Arm Surgery


Here we go again!

Yes we just had surgery six weeks ago. Yes this was completely unexpected. Yes this is Laelia’s first (and last) arm surgery! And yes it is a doozie!

Two expert surgeons. Both arms. Rotational osteotomies. Six weeks recovery. Laelia won’t be able to use her arms for a over a month. Laelia won’t be able to walk because she’s prone to falls and one fall could ruin the fragile bone healing.

I’m finally getting, for all intents and purposes, the quadriplegic child the doctors told me I’d have. But only for six weeks.

So why did we decide to replace most of Laelia’s arm tissue with robotics?

Well this will help her to feed herself better, hold a ball better and clap by hitting her palms together as opposed to the back of her hands.

Why robotics?

With amyoplastic arms there is clearly a lack of muscle and tendon and nerve endings. And obviously with arthrogryposis there is extra joint tissue.

Adding metal to those areas adds a bit of weight, but adds a ton of range of motion.

She already is able to supinate her arm. Now she’ll be able to easily (if passively) rotate them too!

Here’s the concept art.


Obviously she’ll look different.


And here’s Laelia after surgery!
Ta da!



Laelia standing tall with her new arms!


Laelia trying on different arms post surgery.


All I have is MS Paint, so I was pretty proud of this one. :)


And just for fun. :)


Hahaha!!! (Laelia is standing here saying, “Hey, Roland looks different! Those aren’t my feet! What’s going on!”)

Happy April Fools!!!

(If you’re reading this on April 1st we’re probably still in real surgery getting the rotational osteotomies. No robotics involved. Surgery on April 1st, what a joke! I told them no one would believe me. :))

6 Responses to “Arm Surgery”

  1. Maureen Roscorla says:

    Well, Alexis, you sure found a way to combine your customary April Fools Day hoax with the truth in a very entertaining way. Great job with the photo tweaking!!

    Praying for you as you go through the hard stuff.

    Love, Maureen

  2. Anonymous says:

    I look forward to April 1, just for your AFD posts! And yet, even when I read the first use of “robotics,” all I thought was, “Wow, did I miss something? Laelia is getting implants?” And then my eyes wandered over to the photoshopping! You are so hilarious! Hope recovery is going as well as can be. Hugs to you all!


  3. Baggins Dad says:

    You got me last year! Jason asked if I had seen the blog (I hadn’t). He began to tell me the story. I was falling for it. Then I remembered the date, and the source.

    I’ve been following your stories (from the shadows) and pray for you all. I’m so glad Jason has such special people for friends.

    Roger B

  4. Stacy Scheel says:

    Love this- thanks for the giggles.

  5. Brenda Mantsch says:

    I’ve never responded to a blog & don’t know if I’m even doing it right.
    How I ran across your blog I have no idea. I started reading it and you’re very funny. My heart goes to you & your family. What a journey. I have a 4 yr. old granddaughter with apraxia. Not in the same ballpark but I love all you’ve done & love to you & your beautiful family

  6. admin says:

    Hi! :) Welcome!

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