The history of Laelia’s knees

The history of Laelia’s knees.

Once upon a time Laelia had bent knees. (Bent = flexion.)

We tried serial casting, daily stretches and finally KAFOs (knee ankle foot orthotics)  to try and straighten them out.

When we got down to 45 degrees flexion she was able to stand with KAFOs!

Even as we stretched her nightly and the KAFOs pushed her legs straight, those  stubborn  knees were still stuck in 40 degree flexion.

Then Dr. van Bosse did Laelia’s knee surgery to make her knees straighter. (Straight = extension.)

The surgical releases allowed her to gain about 15 degrees of extension overnight!

Still I was a little disappointed that her stubborn knees were still a bit bent.

But with the eight plates inserted we watched her very slowly gain a few degrees of extension every month. This picture is just two months after surgery!

Then last night at dinner I watched Laelia push her knee down to 0 degrees.

That’s perfectly straight.


Now I don’t have a  goniometer, but that looks like 0 degrees to me!

When she let go it was still within 5 degrees of perfectly straight!

They still bend a little when standing, but we are very happy that in three months we’ve gained almost ten additional degrees of  extension  with the eight plates! That’s amazing!!!

Praise God!

Thank you Doctor van Bosse!!!

I love it!

(Click on this picture to make it bigger and more readable. You don’t want to miss this!)



7 Responses to “The history of Laelia’s knees”

  1. Kiersten says:

    Yeah – seeing her straight legs pretty much made me burst out in tears….absolutely incredible to see that much progress in such little time. Truly amazing. Congratulations, hugs and kisses!

  2. Charles says:

    Whoa, cool graph at the end!

  3. Anonymous says:

    Wow!!! This is amazing… do u mind if I share this with one of my Granddaughter’s dr?

  4. admin says:

    Please do! That’s why we put it out there! (It was eight plate surgery with tendon releases of the knee. Preceded by daily stretching and serial casting. Followed up with stretching and physical therapy.)

  5. Kristin says:

    that’s awesome :)…

  6. Danielle Cervantes Stephens says:

    Parents who have more recently had a baby with arthrogryposis are going to find your website/blog and be INSPIRED and given HOPE. Always know that you’ve not only raised a wonderful, determined, beautiful daughter but you’ve created a ministry for parents going through trying times. You and Charles deserve a double high-five! God Bless you!

  7. Anonymous says:

    OMG this is amazing!!! I cried when I saw her end result!! Just amazing! I hope that one day maddys legs will be straight. We get them very straight but not like that! I also hope that she doesn’t have to get the fixator surgery and can just do the plates surgery.

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