Life in the Fast Lane

It seems life has been going too quickly to keep up with. For one thing we had an AMC Get Together at our house almost three weeks ago. I didn’t get many pictures (the ones below were taken by other people), but here’s a few of the kids.

Hanging out on the bed.

The kids loved rolling up and down the carpeted wheelchair ramp.

It’s the Diego monster! Roll away!!!

I had a great time watching all the kids play together. I got to hold a newborn with AMC too!  And meet her mom!  It was a great time. I even got to meet Michelle and Mark and their daughter, Colette, who live in Arizona! The kids had fun while the adults talked shop–mostly  braces and doctors. :)

In other good news, Laelia is doing amazing! In power chair news she’s now officially a better driver than her daddy. ;)

In bad news, since moving into our new home we’ve had plagues of apocalyptic proportions. :)   First there were the spiders, but I think we finally have that under control. But one day out of the blue we had around 300 wasps appear in our living room. Well, at first it was a hundred (you count them when you’re sucking them all up one by one in a vacuum), then after they were gone more and more appeared!  It looked like a blurry indoor hurricane! A ton of poison, a ton of caulk and multiple vacuum attachments later they were mostly gone. It was almost fun sucking them out of the air (and arguing over who got more) after the initial horror passed. They got in through a long crack in the seem where the fireplace meets the wall. We thought we fixed the problem and were patting ourselves on the back when TWO WEEKS LATER we hear what sounds like buzzing in our living room.

Now in case you don’t know,  wasps make a loud, angry sound when flying. BEES on the other hand  make a buzzing sound. We literally killed off the wasp population to make room for the bee population! I grabbed the vacuum but to my surprise, bees, unlike paper wasps, don’t just keep flying when you start sucking them up. No, bees are smarter than that. They see a vacuum attachment and start dive-bombing your face! I think we counted around 100 bees, then about 20 a day after that for the next week. Unlike wasps, people actually like bees because of some dumb reason like they’re beneficial to our environment bla bla bla. So we had to wait for the bee guy to show up and locate the hive. It was in our wall. Thankfully he didn’t have to destroy the wall once he found out how they were getting in. Talk about an adventure! I did take one video after day two of the wasp invasion, but it doesn’t really capture the event.  Click here to see it anyway.

Then I hear this buzzing sound coming from Laelia’s room. Oh no. Knowing my daughter was in her room with the door shut, trapped inside with what was–I was now convinced–a vengeful killer bee, I burst through the door ready to take it down. It was then that I  discovered the “bee” was my daughter making less and less realistic bee noises. She said, “Mama, I’m a bee! I’ll be a baby bee and you can be my Mama bee! Buzzzzzzzzzzz!”

That child will give me a heart attack one of these days. Good thing she’s cute…

But no one was stung or bitten so we were very lucky. We were, however, bitten by the tummy bug. My husband was a bit ill, but I had  a full on  stomach flu. Laelia didn’t get sick or  miss a beat in her usual way. I think she’s a carrier  for all disease. She never seems to get that sick, but I think she happily passes along every disease known to Ms. Wilson’s preschool class.

Speaking of preschool, Laelia had her IEP meeting a few weeks ago and it was a piece of cake! They even gave us limited OT hours, and when I asked for the max instead, they said yes! I look forward to next year!

We  have been waiting to hear if Laelia was accepted to summer school or not. Today I received two letters: a denial letter for summer school and an acceptance letter for the same summer school. :) I was so sad to read the first one and then just confused when I saw the second one. (They were handed to me at the same time and folded together.) Turns out Laelia was denied and then later accepted. So now I’m just working out the three week gap and getting denied by daycares left and right. We have been paying into a daycare fund all year, so it’s paid for if we can find something. But our money is not good enough because our daughter is seen as a liability. Boo! That’s why I love Laelia’s preschool. It’s been a positive experience for her, and no one looks at her as anything but a child. A smarty-pants child. :)

I also just got officially awarded paid family leave to take Laelia to OT and PT right after Laelia’s school aide leaves for the day!  This way I can retain my full time work status, but take off an hour and a half early from work to do OT and PT with Laelia!  And Laelia is getting so much out of OT and PT lately–it’s amazing! The reason it took so long to get accepted was because my paperwork did not have an “end recovery date.” I guess they wanted to know when that yucky arthrogryposis would clear up! I spoke to 3 customer service reps and they would not budge on this! Our doctor faxed them a detailed letter about how  AMC is  a lifelong condition, but they just glanced at it (while I was on the phone) and said, “There’s no end date. Denied.” When I asked to speak to a lead (or supervisor) they hung up on me. Finally thanks to the wonderful Mimi at Shriners, and multiple faxes, we finally got approved and my time cards filled out. We had to say that the arthrogryosis would magically vanish in 2022. I wish.

Well I’d better wrap this up. Speaking of the fast lane, someone just told us happy anniversary and my husband and I both realized we totally forgot. We’ve been too busy lately! Oh and I just noticed my driver’s license expired…  two months ago.  Ugh. I’ll deal with this and then come back and post videos. :)

 

Leave a Reply