I don’t know, how are we doing?


I thought this might give people a better idea of why surgery is needed for her hips. This is the straightest she can “stand” right now. Her hips and tush are pulling on her lower back. Plus her legs are spread wide, and go up and out like she was meant to do nothing but sit. Hopefully if all goes well, and it will, the surgery will greatly improve her ability to straighten out!
So I don’t know, how are we doing? A lot of bad has happened in the last two weeks. My grandfather, the one who built my tree house and played video games with me and was there every single Thanksgiving, who was my next door neighbor my entire childhood, is gone.
I had a physical reminder last week that my body isn’t good at making babies. (And, no, I don’t want any either, ever again! And we’re not trying! But I hate that my body isn’t right.)
I had to defend my choice to be a working Mom to a misinformed, Bible-spouting ignoramus.
My work is crazy since it’s our busy season.
Our cat got fleas. Okay that last thing sounds like nothing, except for the fact that I have this annoying small bugs phobia. I have been scrubbing and vacuuming everything in sight, and I’ve not been able to sleep at night for fear they’ll eat me.
Of course we have only seen a few fleas, and I nuked (with flea spray) everything in sight, and put Advantage on all three cats. It should be me who keeps fleas up at night.
But I think the worst are these panic attacks that come from thinking about Laelia’s surgery. I get scared and worried and start shaking and crying. But then I don’t think about it for a while, and I’m almost fine again. It can get bad at night, but I get little stabs of panic or grief at random times during the day too. I had one on my way to work yesterday morning. Had one when I had 9 minutes left on the treadmill. Had one when discussing my schedule for the next couple weeks. Had one fifteen minutes ago…
I just can’t believe she starts school next Thursday. Then surgeries come six days after that. It’s too much. It’s too soon. I’m not ready.
Other times I’m better. I have a lot of encouragement and support from friends and family. I know I haven’t gotten back to everyone who has emailed me, but I do appreciate it very much! I’ve gone out to Golden Spoon and talked with Lauren, I’ve gone to the gym and talked with Chelsea and I’ve gone out with Maria and had a couple drinks. I felt a lot better after talking about it, and then being able to talk about other random, girlie things too.
It’s that bit of normalcy that feels good.
We’ve also had some good distractions. Like when Lali throws a fit when she can’t have a “cack-er.”
Or watching her play with her new Power Wheels. Or listening to her sing Twinkle Twinkle Little Star.
Okay I feel better after getting a bit out on the blog. I think I’ll go to bed now. Thanks for keeping us in your thoughts and prayers.


September 4th, 2009 at 7:37 am
My heart breaks for you, Lexi. I’m so glad you have such wonderful friends to help you over this really scary hurdle.
I went to your welcome page today and read this sentence: “She also may not be able to smile with her whole face.” And then I looked again at these amazing photos and videos and at how completely Laelia smiles not just with her whole face but with her whole body, and realized you are achieving that elusive goal of raising a happy daughter.
She has already come so far beyond what was imagined two years ago, and after these surgeries she will likely show you yet again the marvelous wonders that lurk within this little girl’s body and spirit.
So many hugs and prayers for all of you.
Linda
September 8th, 2009 at 5:39 pm
That first photo–she looks a lot like Charley there! I”ll be praying the surgery goes well.
September 8th, 2009 at 5:48 pm
And we can keep going for frozen yogurt as often as it takes
I love you lovely ladies!
…and yes Charley too