Laelia Sky Wesley

Laelia (nickname: Laelie) pronunciation guide. 

Welcome to the new site, created to keep friends and family updated about our Laelia.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook. All journals, links and guestbook entries have been transferred over from our original CaringBridge site.

Laelia Sky Wesley was born at 1:27pm on October 3rd. She weighed 7lbs and 2 ounces. She was diagnosed with Amyoplasia Congenita Disruption Sequence the morning of October 4th. The symptom of Amyoplasia Congenita Disruption Sequence is Arthrogryposis or multiple joint contractures. (See the Links section for more information.)

What this means is that because of a “vascular accident” while she was in the womb due to unknown causes, she cannot move or bend her arms, legs, knees, wrists and other joints. It hurts her to change her diaper or clothes. They couldn’t get her length at the hospital or her footprint because her body is twisted, curled and stiff as a board. She will be in physical therapy for possibly all her life.

Now we have a special, physically disabled little girl. We are hoping that someday she may be able to walk with braces and casts, physcial therapy and possible surgeries, but walking is not guarenteed. When we thought of all the challenges of parenthood, we never imaged having a daughter who could not walk, write, ride a bike, type, do sign language or hold a spoon. She also may not be able to smile with her whole face. I am hoping I can re-read this years from now and look at all the miracles God works through her body.

When asked if we hoped our baby was a boy or girl, we would always say that we only wanted a baby that was happy, healthy and whole. Now we are focusing on, if nothing else, a happy baby.