting Dad/Grandpa for Father’s Day.

(PS: Grandma Christina, I want those pictures from  Father’s Day! Especially the ones with Uncle Panzer!)

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Bath time.

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Adam and Pokey.

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She was playing peek-a-boo by putting her head down and then popping back up again.

CrazyBusyFunFunFun!

Wednesday, July 1st, 2009

Dusting off the ol’ blog-a-roo. Pffffffffff.

Besides life being crazy busy, it’s also been my lack-of-camera that’s been keeping me from blogging. Okay I’m not even really without a camera, I’ve had a loaner camera for a while (I’ll post pictures soon), but it’s not *my* camera. So that’s just sad. I probably have an unhealthy attachment to things. I dunno. I only named it Mr. Flashy McCamera and built a little  memorial for it, but that’s normal right? :) Thankfully my Grandma Wynema and a wonderful anonymous donor are helping us get another camera and new memory card. I can’t wait!

For those of you who have asked, no, the camera was not the only thing stolen. Not even the only nice thing, but certainly the most expensive. Ugh. We let our sitter go, and things don’t go missing anymore, but that could be a coincidence. I hate to think about it.

Melissa is watching Lali for us in the mean time. She will be our third (THIRD!) very pregnant babysitter. She is nine months along and I made her baby promise not to come before Megan can take over on July 7th. :) Megan was our sitter before, back when she herself was very pregnant. She’ll be coming over with her baby boy, Josh, in the afternoons. We were talking about physical thearpy and Megan said something like, “Wow, I forget she moves now!” Back when Megan first started helping out, Lali would just lie there (often with all four limbs in casts) not moving AT ALL. So the changes are very exciting! :)

 
Our big news recently has been that Laelia will be starting school in September! She is officially delayed in speech and gross motor skills, so she needs to go to a special school. The school bus will even be coming by to pick her and her car seat up and everything! We are going to check out the school on July 6th, and I’ll try my best be be excited.

I have a few of the “my baby is going to school” worries, but I feel they are justified since she’s just a baby! I mean, parents cry when their five-year-olds go off to school because they are “just babies,” but Lali is literally just a baby! And with the delays she seems even younger. I mean she doesn’t walk or crawl or talk, and she’s still little. So little. *sniff*

But besides those minor worries (including the worry that she is not only physically behind, but maybe also mentally), this school does sound like a blessing. They will help her with her speech and social skills. They will also try to do things that we (parents and doctors alike) feel are beyond her physical abilities, like potty training and sign language, but only to gently introduce her to those activities. Their website is: http://alcott.weebly.com/.  It’s only a few hours a day so I won’t be able to miss her for long. Still… putting my baby on a school bus at this age… okay not going to think about it.

In other news, it looks like Lali will finally be getting her new AFOs soon! They called me at work and told me they were putting in the order today! Our orthopedic guy is doing thousands of dollars worth of work and only charging us a few hundred! I love that wonderful man! The new ones will be yellow and will replace her cute pink ones. No more toes hanging out!

I don’t know if I’ve mentioned, but life has been crazy lately. Literally everything is changing from big life decisions to my hair and weight. One thing I am constantly researching and thinking about is a place to live. We are looking at cheap apartments so we can start saving up for a home. So far we’ve seen a few places and they’ve either been awful, dangerous or scams. And let me just tell you that nothing has wheelchair access. Boo!

We started the long process of saving for a down payment. I have been having weird dreams about this, mostly involving a lottery win. :) Thankfully, Charley’s job has been spared (three times now) and we are very fortunate that we can start thinking long-term again. I just wish it wasn’t going to take sooooo long to put my baby in an arthorgryposis-friendly home! It’s been on my heart a lot lately. Even after we save up the down payment (which we hope to do before she starts school… well, *real* school… when she’s five… you know, years from now) we can maybe afford something 40-60 minutes from my work. That won’t be a fun commute, but worth it!

When life was getting it’s craziest, I started receiving cards and letters from people I had never met! It turned out I was the recipient of a “card shower” from the ladies of Liberty Baptist Church (a church I don’t even go to down in San Jose)! It was very appreciated and came at just the right time (when everything was falling apart around me). I have been meaning to thank them but have had no time! So THANK YOU! My husband will tell you how excited I got whenever he brought in the mail. :) Mail for me! Gimmiegimmiegimmie!

Okay I’m out of time and this is getting long, but I wanted to share a great Lali moment. She learned recently how to say “oww!” So now when I pat her bottom she’ll say, “Oww!” :) This is just hilarious since I’m barely tapping her and she has a diaper on so I’m not hurting her in the least, but she’ll just repeat “oww! oww! oww!” for every time I pat her. If I keep doing it and she’s in a particularly rotten mood, she’ll crumple to the floor (very slowly, from a sitting position) and swing her arm up to her forehead very dramatically and frown and groan in her torment. :) Then if I’m ignoring her she’ll stop whining (even stop frowning) and peek her eye out from under her arm and see if I’m still paying attention to her plight. Then if we make eye contact she will continue in her half-hearted woe-is-me whining all over again. It’s so freaking cute!!! :)