Physical Therapy

This is the year for mobility! We’re working hard to see  Laelia sit up, stand and scoot before she turns three! We found out at our last trip to the PT that her body is still not in the position for standing. That’s what the surgery was for so we’re bummed as you can imagine. But she is much straighter! We have some new hip stretches for her (that she hates) and some new weight bearing positions for her (that she hates more), so we’re hoping all this hard work will pay off before next October. If not, then we’ll see if another surgery can’t do the trick. I’m pretty optimistic though.

It’s weird, sometimes she can’t do something that I would think she could do, like get out of a kneeling position on the couch, and then other times she does something I didn’t think she could do, like scoot across the living room!

Here’s the video of the scooting!


We found out some interesting things this week and I’m not sure what to make of them. Apparently how her hair all seems to come from that whorl in the back and then sweep to the side (she doesn’t have a straight part like me) is due to her arthrogryposis and  the position  her skull  was in while  in the womb. Also her labia didn’t fully form since her legs were so wide spread in the womb. It probably won’t affect anything, but who knows. Just random things for Mommy to worry about.

Anyway, one thing the surgery really helped was her feet!


This is before her bath so there’s still crusties on her feet from the casts.


Happy girl!


Progression of the left foot:


Left foot at birth.


Left foot  after minor surgery  AND serial casting.


Left foot after major surgery!

Go lefty!

3 Responses to “Progress”

  1. Tam says:

    sophie’s feet were like that when she was born. they arent so nice as Laylia’s now but they are mostly straight. She scoots like laylia and also has the missing labia. but she isnt standing yet….she is still in flexion at about 90 degrees at the knee. Waiting on Shriners to give us an appointment. now that Laylia is scooting she will take over the world. I have no doubt.

  2. Kiersten says:

    Wow, Alexis – the foot looks great…’s interesting, Ryan’s 4th toe looks exactly the same right now as the “minor surgery” pic – wonder why that 4th toe is the worst…interesting. Also interesting, Ryan actually has 2 whorls – and I read that, like you, that it has to do with this whole thing.
    So glad to see baby girl scooting around.

  3. Carolyn says:

    Alexis, she is the most precious thing. She is definitely a miracle child. She has come a long way. So awesome to see her progress! Thank you for making this website so we can all see how she’s doing. I love Laelia! :) Give her a hug and kiss for me. Love ya too!

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