School Won’t Take Her But Mickey Will?

Today my daughter got kicked out of preschool.

I knew once she joined that gang and started doing drugs and bringing knives to school that it was only a matter of time. Oh wait, my daughter wasn’t able to stay at school today because SHE’S DISABLED.  More specifically, she couldn’t stay at school today because  the treatment for her disability  is serial casting or post-surgery casting, and casts are apparently, all of the sudden, out of the blue,  not okay.

Today my husband attended a meeting with Laelia’s principal, PT, immersion teacher, classroom teacher,  disabilities coordinator person, etc. They, as a concession,  could take her back for half her contract hours (half days)  and then  kick her out when her aide leaves for the day at 12:30pm. They’ll “see” about more than that. When I say “they” I’m referring to the principal more than anyone. And they can do this because her IEP only covers half the day.

Today my husband said he felt as if he failed his daughter.

Today we found out that our special education coordinator, who we felt was Laelia’s advocate alongside  us, no longer has that position.

Today I comforted my daughter because she  was upset  and she wanted to go back to school. I had to explain that right now her wheelchair and her casts have made the principal of the school uncomfortable and we have to wait until someone can help mommy and daddy convince them that she’s a great student!

Today I had to research the ADA (Americans with Disabilities Act) to figure out if they can deny her what she would have if she weren’t disabled.

Today I Googled lawyers, not for the first time,  that can maybe  help me enforce her contract hours at school.

Today I left work to try to  play “school” for my daughter. Today we tightened our budget.

Today I wondered how we were stupid enough to get ambushed like this. They  ALL knew about this surgery  since before the school  year started! It was mentioned in her IEP for crying out loud! There was clearly a 100% chance she’d come back to school in casts.  I reminded everyone at that school that we’d be back in casts on December 1st before we left for  Philly!

It doesn’t make her any less mobile than before, by the way. Casts actually protect her better than next month when she doesn’t have them!

She had surgey and casts last year and went back to school! She will have surgeries and casts and serial casts all her life and cannot just  NOT go to school because you  don’t want her there, people!

The principal did pull me aside before we left for Philly  to say they had “concerns” about not having enough help,  but I thought that was being worked out.  And I never thought they could do this!  Do they not realize that if they can bully (YES BULLY) us out of school based on the fact that our daughter is “hard” on them, then she’ll always have to deal with fighting for her rightful place alongside her peers? If they can’t afford watching her, and that line of reasoning works to keep her out of school, then they can blame the budget or economy every time they take something away from her!

SEC. 202. DISCRIMINATION. 42 USC 12132. “Subject to the provisions of this title, no qualified individual with a disability shall, by reason of such disability, be excluded from participation in or be denied the benefits of the services, programs, or activities of a public entity, or be subjected to discrimination by any such entity.”

What would they do if a typical child came back in casts?

School obviously is too much for her and too hard for them, but Disneyland is fine. Um… yeah. They may not want her,  but Mickey will take her! :)

Cold day at Disneyland.

It’s a Small World After All!

She sang along!

L for Laelia!

The one drawback to having a wheelchair instead of a stroller is when she gets sleepy she can’t recline. :)

Today I treasure my beautiful, bright and well-behaved girl.

Today I’m dizzy, nauseated  and mad.

Today I promised myself I would treat this as a growing experience and learn how to communicate and educate the people I feel are persecuting us for their own ease. Today is a challenge, not a setback. I think I believe that.

Today my daughter asked a billion times to go back to school. She was only able to stay a short time and she’d been looking forward to going back since her surgery. She tried convincing me with reason. She tried “please.” She  promised she’d be nice.

Today I cried.

Today I wiped my eyes, took some nausea medicine, pushed my glasses up my nose, rolled up my sleeves and sharpened my claws.

This is a battle I cannot lose.

4 Responses to “School Won’t Take Her But Mickey Will?”

  1. Tam says:

    and I know you will fight until you win!

  2. Laura says:

    What ridiculousness!! I’m so sorry that you are having these problems!! If you would like to talk to my mom, who I’m sure had at least similar problems, just shoot me an email and I will put you guys in contact. I promise, there is a light at the end of the tunnel, no matter how long and dark it is! And God is always by your side : )

  3. Danielle Cervantes says:

    My sister-in-law is an ADA expert — she’s a lawyer (and disabled with CP). She lives in Colorado now, but she has successfully sued several San Diego-area establishments that have limited access. (She says that she doesn’t collect any money but does ask them to change their policies.) She recommended this site: http://ndrn.org/.

    Also, you may want to talk to David and Michelle Wakefield. They used to be in business with Ted Pinnock, a local ADA attorney who came under some scrutiny in the press after he filed hundreds of ADA lawsuits . I used to know Michelle Wakefield personally (she was a mom and my catechism teacher at my church when she was being a lawyer), and she is amazing. She and her husband have a simple website: http://www.dmwakelaw.com/home

  4. Laelia Sky » Blog Archive » You must be this tall… and able to stand… and not have arthrogryposis to ride this ride. says:

    [...] she was a free ticket until she turned three, we’ve spoiled her rotten with visits there. She even went to Disneyland in casts, weeks after surgery. Sometimes the promise of Disneyland is the only thing that keeps her going after a hard [...]

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