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Alexis,
I finally took a few minutes to read your blog. Thanks for putting down these words that can help other moms as our babes grow up! I will be thinking of you all as the next trials approach. As I’m faced with painful/unpleasant things in my life I just try to keep my mind far enough in the future to imagine the benefits to come; sometimes it helps.
Melissa
I am writing to you all the way from the UK. I was reading your blog and just find you so inspirational and a amazing mom. I just know excately what you went through and going through. My son was born 14 October 2010 with arthrogryposis and his hips, legs and feet looked exactely like your daughters his arms are not affected as much only some stiffness in his shoulders and elbows. We just knew about his clubfeet at the 20w scan, but did not know about contracted knees, weak muscles in legs and hips and was a shocked when the doctor diagnosed him with arthrogryposis after he was born. It has taken some time to come to terms with what might be in his future, but now so over it and just enjoying him for being him. They are just exceptional kids and I can already see that he will have the determination to do what ever he wants to.
I will keep on reading your blog as gives me hope and shows me that anything is possible.
hello i was givin this website link by my mother in law. it is truly amazing to see. my daughters name is brayden lee dame she is about 2 and a half months old and has arthrogryposas/ amyoplasia congenita and its very hard to go through but we take it one step at a time. she cant move her arms and dosent move her legs much but we can open them up. she has lots of strengthin her back and neck. but no joint movement she also has a problem with her hips and much more. i dont know really what to expect but i do know that i love her is she is the most amazing person in the world. she seems to amaze me and surprise me everyday. its nice to know that were not alone in the world as being young parents everyne seems to think its going to be even harder on us but it was a blessing to us that she is even here today. i will keep reading up on your little one this is very inspiring and im so happy you did this it really gives my family hope.
love the dame family,
charlotte
junior
and baby brayden
I stumbled across your blog and I have found myself spending a long time reading up on your amazing little family and this strong, beautiful little girl! The strength of this little girl is inspiring, thank you for sharing this!
Hi Guys,
We are friends of the Parfet family….My husband has known Don for many years….Megan just sent us your link. We too have a disabled child and understand some of the challenges you face…would love to be a confort and sounding board if you ever need that. We attend the Rock Church and our son is in the disabled class….we have forwarded your link to the staff and families who are part of this program in hopes that somewhat has a suggestion that can help. (one suggestion was to check into regional center?…don’t know if you have tried that?) Anyway, God Bless you guys and the courage to continue!!!
Love,
Bill, Linda and Nicholas Mackey
It was a pleasure meeting you at Clairemont Emmanuel Baptist Church this morning. Laelia was a joy to have in child care. We hope we will have the opportunity to see you again.
Please email me if you are interested in further recommendations for doctors. My wife and I know many throughout town. Dr. Schwartz had quite a reputation, it was sad to hear about his passing, and he will be missed by many.
Hello!
The last time I signed your guest book was when our little one was about 3 months old. She is 15 months old now. Our little one also has arthrogryposis. We are doing therapy 3 times a week, and still working on head and neck control soo much. I know every child with arthrogryposis is unique in their own way, but do you recall when your daughter could sit up without her head dropping down? We would appreciate any feedback.
I definitely have enjoyed reading your posts and looking at pictures! Your daughter is beautiful and has obviously come such a long way. . good job mom!!!
We are also doing surgery soon. . .this Friday! She is having a capsular release on the elbow to help her bend, and repositioning bones with pins in her foot.
Anyway, if you could email me I would soo appreciate it:o)
Blessings,
Alison Kleist
I really hope your daughter does well. With a mom like you I’m sure she’ll do great.
I’m 25 and I have arthrogyposis as well, although it only affects my wrists, elbows and shoulders. My parents were and continue to be amazing, but I don’t think I ever really thought about what my parents might have faced while I was growing up. So I really enjoy reading this.
I’ve had my share of ups and downs with this disorder, but I feel like maybe this was something I was meant to face and overcome. It feels so good to accomplish something when you know that you had to do it deifferently but still suceeded. And now I am proudly a registered nurse. And I chose this profession because thorughout all my surgeries, I remember certain nurses who made my day so much better. So I chose this profession so maybe I can give some of that back to others who might need it.
Alexis- you are such an amazing mom. watching you today with Laelia was jsut priceless. she is an amazing little girl bc she has an amazing mother. you kindness and love show all over that little girls face.
hugs dana
Hello. I felt motivated to sign this guest book, because my 3 1/2 month old has arthrogryposis. It definitely is a condition with many challenges both emotional and physical. But, with the challenges come rewards. Although it takes longer for these little ones to reach milestones, it is soooo rewarding when they do!!!! Laelia is such a beautiful girl and you are so blessed to have her!
I was looking at some of the therapy equipment you are using and I have questions about some of it. . . .to possibly help out my little one. One of the things I noticed was the wraps around her shoulders and elbow areas. . .does this help her bend at the elbow?? Please email me at: kleistalison@yahoo.com
I would appreciate ANY help I could get!!!
Alison Kleist
I debated on whether or not to post a comment here but have decided I should. I never expected to find this site when I typed Laelia into Google. I was bored and thinking about painting for my girls, both named after flowers, one of them Laelia. Our girls have never experienced physical disabilities which is why I felt inappropriate signing here but as I read some of your first entries, I realized that not only do our daughters share the same first name, they are only 5 months apart. On top of that it sounds like you also rely on God. I am happy to read some of your latest entries, the last one of her eating applesauce, and I just wanted to let you know that I will pray for your Laelia over the years. Mainly just because but a tiny bit is because I have never seen anyone else with my little one’s name and it’s a neat connection. A way for me to remember your little girl. I’ll be one more person praying for her continuing progress and more mobility. Perhaps someday she will be the one updating this site…
Regards, Katherine.
Your beautiful little girl reminds me so much of my daughter when she was a baby. Although mine has congenital muscular dystrophy, they are similar in many ways. I know what it’s like to go through the surgeries – she’s had some pretty major ones. I remember thinking randomly before her spinal fusion that we had just purchased a van with a lift a few months earlier, and now she was about to have a procedure she might not come through…well, that was five years ago, and she’s still going strong! And we’re about to make the final payment on the van. :0) Like many others, I’ll send special prayers and good thoughts to all of you on the 16th. If you would ever like to talk, feel free to e-mail me! rnilifamily@yahoo.com Blessings,
Debra
Your beautiful little girl reminds me so much of my daughter when she was a baby. Although mine has congenital muscular dystrophy, they are similar in many ways. I know what it’s like to go through the surgeries – she’s had some pretty major ones. I remember thinking randomly before her spinal fusion that we had just purchased a van with a lift a few months earlier, and now she was about to have a procedure she might not come through…well, that was five years ago, and she’s still going strong! And we’re about to make the final payment on the van. :0) Like many others, I’ll send special prayers and good thoughts to all of you on the 16th. If you would ever like to talk, feel free to e-mail me! rnilifamily@yahoo.com Blessings,
Debra
Thanks for letting me read about your adventures with this wonderful little girl. I just started reading today because of a random phrase that I googled after a vivid dream. I know God works miracles through medicine and technology and that is so apparent in your lives. Thanks again for posting about your life…I will continue to follow your blog and Laelia’s achievements. God Bless you.
Jody
I loved reading your posts and looking at the pictures. I am in a Doctor of Physical Therapy program and wondered if I could use some of your pictures in a presentation I am giving in my Advanced Pediatrics class on Arthrogryposis?
Keep up the faith!
April
My name is Christine and I went to high school with Charlie. I stumbled upon your page from Missy Gore’s myspace. I have to tell yoou that Laelia is in my daily thoughts and prayers. Parenting is the hardest job anyone can have but you both seem strong enough to get through it! Take care and keeping kissing that beautiful baby!
Your baby is so adorable. I love reading about her and yall and watch the pictures and videos. I had a sibling who was disabled and I know the frustrations you go through and also the joy when she does something small but to you amazing. I love reading about you all and her everyday. please email or call one of these days to catch up. In his name. Doug
Charlie & Alexis,
Miss you so much!!! What a beautiful baby you have! Her giggles on the videos brighten up my day!!! Your website is so clever and fun! Your episode with vertigo (how awful, Im sorry you have to suffer through that!) reminds me I need to keep a journal of all my “crazy” episodes that keep Doug up half the night. We love looking at your blog and seeing the hope and determination you have in providing the best care for Laelia! Although we are far away, your blog makes us feel closer! Love you!
Carol Chase
Hi Alexis,
We met this past weekend at your baby shower and again at pastor ron’s house for easter. What a great website you have.
this way I won’t have to ask endless questions about Laelia, that you have answered many times before.
You are in my prayers.
Lexie and Charlie,
We are so thankful that Laelia is moving her arms and feet. God can work beyond what any physician says. We have been praying for you and your baby. Wynema and Marilyn have been keeping us posted. With love and prayers, Bob and Cathy
Alexis,
Soooo excited to see the videos. I am so glad that progress is being made. Many do not understand the joy that comes when your child does something that is closer to “normal” than what they were before. To know that they are doing more than stupid doctors told you they would. I am so excited. I understand the joy that comes when she does something you never thought possible. I agree with the others, you are doing a great job.
I found your blog through a friend who’s daughter also has Arthrogyposis. Laelia is beautiful!! I’ve been reading a lot of your entries and I a lot of what you’ve written is what I think my Mom would have written if she had kept a journal when I was born with Arthrogryposis 20 years ago. I loved watching the videos of Laeila moving her arms for the first time, it just made heart leap for Joy, those movements will probably continue to come! I’ve seen you post a few times on amcsupport.org, I didn’t respond there but I hope you find a doctor who is willing to treat her legs how you hope! I had one leg in hyper extension and one leg in mild flexion but my arms looked almost identical to Laeila’s and I am now able to do many things that looked impossible when I was born.
You are an amazing person. I read your entries and admire your strength. I look at your little girls face and she makes me smile. When I hear mothers complain about their children acting up, I tell them to read your story, and think again about their situation. You have a great bond with your husband and daughter. Thank you so much.
My heart is heavy tonight after reading your latest entry. What a challenge you all have in front of you. But as I continued reading further, what touched me more was the love you have for each other and for your precious little girl – and she is so precious. Stan and I pray every day for your family. For strength, comfort, answers and patience for you two, and for a miracle to occur in sweet Laelia’s body.
We love you – I just wish we were closer so I could have answered the “emergency” call – what an honor that would have been!
Hi Alexis, Charlie and Laelia,
I have been following all your record of Laelia’s progress and have laughed with you, cried with you and prayed for you. The gals in our S.S. class at GCBC are praying too. Hope you received our card. Keep looking up (and by the way, you don’t have anything to blame yourself for. You are doing a terrific job). Love you, Frances
Thank you for all the pictures and updates. You are right, life does suck when such a beautiful little girl has to go through such pain. You are a wonderful Mother and she is lucky to have you and your husband as her parents. Take care of yourselves. Happy Holidays.
Love the new site and especially the many new pictures. Couldn’t help but think that Laelia will grow up knowing there’s a world of people who love her, and that’s a wonderful thing for any child.
Hope you’re having a great visit at home and that the trip has not turned out to be too daunting. Happy Thanksgiving!
WEDNESDAY, NOVEMBER 14, 2007 11:26 PM, CST
Hey you guys! I was just stopping by to catch up on the journal, and figured I’d drop a note as well! I’m very glad to hear about ‘little’ blessings… like insurance cooperating and Aces up sleeves . I love it!!
I love you guys, and will keep praying!
Becky Casselberry
Denver, CO
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WEDNESDAY, NOVEMBER 14, 2007 09:04 PM, CST
Hi Alexis and Laelia,
It was so awesome to see you both today at DSP! Laelia is so beautiful and adorable! I’m really glad you stopped by so I could see you two before I leave this Friday on vacation. We’re driving back east for Thanksgiving. It’s going to be a very long drive but it’ll be fun! Can’t wait!
Laelia is very blessed to have you and Charley as her parents. She’s a very special little laelie bug.
Jeff and I send you our love. Hang in there! Stay strong!
Sending hugs and kisses your way,
Jeff and Carolyn
WEDNESDAY, NOVEMBER 14, 2007 04:35 AM, CST
I received the link to your website from my friend Annita. I just wanted to introduce myself and invite you to our website and into our family. I know how difficult it is to have a child you knew only as being “typical” inside of you growing, and to be faced with challenges once she arrived. Our daughters’ diagnosises are different but I am here to offer you a shoulder, or an ear, or just to be someone who knows what it’s like to deal with medical personnel who don’t get “it”. And to feel dumbfounded at what to say when people ask, “how do you do it?” Please feel free to visit our family’s page, or email me privately.
You don’t know me but I am a friend of your Aunt Linda’s. She shared your story at a women’s meeting Saturday and I was deeply touched. I asked if I could have a picture of Laelia –I want to have her engraved on my heart, I want to pray for you and your family. She is precious, she is beautiful! I admire your courage and your sincerity, sharing a story of unconditional love and patience. I don’t know what to say. Here is my prayer for today: Heavenly Father, tend to Lexi and Charlie as their Shepherd, gather Lailia in your arms, carry her close to your heart. Lead her parents gently, guiding them every minute of the day, giving them strength and endurance, in Jesus’ Name. Amen
MONDAY, NOVEMBER 12, 2007 11:24 AM, CST
LOVE THE PICTURE OF DADDY AND BABY! Thank you for sharing. Annita
Annita Sibert
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THURSDAY, NOVEMBER 08, 2007 03:30 PM, CST
Dear Three,
I read somewhere recently that we all suffer and the only thing that makes it bearable is when we let someone else know we care what they are going through.
I care and I am very sorry for the difficulty of what you are going through.
I had the impresssion today as I read about Laelia getting her casts that it is very important that you write as you do. You write so honestly. You tell the story. You don’t spiritualize and try to make it hunky dory. You tell the hard parts and the little sweet things that also happen.
I don’t know anything except to say I have a heart full of love for the three of you.
Love, Jan (David Ringer’s work colleague)
Janet Crowell
Fort Worth, TX
United States
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WEDNESDAY, NOVEMBER 07, 2007 11:27 PM, CST
Just read your latest journal entry! That was beautiful. You are amazing.
Annita Sibert
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WEDNESDAY, NOVEMBER 07, 2007 10:33 PM, CST
Just read the latest journal entry and continue to be amazed at how quickly you and Charley are growing into your new parent roles. They’re bigger than most, but you’re handling them so well.
I love the explanation about God not “making” Laelia as she is, that she had an accident, and that God knew it and allowed it to happen. This is such a perfect way to explain the situation without making God the bad guy, which He never is nor ever will be, and in terms that even the youngest child can understand. It also encompasses a critical principle that most people don’t quite get. God may well look at most interventions as meddling, even when we think they would make such incredible and desperately needed differences in our lives. We have so much to learn, but most of that has to be done exactly as you are doing it now… day by day, sometimes only minute by minute and slogging through intense suffering.
Just as every choice that you made before Laelie was born was done with love and her best interests at heart, so is every choice that you now make. They won’t all be the right choices, but that’s just normal parenthood, and even when they aren’t exactly right, each and every one will be made with love, with hope for the very best for your beautiful daughter, and with the sure knowledge that you are, in fact, doing your best.
Keep at it! And we’ll keep trying to convince God that intervention is warranted in this particular situation.
Love and hugs.
Linda Record
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WEDNESDAY, NOVEMBER 07, 2007 09:04 PM, CST
Just checking in again to cheer you on–I did my volunteering today at Chrildren’s and was just wishing I could do something to help you. All new mommies get tired, but your exhaustion must be nearly unbearable. Glad you’re feeling a little better and Laelia is getting acquainted with her casts. Keep up the good work! (I know you’re thinking, what choice do I have?) Sincerely, Suzanne
Suzanne Cuppage
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MONDAY, NOVEMBER 05, 2007 10:10 PM, CST
Charles and Alexis…I know today was the day for the arm casts and I am praying for the three of you! Please do not hesitate to call if you need anything!
SATURDAY, NOVEMBER 03, 2007 03:56 PM, CDT
You guys are so brave. I hope you know that Jason and I weep with you in your pain and rejoice in your triumphs like so many others do. I’ve been told that God cares far more about the character of his children than he does their comfort. From my observation of life I believe this is true. There is reason in His design for us. Remember when you are doing therapy with Laelia that you are doing the right thing for her even though every parental instinct inside of you screams that this can’t be what being a parent was supposed to be like. I know that someday your daughter will be grateful for the sacrifices you have made for her and your strength to follow through with her even though it is so painful for all of you both emotionally and physically. BTW, I love your going to Holland analogy.
Sheri Record
Spanish Fork, UT
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FRIDAY, NOVEMBER 02, 2007 11:01 PM, CDT
Good night, precious Laelia. Sweet dreams, darling.
You don’t care about such things as birthdays and milestones yet, but tomorrow you will be one month old. In that SHORT time, you would not *believe* the number of people your little life has touched!! And the number of hearts your Mommy and Daddy’s courage, strength, love, and openness have melted!! I bet its already more people than most of us could hope to positively impact in our entire lifetime!!!
Your little legs may or may not carry you through life; we’ll have to wait and see. But Sweetie, the courage inside you, the love around you, and the Power above you most definitely will!!
Here’s a big hug for everybody!!
Kate Morgan
Vista, CA
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FRIDAY, NOVEMBER 02, 2007 12:39 AM, CDT
Hey guys. Your last entry made me cry I’m sure this must be so hard and so painful and I really don’t have any idea what you are going through, but God does. I wish I could offer some new words of wisdom and comfort that you haven’t heard before, but God knows your sorrow and pain; there is a reason that Laelia has been made this way and it may take a long time before you see it. Keep doing what you’re doing, because it seems to be the best thing. I pray that we can look back on this some day and see the whole picture and see where God has taken you and Laelie as a result. Don’t give up! We love you! God loves you! Even when we don’t know what’s going on or why something is happening, we know the One who does!
THURSDAY, NOVEMBER 01, 2007 10:08 PM, CDT
Dear Laelia,
If you have to have casts, insist on pretty pink and purple ones so they will match all your adorable outfits. Scream loud and long until you get your way.
THURSDAY, NOVEMBER 01, 2007 09:43 PM, CDT
Dearest Charles and Alexis,
Our hearts are broken by the pain and suffering that you, as new parents, and this sweet, new life named Laelia, are going through. I wish I had answers for why life seems so completely unfair at times.
Quite honestly, when I heard about Laelia, the first thing I thought was, “Wow, God must really have a lot of confidence in those 2 people to entrust such a tender and precious life into their care”. Your baby girl is beautiful. Your love for her and for each other is so evident and so touching.
Please know that Stan and I pray for each of you every day. We will continue to pray for a miracle – in whatever shape or form that may come. If I’ve learned anything in all my years, it’s that God’s ways are not our ways, but His way has always been better than my way. When we can’t understand why, and there doesn’t seem to be any answers, we just have to trust His heart, and remember that He loves us and He will never leave us – no matter what.
Reading your updates makes me smile sometimes and weep sometimes – much like this thing called “life” that we have to slog through every day. Our prayer will be for strength and rest for both of you, more comfortable days and nights for sweet Laelia, and connecting to the right people who can make a difference in her life.
We love you.
Stan and Sharon Coppinger
Longview, TX
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WEDNESDAY, OCTOBER 31, 2007 02:37 PM, CDT
Wow! What a powerful dream. There is a lot of meaning in that. Like Linda said—Strength comes in the journey. Hang in there one day at a time.
Sheri Record
Spanish Fork, UT
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TUESDAY, OCTOBER 30, 2007 01:56 PM, CDT
So sorry for the obstacles you’ve been going through with Laelia. Reading through your entries I feel the frustrations… I can’t believe how cold people are, treating her like a problem rather than a human. My prayers are with you, I hope you have a better day –
~ Melissa Rowe
p.s: There is a reason… in time we’ll all see how God worked through this little girl. I have a strong feeling she’s going to teach the world a few things
TUESDAY, OCTOBER 30, 2007 12:14 PM, CDT
My Dear Lexi, Charley and Little Laelia,
You are all precious in God’s sight and in mine! You are each amazing and I love you so much. I’m so proud of each of you for the way you are starting the journey you are on. I read somewhere where God doesn’t give you strength before the journey, strength comes IN the journey. You are evidencing strength to those of us who are reading your journal, praying for you and supporting you, even when I know you feel so weak. I think you are doing a great job! Lexi, you seem so “in tune” with Laelia and her needs. You’re a great mom. Charley, thank you for being strong even when you don’t want to be. Job also had to be the strong one at those times when Jennie and I would walk down the hall as far away as possible because we couldn’t bear the crying. I was grateful for him then, and I’m grateful for you now! You are a great dad. I just want to send you a big hug! I’m always here for you. I love you.
“Great” Auntie Linda
Linda Wheeler
Ripon, CA
United States
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TUESDAY, OCTOBER 30, 2007 10:06 AM, CDT
((((BIG HUG!))) lr
Linda Record
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MONDAY, OCTOBER 29, 2007 12:13 PM, CDT
The cardboard box pix is so precious. I’m sure your cats like the cardboard box too How is Laelia doing with the casts? How long do they keep them on at a time? I’m praying that her discomfort is very minimal. Are you able to give her anything for the pain? My continued thanks for being so open and honest in your journal entries. I won’t get up on my ‘soap box’ today about the medical insurance red tape mess you are going through but I feel your pain. I think you should take Aunt Linda Records advice from her guest book entry and start going ‘over’ their heads!!! Praise God for all the help you HAVE received to date from so many and I’m glad to hear you are challenging your own faith and allowing God to answer your doubts. Complete and total FAITH is a very hard thing to have but it does give you peace and hope and understanding of how powerful and gracious and loving our God really is. We are celebrating what God has done in baby Abi’s life (Jennie’s baby) in just 6 months and now we get to thank God for what He has already done in baby Laelia’s life. God takes care of ALL of His children. I so wish we could make a trip to come see you guys. All my love……..
Amy Kennedy
Escalon, CA
MONDAY, OCTOBER 29, 2007 10:40 AM, CDT
WOW! I can’t believe how much you guys have been through since Friday!
I am so glad that she slept 6 hours!!! it was just taking her a while to get a normal sleeping pattern. I hope and I pray that you will have many many more nights of 6 hours, plus, of Laelia sleeping!!! Praying for God to heal her is good, but I think praying and trusting God that she will: learn to breast feed in one sitting without any complications/breaks, and praying for her to sleep in at least 2 hour incraments all night long; is very important too!
You have been through so much & I know that your insurance will come through and your PT/OT appoints will be scheduled on a regular basis…very soon. My advice for Charley is to call them and continue to yell at them regarding that red tape crap! You shouldn’t have to wait and you should yell at them several times a day!!!!
I’m happy that Laelia can now sit in a car seat with her casts on!
rachel morales
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SUNDAY, OCTOBER 28, 2007 02:14 PM, CDT
As well as the BBB… since your on the phone already.
Praying for you guys, sure hope things change in a hurry! Would CaringBridge have any useful contacts?
Joel Kreider
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SUNDAY, OCTOBER 28, 2007 10:22 AM, CDT
Just read your latest journal entry and cannot imagine how upset and frustrated you must be. The bizarre thing is that by using these tactics to save a few pennies now, the insurance company is actually increasing the likelihood that it would have to pay a lot more later to care for problems that could have been corrected more easily NOW. It seems that even if they can’t see what they are doing is morally and ethically wrong, they could at least see that it was financially counterproductive.
Maybe it’s time to tell them Michael Moore will be arriving with cameras — or that your senator and congressional representatives will soon be calling.
My heart goes out to all of you. I hope that you and your doctors are able to make some headway soon. Hugs. lr
Linda Record
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SUNDAY, OCTOBER 28, 2007 12:18 AM, CDT
Dear Charlie and Alexis, My prayer for both of you is that God would give you the desire and ability to “embrace” all that has been placed before you. He is able to give you far above what you would ask or think – not necessarily the way that we would want, but the way that is best for us.
I am so thankful that both of you have a personal relationship with our Lord because He is with you through all the trials and tribulations that you are in the midst of – He promises to never leave us or forsake us and to walk through the valley of the shadow of death with us.
While I recognize that it is easier to handle trials that only involve us and that it is much more difficult to handle trials that involve our children, may your bottom line be to recognize that God is sovereign and we are not.
I pray that God will give you His perfect peace as you yield yourselves to Him and trust Him to direct your every step.
May God bless you and keep you and your precious, Laelia
SATURDAY, OCTOBER 27, 2007 08:00 PM, CDT
Dear Charlie & Al,
A quick note to remind you that we love you and are praying for your family! God is good all the time.
Please pray for our Sarah, a 16 year old girl hit the gas instead of the break when Sarah was over half way through a 4 way stop. The girl’s Ford Pickup rammed Sarah’s Dodge Neon on the passanger side (thankful Sar was alone), we find out this week if Sarah’s car is repairable or totaled. Sar is sore and hurting alot… but we know God uses all things for His glory and purpose. Our children belong to God and as much as we love them, He loves them infinitely more… He sent His ONLY Son because of His LOVE! (John 3:16).
God bless you and know that we are praying for you,
Glen & Linda Cain xoxo Ps 19:14 Ps 139:1-18
Glen and Linda Cain
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FRIDAY, OCTOBER 26, 2007 07:58 PM, CDT
Hey you two,
I’m still praying for you every day and so are so many people back here. We all love you and miss you. I know that things keep getting harder for you and that as each day goes on it’s different and probably confusing but God will always guide you. Whatever happens you can know it’s His will. This passage out of Ephesians reminded me of what I pray for you and your little family all the time,
Ephesians 3:16-19
16I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being, 17so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, 18may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ, 19and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God.
And with that said, I’ll finish up by reminding you, Alexis, that you are the mother of one of God’s children. One of His image bearers. Remember that what you’ve done by bringing Laelia into the world is to show the world one more spark of how glorious God is. He gave her to you and He is in control of her life and your life and you can rely on Him to never let you go.
All my love,
Hannah
Hannah Anthes
Placerville, CA
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FRIDAY, OCTOBER 26, 2007 04:49 PM, CDT
I’m so thankful you are finding those people who will properly care for Laelia and are sensitive to your needs as well.
Sheri Record
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FRIDAY, OCTOBER 26, 2007 10:40 AM, CDT
Wow!!! So much has been going on!
First, I love Tammy’s letter to Laelia. God created her so she is precious forever and always! It’s just great to be reminded of that!
Im really glad Laelia has casts on her legs and feet. I know it is akward & uncomfortable but just keep your eyes focused on the goal and the long term benefits!
Breastfeeding will get easier. It will be just like it was at first akward and different to hold her because of how her legs were bent into her body. So once you figure out a position that is comfortable for both you and Laelia, breastfeeding then will just have its normal complications
I am so relieved and happy now that you are actually getting answers from PT OT! Having things explained to you, the whys the consequences of not doing it, the benefits of doing it will help out a lot when you have to do the exercises at home.
Laelia will be in discomfort but she will get use to it. Just remember that even though she is a baby she is not glass. She is a strong woman, just like her mommy!!!
I’m excited for the 3 of you and all the new exciting and challenging changes that are going on!!! It will all be worth it when she is older and can walk and dance with other crushes!!! ; )
I’m sure she didn’t mind when the casts were put on since she had a cute handsome doctor singing to her ; ) what more can a girl ask for…..
I love all 3of you!
rachel morales
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FRIDAY, OCTOBER 26, 2007 10:33 AM, CDT
Dear Lealia, Please know that Aunt Charlotte is praying for you! I’m sorry you have to have casts on your legs; I am praying that you will get use to them as much as possible, and that they will help you to be able to walk some day. I’m also praying for your Mom and Dad – you have great parents who care very much for you. And you have an aunt that loves you – Cousin Nathan tells me that you are beautiful, and he got to hold you. I am jealous!! Please know that God loves you, and so do I. Aunt Charlotte
THURSDAY, OCTOBER 25, 2007 11:32 PM, CDT
Charles, Alexis and Laelia: The casts are beautiful! I know, they are ackward for all of you, but you will learn soon enough to work with them, and I’m confident they will be a good thing, especially since you have them at such a young age! My Bible study group and my family are all praying for you–answers to prayers are evident in your journal entries–two parents who are finding strength, looking to the future, and so loving for their baby. A baby who brings so much joy and so much heartache that it opens you up for deeper, richer personal searching and support for one another.
Laelia, you are a beautiful little girl, looking up at your daddy with such big wide-open eyes at such a young, tender age!
My prayers and best wishes continue for all of you.
Joy Wegner
San Diego, CA
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THURSDAY, OCTOBER 25, 2007 07:10 PM, CDT
Still praying for you guys. Hang in there, you’ve got quite the adventure going on. Look forward to seeing you next week.
- Aduma –
Denver, CO
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THURSDAY, OCTOBER 25, 2007 05:55 PM, CDT
How adorable! I just dropped in to show a friend the site so she could explain to her church and ask them to pray for Laelia, too, when I noticed the new pic. What a difference! Maybe this is an indicator of many good things to come that LB so richly deserves. I’m glad to hear that y’all are currently relatively safe from the fires but will continue to pray that you remain so and that the fires be put out as soon as possible.
Many hugs. lr
Linda Record
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WEDNESDAY, OCTOBER 24, 2007 05:40 PM, CDT
Im glad Laelia gets her casts on soon. I hope the appointment doesn’t get rescheduled due to the fires! It’s normal for babies day/night clocks to be backwards. It happens all the time. As she gets older and will start pre-school that will change. Hopefully it wont take that long!
Sorry I didnt stop by this weekend. I moved to Mission Valley. I can’t wait to have you 3 over!!!
Did Laelia wear her new outfit to church on Sunday???
The growth spurt should be over soon so you can get more rest between feedings!
rachel morales
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WEDNESDAY, OCTOBER 24, 2007 11:40 AM, CDT
Hi Lexi,
What a beautiful little girl! I play Bunco with your cousin Keri Taylor. She told us of your situation and she told us what a great attitude you have and it certainly shows in your journal. I was just curious if you have gone through California Children’s Services in your area? This might be a covered condition and could pick up what your insurance doesn’t cover. Let me know (I work for the program in our county) I could get you the info for your county if you don’t already have it. God bless you and your family! Take care!
Amador County, California
Gina Cook
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TUESDAY, OCTOBER 23, 2007 08:47 PM, CDT
Hey guys. Just checking in. I continue (with so many others) to pray for wisdom for you both as Laelia’s parents. You have a lot of decisions to make and it can’t be easy. Look to Lord for those answers and be at peace knowing that God is still there and still in charge and Laelia is one of His own. Here is a poem/song that came from ‘The Power of a Praying Parent’ book that I thought we could use to pray for our new little neice.
“So much to say and just a lifetime left to say it. How quickly time passes. If I had my way, I’d keep you safe within my arms while the storm of life crashes. I won’t always be with you, my child, but words I can give. When the winds of hope are dying down, these words will live. Above all else, know God’s the One who’ll never leave you. Look to Him above all else. He is love you can depend upon, a heart set to care. If in the darkest night you should be lost, He will be there. He’s the Everlasting Father, In His hands you’ll never fall. He’s the One who holds it all, above all else. He’s the Author of your laughter, He’s the Keeper of your tears, He’s the One who you must fear abvoe all else. He’s the Giver of the kingdom bought for you right from the start, and He’ll ask you for your heart above all else. So much to say and not enough time left to say it. Just love the Lord above all else!”
Did you get the box of clothes? If they don’t fit, let me know….I forgot to send you the gift receipt but I can still do that if you need it. As Aunt Charlotte said, we are willing and ready to do whatever it is you need. Don’t be hesitant to ask.
All my love,
Amy Kennedy
Escalon, CA
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MONDAY, OCTOBER 22, 2007 09:56 PM, CDT
loves:
i know we haven’t talked in a long time, and i don’t even really remember how i came across this website… myspace probably. but i wanted you to know that i’ve found myself entranced by your honesty and thoughts and charley’s faithful fatherhood. very few of us can begin to imagine what you’re feeling, but you have a Lord that loves you, and by the guestbook turnout, many other people’s love as well. you are doing a GREAT job. you’re handeling things better then a lot of new parents that i’ve seen…take pride in that, and have faith that God loves your daughter more then you could ever imagine loving her. He did not create her to watch her fail. and she’s beautiful…and with parents like you she’ll have the confidence to believe that about herself as well.
MONDAY, OCTOBER 22, 2007 04:26 PM, CDT
Lexi, Charley and Laelia,
You don’t know me, but I know you through your wonderful Aunt Linda. I work with your aunt. I have read your journal and guestbook from day 1. My heart is filled with emotion with every entry that I read. The secretaries here at our office have a weekly prayer group, and Laelia and both of you are our first prayer. I have also sent out to my prayer warriors friends at church and bible study, and they are praying for you also.
I can’t even imagine what you are going thru. My oldest son became temporarily paralysised at the age of 2, and we had him in the hospital for a couple of weeks and I know as a parent you really have to stay on top of everything. No one is watching out for your baby, except you. To the insurance company, you are just a number.
My youngest son (who’s 23) has been sick for the last year and a half, and it’s only because him and I really stayed on top of things and insisted on tests and lab work, that we have gotten things taken care of. Again, he is just a number to Kaiser.
I am so uplifted to read you and Charley’s entries. You are both so open and honest, and I know that God gave you this baby girl because of your love. I can tell from the entries and from talking to your Aunt Linda, that you are two wonderful young people and you care so much for each other and for the Lord.
If you need anything, please let your Aunt Linda what our prayer group can do for you. I know we are way up here in Stockton, but we can reach out and help, even in a small way. We will continue to pray for all of you, as you go thru the next days, weeks and months. I am sure this is going to be emotional this week as you finally get her in to the specialists and therapists. Know that we are here and your wonderful family and friends are all there for you.
MONDAY, OCTOBER 22, 2007 11:45 AM, CDT
Alexis,
Breastfeeding is exhausting even under the best circumstances. Hang in there but don’t beat yourself up if you decide not to do it as long as you thought you would.
Sheri Record
Spanish Fork, UT
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SUNDAY, OCTOBER 21, 2007 05:22 PM, CDT
Hi Charley, Alexis and Laelia:
I have been reading your journal, and I’ve got to say, I’m hooked. Your honesty, insight and humor make compelling reading, as well as speaking to my heart. I agree with the others that say Laelia is a fortunate little girl to be entrusted to the care of such loving, caring parents. Yes, they are not perfect, and do seem to have some of those normal doubts and frailties so common to us mortals that don’t live on Mount Olympus, which includes just about all of us. ( Fictional characters like Highlights for Children’s ‘Gallant’ or Little Lord Fauntleroy do not count here)
What is also apparent is your love for each other. Armed with this and your faith in God, you will ‘keep on keeping on’ to the best of your ability just like the rest of us. After all, lets face it, what other choice do we have? And those of us who love you will be following your journey and living it right along with you.
SUNDAY, OCTOBER 21, 2007 12:10 AM, CDT
Dear Charles, Alexis and Laelia Sky- I feel so priveldged that I was able to come down and visit Laelia during her first hours of life. It is wonderful to see the beautiful little girl that God has blessed you with. She is an amazing little fighter and I know God has great things in store for her life. He has hand picked you as her parents because He knew you could handle this challenge and that you were the best choice for her. I appreciate your honesty in sharing the journal; please know that Rodney and I are praying for you and we hope to see you soon! Love to you all.
SATURDAY, OCTOBER 20, 2007 12:27 PM, CDT
Dear Lexi & Charlie – I’m just figuring how to put a message on here. As you know, I’m computer illiterate!! Please know that there are 18 ladies in my Ladies’ Bible Study that are praying for you three!! And that Ben and I care very much. Charlie – you make me laugh! I’m so glad you are part of our family, and there for Lexi. Lexi, I’m praying that God will make you tough like your Mom was!! You will both be great advocates for Laelia!! Please know I’m only an airplane ride away – we will help you in anyway we can, but you have to let us know!! Give a holler!! Don’t be afraid to ask!!! Aunt Charlotte
FRIDAY, OCTOBER 19, 2007 05:53 PM, CDT
you wrote: ‘I want her to feel attractive.’ in your blog.
I think you have a beautiful baby (truly, she is a pretty little girl and not all are…) and I don’t think you’ll have to worry about her feeling attractive.
There are a lot of fears and worries that go along with being a new parent (even a second and third time parent! lol)…and even when we know better, we still worry
Even parents of the most worry-free text-book easy babies still worry. But you and your husband seem to be supporting eachother really well. Your baby is very lucky to have such wonderful parents!
Sydney Guzman-Wynants
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FRIDAY, OCTOBER 19, 2007 05:16 PM, CDT
I just want you to know how much I love you and pray for you and your family.
Jason Record
Spanish Fork, UT
United States
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FRIDAY, OCTOBER 19, 2007 04:32 PM, CDT
Lexi… 35 pounds in just two weeks!!! I would be nothing but jealous if I didn’t know that the dark valley through which you are now passing was much of the reason. Still…
I love that Charley is working so hard at trying to guide you back toward that “normal” life you want so badly to have back. He sounds like such a wonderful husband and father. I’m sure that his stoicism will help to keep you from shattering into a million little shards. Right now you two are the only ones who can really understand what Laelia’s birth means in your lives, and it’s not even a little bit surprising that your feelings and hopes and fears careen from one end of the spectrum to the other. You’re doing just fine.
Try not to beat yourself up just because you can actually see how difficult the coming years will be. You’re working through what it will take to be the very best mom that you can be for LB. Look how many adaptations you’ve already made, and it’s hardly been any time at all since all of this has come knocking at your door. I can’t even conceive of how much effort it would take to just get out of bed once in awhile right now. That you’re able to truly think — or even have nightmares — about how you can best parent LB while you’re still adjusting is just the most amazing thing.
Like so many others, though, I wish that I could shoulder just a little bit of your burden. I have no such strength, but the Lord does.
Love, “the other Auntie Linda”
Linda Record
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FRIDAY, OCTOBER 19, 2007 04:23 PM, CDT
I enjoy reading your words. I would love to see more pictures of you and the baby. I wish I lived in your area so I could offer help. It sounds like you have a wonderful husband. Be sure you are getting the rest you need. The baby needs you to be strong. Thanks for keeping us all informed. Annita
Annita Sibert
Aptos, CA
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FRIDAY, OCTOBER 19, 2007 12:17 PM, CDT
Hi. It’s me again. Just wanted to share with you the words to one of our favorite songs. Jason often would sing this to our two youngest boys when they had a hard time falling asleep so my ten year old and my four year old both have it memorized. Wish I could send the music with it. Words mean so much more when they are put to music.
‘Where can I turn for peace? Where is my solace
When other sources cease to make me whole?
When with a wounded heart, anger or malice,
I draw myself apart, Searching my soul?’
Where, when my aching grows, Where when I languish,
Where, in my need to know, Where can I run?
Where is the quiet hand to calm my anguish?
Who, who can understand? He only one.
He answers privately, Reaches my reaching
In my Gethsemane, Savior and Friend.
Gentle the peace He finds for my beseeching.
Constant he is and kind, love without end.’
When my four year old, Eric, was two we were at the grocery store one day. As he sat in the cart he started to sing out these words with all his heart and in full two year old volume. The lady standing next to me in the isle looked over at him with a smile on her face and moist eyes and said ‘that’s a great song!’
How grateful I am for men, like my husband and yours, who teach their children to know God.
Sheri Record
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FRIDAY, OCTOBER 19, 2007 12:09 PM, CDT
Hi, I’m Suzanne, Keri’s mom (Oct. 17 entry) who is a friend of Rachel. I volunteer at Children’s San Diego in the NICU. It is both a complete joy to be there but also sad to be with the little sweeties that go through so much in the first few weeks and months of their lives. I’m rooting for all three of you and know you will be able to somehow cope as Laelia does more than squeeze your fingers, smiles right into your eyes and has her first laugh. Unfortunately the paperwork, secretarial, red-tape end of Children’s and any hospital for that matter, is the worst, but when you wade past that and some of the cooler ‘bedside manners’ and get to the real behind the scenes doctors, nurses, therapists and hundreds of loving volunteers there, things will seem a whole lot better. Keep fighting the system for Laelia, never give up because there are people out there who will help her grow strong and will give her their all–you just have to hunt them down!
You are in our prayers, and give beautiful little Laelia a snuggle & kiss in the neck for me–my favorite baby spot! Love, Suzanne
FRIDAY, OCTOBER 19, 2007 11:42 AM, CDT
My Dear Lexi,
I wish you were 5 and I could just pick you up and kiss away your hurt. I just cried through your journal entry. There are no words that seem right, but I do want to assure you that your feelings are okay and I’m so glad you are able to express them. I just wish you hadn’t inherited your mom’s ability to write so well so that I wouldn’t hurt so much when I read them! Between you and me, I don’t think Charlie is past any of these feelings – he is just walking through this time with you being the best husband and father he can be and he’s doing a fabulous job! And I imagine Laelia will be looking for someone just like him when she grows up. I like this little poem, and in fact when I was just barely on the other side of some crummy stuff in my life, Charlotte sent this to me, and I now pass it on to you.
I was regretting the past and fearing the future. Suddenly my Lord was speaking: “My Name is I AM.” He paused. I waited. He continued, “When you live in the past with its mistakes and regrets, it is hard. My name is not I WAS. When you live in the future, with its problems and fears, it is hard. My Name is not I WILL BE. When you live in this moment, it is not hard. I am here. My names is I AM.”
I know this is the hardest thing you’ve ever been asked to do and certainly harder than anything I’ve ever been asked to do. I pray for you daily – many times a day. And so many of my friends are praying for you. Your Lord is there beside you. Let Him guide you, comfort you, hold you and carry you – one day at a time. He is the Good Shepherd and also the Gentle Shepherd.
And when your family is asleep on the couch and you want to talk to someone, please call me – any time of the day or night.
I love you so very much. Auntie Linda
Linda Wheeler
Ripon, CA
United States
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FRIDAY, OCTOBER 19, 2007 10:56 AM, CDT
Dear Alexis,
I just read your words from this morning. My heart goes out to you. I’ve experienced the same kind of emotions in the past ( they still come back from time to time ) so I know what I’m talking about when I say don’t live in the future get away from it as soon as you can and come back to the present and stay there as much as possible.
Stay close to God and he will guide you and strengthen your heart so that you and your precious daughter will be able to endure more than you ever thought either of you could endure.
There is a purpose in even the worst suffering that comes about in this world. Remember that Jesus Christ suffered all and when he was in the garden he not only took on the sins of the world but he felt our pains as well. God is the only one who knows perfectly what you are going through. I trust he will guide you through the times when you feel down and want to panic about your child’s future. It will take time; don’t expect to get strong all at once. It’s o.k. to bounce back and forth as long as you start to learn to not spend as much time in worry mode. You being in worry mode doesn’t help any of you to deal with things so do lots of praying and take time every day to listen to uplifting music. I’ve found that music that expresses our Savior’s love for us is the most comforting to me.
Ten years down the road my own child’s life is getting better in ways I know have come about by us trusting God and teaching him how much he is loved by us and especially how much God loves him.
Ok, let me get out of the way, that I feel like a Heel for not getting on here sooner. I was visiting my parents in PA for my b-day (Oct. 2)… blah, blah, blah… Although had I gotten here earlier, I don’t know that I would’ve been in very good shape, waiting to find out what all was going on… at least this way I can be glad that you are starting to return to your previous emotional states, and can pray for continued encouragement. The Oct. 17th’s entry from Charley was the first out of all the rest that had any semblance of that ol’ humor I’m used to reading. (yeah, I stopped work @~4:27 just to read ‘em all)
Alexis… I’ve probably been sitting here for 20 min. trying to figure out how to tell you that I will never be able to fathom what you (especially) are going through. …So I guess that’s it then. I don’t have any words, y’know. But ‘Lisa from church’ on SUNDAY, OCTOBER 14, 2007 08:54 PM, CDT had some Great stuff, I thought. You can go back and re-read hers just as often as you like, in place of what was not said here. I won’t feel a bit bad.
Laelia… if you read this when you’re older, you’re probably reading it on your iPhone corneal implant… Dearheart, know that your parents have loved you from the very start, and have probably hurt just as much emotionally over the years, as you have physically. I hope and pray that you take the time, and opportunities to bless them, and show the rest of the world things that no one could imagine possible… -Amen.
.:still hugging:.
Joel Kreider
Longview, TX
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THURSDAY, OCTOBER 18, 2007 10:23 AM, CDT
Hugs to all! Just dropped by today to get a much needed update on Laelia and found myself laughing out loud while weeping.
Charley and Lexi, reading your messages is so inspiring. It is so evident that God’s immense love (as well as the goodness of all of your terrific friends and family) is helping to support you through these difficult days, as it will throughout your lives.
If Laelia is blessed to adopt even part of your quirky approach to life, she will be a star wherever life takes her.
Keep up the good work, and I’ll continue to pray for the comfort and healing of your hearts and spirits, even if it may not be possible to convince God to fully heal Laelia’s body.
Love from the other “Auntie Linda”.
Linda Record
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WEDNESDAY, OCTOBER 17, 2007 11:29 PM, CDT
Is it just me or are the kids on the amcsupport.org link some of the happiest kids you have ever seen or what? I just know Laelia will have a wonderful smile and a sense of humor. Charles, you are soo funny. Thank you for helping us laugh too. I know that is something both of your sweet girls need and love. Joy!
Brenda Powell
National City, CA
United States
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WEDNESDAY, OCTOBER 17, 2007 05:51 PM, CDT
Hi you three,
Last night when I was praying for you God gave me a verse that I think He wants you to check out, Plil. 4:19.
WEDNESDAY, OCTOBER 17, 2007 10:56 AM, CDT
I’m a friend of Rachel Morales, and I have three daughters (10, 11, 16) I’m very willing to help out with anything you need. You can get my phone number from Rachel or email me. My mom volunteers at Childrens hospital and is also available if needed. It’s tough having babies, adjusting to their needs and trying to find time for yourself, or friends. Please don’t hesitate to call. I’m also raising some donations from friends, family, and churches to help out with the list of needs you’ve asked for. I’m so glad you are feeling better…and I’m sure glad you are reading!!!
Love,
Keri
Keri Hayes
El Cajon, CA
United States
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WEDNESDAY, OCTOBER 17, 2007 09:42 AM, CDT
Alexis,
I am so glad to hear you are starting to feel better! I’m also glad that you have an entire support system there for you! I have tons I’d like to talk to you about…..See you soon!
rachel morales
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WEDNESDAY, OCTOBER 17, 2007 09:38 AM, CDT
I am so delighted to hear Laelia talk about how wonderful her parents are because it is so true! I think you are the luckiest baby alive because of your great parents. I will make sure to give your mom some more romance books to read to you because I’ve bought at least 5 new ones.
I Love You!
rachel morales
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TUESDAY, OCTOBER 16, 2007 04:37 PM, CDT
Hello Charles and Alexis and Laelia,
Congratulations on the birth of a beautiful baby girl! I was so sorry to hear about her arthrogryposis and the struggles you have been going through, but it sounds like Laelia could not have been born to any better parents. I have to say that I think you are two of the bravest people I’ve ever come across. I will keep you all in my prayers.
–Kristina Crawley
(TLN Sports)
Kristina Crawley
Carlsbad, CA
United States
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TUESDAY, OCTOBER 16, 2007 03:45 PM, CDT
Congratulations on the birth of your daughter, Laelia. What can I say? The Universe has a plan for all of us, even if its a brief moment in time. Laelia is a star that will shine brighter than all of ours put together. She has a purpose for being here and I can bet my life why. She is beautiful and along with time and love, her beauty will shine within and without. You are truly blessed because you and Charlie will be the ones to help her star to shine the brightest. Do not dispair, my friend. Love will guide you and show you the way. I truly believe that and I hope you do too.
MONDAY, OCTOBER 15, 2007 11:00 PM, CDT
Shroud, Alexis, and Laelia,
My thoughts and prayers are with you guys! I wish I could give you a huge hug right now… I have no other words. Your daughter is beautiful, and I really hope that I get to meet her personally someday sooner than later!
God’s peace to you…
Becky Casselberry
Denver, CO
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MONDAY, OCTOBER 15, 2007 10:31 PM, CDT
Hi Al and Charley,
Little Laelie Sky is beautiful and I love her name. Does it have a special meaning? Every Tuesday morning six of us ladies meet at the church to pray for needs of the church family. You may be living down south, but you will always be considered part of our family and we will be praying for each of you. I will check this page often so we can pray with wisdom of current needs and situations. The notes that you have written give great insight into your hearts. The only words of wisdom that I have, you already know. But it is comforting to know that God has a special purpose and that He never makes a mistake. He will carry both of you and little Laelie.
We will pray! Love and hugs, Jim and Shirley
Shirley Hale
El Dorado Hills, CA
United States
MONDAY, OCTOBER 15, 2007 01:26 PM, CDT
Hello Alexis and Charley, Dawn here from TLN.. I hope you are sleeping well. Everytime I call you getting a few zzzzss. I will be calling you this weekend to see how things are going and to stop by. Don’t forget my invitation still stands any time you 2 need a break call me, I’m yours. God is good all the time. And is always watching over you.
Dawn Contreras
San Diego, CA
United States
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MONDAY, OCTOBER 15, 2007 01:11 PM, CDT
You all don’t know me but I heard about this through Emily Conley/Thompson. While this is one of those situations where in a human perspective it seems to make no sense, it is a comfort to know that nothing takes God by surprise. My youngest sister Kara was also born with Arthrogryposis. At the time of her birth my family asked many of the same questions you are probably asking now. I was only 6 yrs old at the time but I remember the feeling of helplessness watching my little sister have to go through therapy at such a young age. Though it was a painful process to watch, it didn’t take long for my family to realize what a wonderful gift the Lord had given us. I know for a fact that my family is closer to each other and to the Lord because of Kara. As she grew older there was still pain, still frustration, but it was quickly overshadowed by the joy the Lord provided. Today Kara is one of my best friends. She is 19 yrs old and studying pre-med at a Christian college. She still has many physical limitations but she doesn’t let that stop her from using her gifts for the Lord. God has been in the business of planning lives for long time. I hope this note is an encouragement to you.
Kevin Schmidt
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MONDAY, OCTOBER 15, 2007 11:49 AM, CDT
I am praying every day for God’s little miracles to happen. Laelia is blessed to have parents like you 2.
Dawn Contreras
Dawn Contreras
San Diego, CA
United States
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MONDAY, OCTOBER 15, 2007 11:38 AM, CDT
Good morning-
You all don’t know me, I was introduced to your family via your web-site by my dearest and best friend, Amy Kennedy. For several days, I have made every attempt, to send you a message, but I just didn’t know what to say, and still don’t, really. Viewing your daughter’s photos brings a smile to my day, you see, it’s easy for me to see beyond it all and just enjoy the beauty of your little angel. Upon being notified of her birth, I felt an overwhelming feeling of sharing it with all my family and friends and to my surprise, they ALL responded with well wishes and prayers. Some of them got their entire congregations to pray for Laelia and her parents. The power of the internet is phenomenal! Laelia, will be your hero and bring you both and abundance of joy. As tears run down my face, I’m reminded how fortunate you both are to be able to experience the love of a daughter. Daddy, you will be an awesome role model, I enjoy reading your positive messages. Mommy, I don’t even know you, and yet I’m so proud to know of you. For breast feeding assistance of any kind, contact the http://www.pumpstation.com , although, located in Santa Monica, I recommend them highly. They have been in business for over 20 years and they can assist with making breastfeeding a beautiful, peaceful experience. My prayers are with you all.
SUNDAY, OCTOBER 14, 2007 09:25 PM, CDT
Al, Charlie, & Laelia – you are all on my heart and in my prayers. Laelia, you have some very special parents. And God has a pretty amazing purpose for your precious little life. Know you’re all in His everlasting arms.
SUNDAY, OCTOBER 14, 2007 08:54 PM, CDT
Hi, it’s Lisa from church. (I’m the one who told you all about my husband Jim’s cat allergies the first time we met …smile)
Congratulations on the birth of your beautiful daughter! Laelia looks just like her mommy! I can’t wait to hold her! I have been praying for all 3 of you ever since the morning of the C-section. I was heartbroken when I first heard of her condition. I asked God “why?? They are a beautiful young couple…this is their first daughter….why do they have to go through this? Why can’t their baby be normal and healthy why does she have to be in pain? This isn’t fair….” Then I remembered that nothing that happens in our life is a surprise to God…it may be to us but it isn’t to God. I took comfort in that.
Then I began to worry about Alexis. I remember how difficult it is to adjust to a newborn. (Remember I’ve had 4 babies in less than 5 years). My first daughter was allergic to cows milk and we didn’t know it for 2 months. I was nursing her but she was getting the cows milk I was eating through my breast milk and it was making her intestines bleed. She would scream in pain for hours and nothing we would do would console her. I would cry because she was crying and I couldn’t console her. Then I was having major problems with breastfeeding. She was latching on wrong and I began to fear trying to nurse her…so it would take me up to 40 minutes to manage to get her on and nursing. She would be hungry and crying and I’d be crying because I couldn’t get her latched on to nurse. I would be in so much pain the whole time….it was awful. I would panic every time she cried because I didn’t know what to do or what was wrong with her and nursing was so difficult. Then I was getting no sleep. I would get her to sleep and lay her down then I’d fall asleep and 15 minutes later she would be screaming and I’d have to get up with her again. I dreaded trying to sleep because I was worried about her and wanted to stay awake and watch her sleep, and then I became resentful that I couldn’t sleep and I would struggle between those varying emotions. I just want Alexis to know that every thing she is feeling is normal. I can completely relate to all of the emotions you have written about. Even without Laelia’s condition it is difficult to have a new baby and heal and adjust to taking care of a baby and learning how to be a mom.
I have been praying that God would keep you and Charley close to each other and to him. I pray that you will lean on him, letting God be your strong tower and your strength. I pray that Laelia will be healed in a miraculous way. I pray that Alexis will heal from her surgery and get some rest. I pray that God will send angels to comfort and guide you in your new journey as parents of such a special little girl. I pray that God will use you to encourage other families going through similar situations. I pray that God will give you peace and show you all of the good that will come from this (All things work together for the good of those who have been called according to his purpose). I pray that God will show me what I can do to help. I pray that little Laelia will accept Jesus and share his love with everyone she meets. I pray that God will use her to do mighty things for his Kingdom.
I am so thankful that you have created this website to share with all of us. It has been a blessing to me. It brings me much peace to be able to see Laelia’s sweet pictures and to read your blogs and to understand her condition by reading those links. I already feel so much love towards Laelia and I haven’t even met her yet.
Alexis I can already tell you are a wonderful mom. You have the most blessed daughter in the world to have you as her mom. It is amazing how much love you feel toward her and how in tune with her needs you are.
Charley, you are an amazing husband and father. You are a Godly man and your sweet little Laelia is so blessed to have you for her daddy. Stay close to God and take good care of Alexis and Laelia!
I want you to know that I am always here to pray for you. If you have any prayer requests just e-mail them to me anytime. If you need advise please e-mail or call I do have some experience with babies (remember 4 babies in less than 5 years) J I’ll keep praying for all 3 of you daily!
SUNDAY, OCTOBER 14, 2007 05:26 PM, CDT
Dear Lexi and Charlie,
I’m so touched as I read your words and feel your faith in spite of your fears. I understand your feelings Lexi. When you’re a mother of a child who happens to have a disability (whether it’s physical, mental, or emotional) you tend to experience a roller coaster of emotions over the years. You wonder about what kind of pain (physical or emotional) they will have to endure through their life and you wonder if your own heart will be strong enough to endure watching it. In your mind you may know it was not your fault but you can’t help but feel guilt and wonder if somehow you were better in some way this child would somehow have it better. There are no answers but to trust in our Savior Jesus Christ and feel the peace that trust has to offer.
I love what you have written Charley. I don’t know you personally but from your words I can tell that you will be a great strength to your wife and aid in her healing process as my own dear husband (Lexi’s cousin Jason) has done for me.
This is a tough journey you are on. My heart and prayers are with you. And thank you for sharing your life and example with us.
Sheri Record
Spanish Fork, UT
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SUNDAY, OCTOBER 14, 2007 01:42 PM, CDT
Dear Alexis, Charley and Laelia,
Your little girl is so precious and adorable! I would love to hug and hold her. I know you and Charley will be great parents to her. You both are very special people and she’s very lucky to have you both.
Also wanted to let you know that I would be more than happy to come and help out with the housecleaning and anything you need me to assist you with. I can bring dinner for you guys as well. Alexis, remember you need to eat, drink and take your vitamins!!! It’s very important!! I can also sit with Laelia so you can nap or do whatever you need to do. I’m available anytime after work and on the weekends. Just let me know when. ok? Don’t be shy to ask.
Love to you all, Carolyn
Carolyn Hemmerly
San Diego, CA
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SUNDAY, OCTOBER 14, 2007 04:07 AM, CDT
dear laelia, al and charlie,
wow, i wish so much i could be in the states right now!! it’s moments like these where distance just has to be so confounded inconvenient! but love transcends distance, and so does prayer, so though i can’t be with you in body, know that my love and prayers are right there. and they will continue to be right there. i love you three so much, even the little one i haven’t met, and–Lord willing–will be seeing you next summer. and although from a distance, if there is anything i can do to help, please let me know. i love you all dearly, and send this with a big hug! your friend and sis, erin
erin plaxton
Palau
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SUNDAY, OCTOBER 14, 2007 12:47 AM, CDT
Oh, oh, I wanna help! I can’t wait till I get home so I can do more for you guys than just pray. (not that that’s not important!) But I’d love to stay with you while Charley runs errands, Alexis. Or play with Laelia for a while to give you a break, I might even have a skirt or two you could have… and if you’ll send me your email address I’ll remind you to take your vitamins etc. I love you guys! Ten days and I’ll be back in San Diego and looking forward to visiting and giving each of you a big hug!
SATURDAY, OCTOBER 13, 2007 07:33 PM, CDT
Precious little Laelia, what a beautiful name you have. I believe God has chose the most perfect parents for you. They love you so very much and I am amazed at how we are all falling in love with you to sweet one. You are an incredible little girl. I looked up your name and was so blown away that Laelia is the name of one of the most beautiful orchids in the world and actually the name Laelia come from the root word “curly” for the orchids curly edges. I believe God gave your parents your name because He knew of your “curly” limbs before time began. Your beautiful story written in this blog is opening up our hearts and eyes to His tremeoundous love. I cannot wait to hold you and smell your sweet little baby head.
Brenda Powell
National City, CA
United States
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SATURDAY, OCTOBER 13, 2007 02:30 PM, CDT
Dear Charlie & Al,
We are praying that God will continue to reveal Himself to you as you “do not let kindness and truth leave you; bind them around your neck, wirte them on the tablet of your heart, so you will find favor and good repute in the sight of God and man. Trust in the Lord with all your heart and do not lean on your own understanding, in all your ways acknowledge Him, and He will make your paths straight. Do not be wise in your own eyes, fear the Lord and turn away form evil. It will be healing to your body and refreshment to your bones” (Proverbs 3:3-8) NASV.
We love you three and are praying for you! Call if you need to talk. xoxo Ps 139
Glen and Linda Cain
Rescue, CA
United States
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SATURDAY, OCTOBER 13, 2007 12:15 PM, CDT
Hello Alexis and Charles,
It’s Beth Francis. We had been communicating a bit before your delivery, but I confess I do not really know you. Actually, 2 weeks ago, I did not even know your names. Now, I think of you every hour and pray for your family so much. Alexis, I just wanted to tell you to try to be kind to yourself. Your body has just spent 9 months ramping up for the growth and delivery of this baby. You had a cesarean section too. You are nursing your child. You are going through so much in the healing of your body. Your hormones are Whack! I remember after the birth of my first child, I was so disappointed in how hard EVERYTHING was and I did not have any additional problems to deal with. The more I think of you and read your blog, I think you are both amazing, honest and funny people. And while it seems that you have been given MUCH to bear, you are actually “chosen among men” to have Laelia entrusted to your care and love. I wholeheartedly believe that you will see miracles and lives changes as a result of your daughter. I look forward to seeing you soon.
Beth Francis
San Diego, CA
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FRIDAY, OCTOBER 12, 2007 06:42 PM, CDT
All my love to you both. She’s beautiful. Lisa,I and all of us are here for you and yours. If you need anything call 530-826-3014
FRIDAY, OCTOBER 12, 2007 06:37 PM, CDT
Oh how I wish I could just hold the three of you. God is big enough for all of your questions. Pour your heart out to Him. He promises to be near to the brokenhearted and a very prsent help in times of trouble. I wish I could fast forward your life and allow you to see all the “good” He has planned for you and Laelia. I believe that with all my heart. I love you soooooo much. Auntie Linda
Linda Wheeler
Ripon, CA
United States
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FRIDAY, OCTOBER 12, 2007 05:54 PM, CDT
Dear Ones: This is your computer challenged auntie who finally got lucky and clicked the right buttons to be able to write you and tell you how amazingly overwhelmed and inadequate I feel to be able to express to you my joy at the birth of your daughter and my sadness at what you are all going through. Two things came to mind and one was a book that I read called Maura’s Angel where a guardian angel comes to help a girl who is going through a lot and has to take care of her older mentally challenged sister. She makes a comment to her angel about her sister not being too bright and the angel looks at her without comprehension and says “What do you mean…her soul is VERY bright.” It makes me think of the fact that God sees us on the inside as we really are, whereas man sees only on the outside. And in God’s eyes your little girl is PERFECTION! And the other thing I thought of is that God promises not to give us more that we are able to bear (I have reminded Him of that many times!). I am in awe to imagine how much God must think of you two to entrust His Precious Little Girl to your care. It is also awesome to see how many people love you all over the world. Thank you for trusting us with your hearts’ expressions. We are here for you and will “pray without ceasing”. We love you so much! Auntie Francie and Uncle Neil
Francie Johnson
San Luis Obispo, CA
United States
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FRIDAY, OCTOBER 12, 2007 05:13 PM, CDT
And while we are praying for Laelia — let’s not forget to pray that she will have a tender heart towards the Lord…that she will learn at an early age what it means to ask Christ to forgive her sin…and that she will grow to be a godly young woman who would make any godly young man proud to have her for his wife.
Charilyn Damigo
San Jose, CA
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FRIDAY, OCTOBER 12, 2007 01:44 PM, CDT
Dear Lexi and Charley,
There is little we can say at this time that would alleviate your grief. Please know that our thoughts and prayers are with you. As always, please let us know if we can be of help.
Norm and Evelyn Greenfield
1 Cor 10:13 (I know that you have already heard and thought this, but its good to be reminded)
Norm Greenfield
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FRIDAY, OCTOBER 12, 2007 01:20 PM, CDT
hi. i just wanted to pass along some of the things my friends have been saying. firstly, many, many of them are praying for you laelia, for you alexis and charley, and for me (my roommate lindsay specifically emailed to let me know she is praying). next, my friend becky (you met her at our core group meeting) told me that laelia is absolutely beautiful before i even got to see the pictures. also, friend stephanie (you met her too) said that she is sure laelia is your child, charley and alexis, because you will be the perfect parents for her and other people would not be able to take care of a child with her hurts. i don’t know if it makes sense the way i’ve said it really, but it is a high compliment to your quality as people and as new parents. and a certainty that you will make it through something in which others would have failed. (boy is my english crappy at this moment.) and may i just reiterate: many many are praying. friends from camp, friends at school, praying praying praying. finally, know if it will help that i am with you in grief, perhaps more than i would like to let on. and i am praying too, a lot. thank you for your transparency about what is going on and how you are doing. i love you all so much. i love you charley. i love you alexis. i love you laelia. i will see you in about a week…
linda
linda wesley
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FRIDAY, OCTOBER 12, 2007 01:19 PM, CDT
Good morning Lexi and Charley! Baby Bear will get the care she needs because you are Mama and Papa Bear and will not have it any other way! When I was going to doctor’s appointments with Jennie and Job I told everyone it was like traveling with Mama and Papa Bear! People will scatter to please you! Sending you another hug for today and all my love. Auntie Linda
Linda Wheeler
Ripon, CA
United States
FRIDAY, OCTOBER 12, 2007 12:28 PM, CDT
You have a beautiful daughter, she is a miracle of the Lord, and a blessing to you. It must be wonderful to hold her and kiss her. I would give everything to have my son here with me, like you have your daugther. God will grant her healing through his caring love. Seek advice about her therapy somewhere else, and remember we are praying for you guys here at Crossroads of Life, Duncanville TX.
carmen Ruiz
Dallas, TX
United States
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FRIDAY, OCTOBER 12, 2007 10:22 AM, CDT
She is beautiful! Congratulations, you will have so much joy with this little girl. May God Bless you, Rachel
Rachel Desany
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FRIDAY, OCTOBER 12, 2007 10:01 AM, CDT
Dear Charley & Alexis,
I wish I knew how to say everything I’m thinking and feeling for you all. Congratulations are definitely in order for your precious, beautiful little girl (with a lovely name to match!), but I understand how bittersweet and heartbreaking this time must be for you too. When Natalie was in the NICU after birth, I never really processed my emotions or talked to anyone about what we were going through. I suppose I was afraid of coming across as abnormal or psychotic (I was convinced I was the only new mom ever in history to burst into tears when leaving my baby alone in the hospital). That said, I’m proud of you both for sharing your experience and letting us celebrate and cry and pray with you. I feel for you so much, Alexis, and I hope you realize you’re the best mommy in the world for Laelia! She’s so blessed to have parents who love her unconditionally and fight for her and learn how to be strong in new ways every day.
You’re in our prayers.
Bethany Bassett
Italy
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FRIDAY, OCTOBER 12, 2007 02:25 AM, CDT
Hi Charley and Alexis! Megan just sent me the link to your blog. I cried and laughed my way through your journal entries. Alexis, you are amazing. You continue to be hilarious even through your mixed up emotions. I love that! Charley, I love your perspective on Laelia’s disability. It’s true, the condition of her soul is more important than the condition of her body, which can only improve from here! I can’t wait till I get back to San Diego and can meet the little one myself; I’ll be praying for you all.
Lauren Frehafer
Bucharest
Romania
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FRIDAY, OCTOBER 12, 2007 01:17 AM, CDT
Charles, Alexis, and Laelia, you are all in my prayers.
justin bajema
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THURSDAY, OCTOBER 11, 2007 11:56 PM, CDT
Charley & Alexis~
Ben and I are praying for your new family life. Cherish every minute, they grow so fast. I love how you’ve chosen to share with everyone, I know it’ll make question & answer sessions shorter & fewer misunderstandings. We can’t wait to meet her and watch her grow! God Bless!
THURSDAY, OCTOBER 11, 2007 10:35 PM, CDT
Just wanted to say congratulations on the birth of your precious baby girl. She is beautiful and such a blessing from God. Isn’t it amazing to look at her and realize that she is a product of you and Charley’s love for one another. I hope that God blesses all of you and pray that she will know God’s will for her life and how lucky she is to have you both as parents!!
Patty Johnson
San Diego, CA
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THURSDAY, OCTOBER 11, 2007 10:29 PM, CDT
Hi guys. Just finished reading your new jounral entries from today. I’m sitting here with tears running down my face as I read Lexi’s entry about Laelia squeezing her thumb. What a precious moment. How exciting to feel Laelia reaching out to you!!!!Thank you God for those moments that we will never forget. I pray that there will be MANY more moments just like that – that will encourage you through each new step. Give her a squeeze and a kiss good-night from us. All my love!
Amy Kennedy
Escalon, CA
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THURSDAY, OCTOBER 11, 2007 10:24 PM, CDT
She’s beautiful!
Parenthood is the most amazing experience in the world. Congratulations!
We hope that all goes well for all of you.
With love,
Japheth, Krista and Javan
THURSDAY, OCTOBER 11, 2007 10:19 PM, CDT
Charley and Al,
I love both of you. There are no words to describe what I want to say; how I want to comfort you. You are not alone. I will always be there for you, in thought and in prayer.
I know that Laelia will grow up with two wonderful parents. She will be loved as no other child will be loved. Her spirit will be fed by your care and devotion to her and to God.
May He grant you as abundantly with strength as He has already blessed you with love,
Chris
Chris Ewing
Minot AFB, ND
United States
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THURSDAY, OCTOBER 11, 2007 05:28 PM, CDT
Wow. You guys are so amazing. Being new parents and keeping up a blog! I admire you so much for the dedication you are showing this new person. She deserves the best and you are just the people to give it to her. She is truely beautiful and will be a joy to have in your (and our) lives. Know that God is in everything and He can be your support as well as your guide. We all love you and are so willing to do anything you may want or need us to do. We will be praying. Keep us updated.
Megan Circo
San Diego, CA
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THURSDAY, OCTOBER 11, 2007 04:37 PM, CDT
She is beautiful! I can smell her sweet little head now! And YES, you will be crowned the breast feeding queen of your house! I wanted you to know that Ron was so proud that he still had the “burping baby gift”! You continue to be in our prayers. We love you guys!
Blessings, Rana
Rana Smith
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THURSDAY, OCTOBER 11, 2007 03:07 PM, CDT
wow she’s adorable … so pretty … so precious … I miss babies … really I do … you guys look so cute together and your journals are awesome to read. Great words btw Charley.
Tiffany Fischbach
Sacramento, CA
United States
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THURSDAY, OCTOBER 11, 2007 02:03 PM, CDT
Dear Charley and Alexis,
I am so sad for you, a sadness that draws me into prayer for you.
I won’t tell you that I understand how you feel, because I surely can’t, but I do understand a little. One of my children was born with a small birth defect–no where near as serious as Laelia’s–but it was/is something that it is easy to blame yourself for. Even years later, when one surely knows better, the temptation to feel guilty is still lurking in the background. Or, a temptation to draw a different logical conclusion: if it isn’t my fault, then it must be God’s fault. May God grant you supernatural grace to accept a very hard situation without having to assign blame.
My prayer for you–beyond the obvious need to get sleep, healing, good care, a routine established–is that God will fill you to overflowing with assurances of his love, presence, and work in your three lives.
Linda Simons
TX
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THURSDAY, OCTOBER 11, 2007 01:51 PM, CDT
Hi guys. I have all kinds of friends and extended family asking about you 3 and praying for you daily. One of them sent me the following info. today and I thought – when you are ready – check it out. It’s about a little girl named Abby who had similar hardships to Laelia and about a doctor who helped her through it out of New York. http://www.forabby.com and the hospital name is NYU Hospital for Joint Diseases. The doctors name is Dr. Harold Van Bosse, MD and his info can be found at http://www.med.nyu.edu/people/vanboh01.html Keep signing the journal (both of you) to keep us posted on how everyone is doing and I know it will also help your own sanity to write your feelings out bluntly and honestly so that you can share your burdens with others. Love you guys! GOD is in control.
Amy Kennedy
Escalon, CA
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THURSDAY, OCTOBER 11, 2007 01:24 PM, CDT
Ohhh, she’s SO adorable!! Can I hold her, can I hold her, please!?!?! Okay… you can have a hug too!!!
Kate Morgan
Vista, CA
United States
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THURSDAY, OCTOBER 11, 2007 01:15 PM, CDT
Welcome to the world, Laelia! I know your dad to be a thoughtful, caring, witty, fun-loving, energetic, focused person, who is unafraid of challenges. After reading your mom & dad’s journal, I think your mom has some of those same traits, as well as a very deep caring for you, her daughter. You are a very blessed little girl, to be born to parents who so care and love you, and to a bigger family of relatives and friends who are holding you and your mom and dad up in prayer and thought every day.
Charles, I too know that our bodies are merely “houses” for souls while on earth, and everyone’s “house” looks different, unique. Laelia’s smile will be unique, and her personality will shine. Her physical challenges as she grows and matures will likely be a constant presence, to all of you. I can already tell that through the pain, suffering, worry and exhaustion you are both experiencing, your love for your daughter is deeper than the challenges. You will likely have to go to that well of emotion so many times in the coming days and weeks.
I applaud you for boldly asking for better medical resources than what was first presented. At the other end of earthly life, my father needed an advocate as he dealt with a debilitating disease. Naive me, thought the whole medical world just automatically gave one the best and cared about each person individually. Not so, at least for some. You will need to challenge medicine, look out for Laelia’s best interests even when it seems impossible.
I rejoice in the birth of new life, I cry with your pain and suffering, and most of all I pray that the gracious Lord of all will bring each of you what you need to meet the challenges and find the strength.
My prayers are for all three of you right now…Joy
Joy Wegner
San Diego, CA
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THURSDAY, OCTOBER 11, 2007 12:21 PM, CDT
Wow, I would say that this little girl is already blessed beyond then normal newborn. She has godly parents with a heavenly perspective, a praying church, and a great fellowship of friends. Laelia, the Sky is the limit. You are beautiful and blessed. Thanks for letting me burp you! We love you guys. It’s great to be your pastor.
Ron
Ron Smith
San Diego, CA
United States
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THURSDAY, OCTOBER 11, 2007 11:24 AM, CDT
Thank you for posting the pictures and your “amazing” words Charley. I told you that you guys were amazing and had an amazing little girl. We have an amazing God. (Did I say “amazing”?!!) Sending you love and a hug today! (HUG = Hope, Unconditional Love and Grace) Verse for today = Isaiah 41:10. (Lexi, remember Tim cried for 8 months!! ) Love, Auntie Linda
Linda Wheeler
Ripon, CA
United States
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THURSDAY, OCTOBER 11, 2007 11:09 AM, CDT
Charles and Alexis,
Thanks for being so communicative about what you’re going through. I loved your paragraph about the “diagnosis”; we’re all dying, aren’t we?
Well, as far as I can tell from the little photo, she is cute as a button. And I’ve seen some pretty cute buttons in my time!
God bless you guys. You’re amazing people. May you find the right doctors and the right friends to be his ministers of assistance.
Lynn Swanbom
Spokane, WA
THURSDAY, OCTOBER 11, 2007 10:14 AM, CDT
Praying for all of you.
-Fjord
Curtis Hawthorne
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THURSDAY, OCTOBER 11, 2007 09:31 AM, CDT
My Alexis,
I love you so much and I know I can’t say that enough! I am so delighted that your family, friends and strangers are all supporting you! That is a wonderful gift, because not everyone has that in their life (I’m refering to myself). I’m glad you have a great support system with grandma & grandpa but remember Chris’ parents send their love, and they have lots of love. I’m glad that the comments…especially mine about kicking ppl’s ass’ you give you a hard time….cheered you up!
I’m glad to know that she has started her therapy already and I’m looking forward to hearing about her new, older, and experienced phyiscal therapist. That must have been hard but I’m so proud that you stood up and asked for a different doctor!
I love you all and I can’t wait to see you.
Just remember even though we have no clue why God gives us difficult situations in life He always gives us the strenght and wisdom to get through them plus he usually sends angels your way to help you out
rachel morales
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THURSDAY, OCTOBER 11, 2007 02:10 AM, CDT
I’m praying for you three that God provides strength, comfort, and healing to your beautiful child.
~Schmorg
Geoff Darling
Sachse, TX
United States
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THURSDAY, OCTOBER 11, 2007 01:25 AM, CDT
I don’t know you, my niece sent me this link, but you have a beautiful baby. I am a grandmother of two girls, and my heart goes out to you. Be strong, and most of all take care of yourself. Know that many people are thinking of you and your family.
Annita Sibert
Aptos, CA
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THURSDAY, OCTOBER 11, 2007 12:22 AM, CDT
Laelia, Alexis and Shroud,
Laelia Sky is such a beautiful name! Praying for you in Texas. Thank you so much for writing.
– Ludwhig
Josh Jones
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WEDNESDAY, OCTOBER 10, 2007 11:39 PM, CDT
Missy passed your website onto me, you all will be in my thoughts and prayers as well. I wish I still lived in San Diego so I could offer to be more helpful in person, but if there’s anything I can do for you from Arizona, please just let me know.
Carolyn Allen
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WEDNESDAY, OCTOBER 10, 2007 06:10 PM, CDT
Dear Lexi and Charley,
I am praying and loving you from a distance. Oh how I wish I were closer, but I’m only a phone call (or e-mail) away! I will help in any way possible – just let me know what you need. I’ve already told you Lealia is truly beautiful. Her eyes are gorgeous and I see an amazing little girl. And I know she has amazing parents! I can’t wait to hold her. I truly believe you will be amazed at what God does on your behalf. Get lots of rest and hold on tight to God and to each other. I love you so much and send you hugs.
Auntie Linda
Linda Wheeler
Ripon, CA
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WEDNESDAY, OCTOBER 10, 2007 05:48 PM, CDT
Laelia, Alexis and Shroud,
I’m praying for each of you.
Adam Mitchell
Cedar Rapids, IA
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WEDNESDAY, OCTOBER 10, 2007 04:41 PM, CDT
Laelia,
I love you, sweetheart. And your parents love you more.
Do you know how special those two are? They are two of the kindest people I’ve ever met. They are suffering, and I wish there were anything in the world I could do to lessen it. But that doesn’t always work.
If you aren’t perfect (none of us are), you ARE precious. You are loved beyond any comprehension. You are a treasure. Peace and comfort to your family.
Lynn Swanbom
Spokane, WA
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WEDNESDAY, OCTOBER 10, 2007 04:26 PM, CDT
David Ringer is my friend. He just shared with me what you are going through. I will be praying for your little threesome family. The most important thing is, give Laelia all the love you are able to give her. I do hurt for you, the parents. Just remember you are not adequate to deal with this situation, but Jesus in you both is fully able. He pours His love into your hearts without measure (Romans 5:5). For your grief, He is the God of all comfort and the Father of compassion.
I too have something wrong with me. I have 50% hearing. But God has given me a special life because I have this physical lack.
I pray with all my heart that Laelia will grow up to be a confident, lovely woman of the Lord and that she will bring you joy everyday of your lives. Accept her exactly she is.
Accept one another then just as Christ accepted you in order to bring praise to God. Romans 15:7.
I have never met you or seen you but I love you three intensely with the love that comes from the Lord Jesus to each of us His dear children.
Lots of love, Jan
Janet Crowell
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WEDNESDAY, OCTOBER 10, 2007 12:50 PM, CDT
Well, I saw the pictures of Laelia Sky before I heard about the sad news. I actually thought she was a gorgeous looking girl, and I was going to send a message to you. Well, beauty is truly in the eyes of the beholder. Laelia will be blessed a child if you and Charly believe she’s beautiful, never mind her obvious physical limitations. I learned an important mantra of life when I had my babies. Love conquers all. It really does. Of all three things — love, faith, and hope, only love will move mountains (Corinthians 13). Go and teach that girl to move mountains. But first, take it one day at a time….till you fully recover from the caesarian surgery.
marla
Marla Hatrak
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WEDNESDAY, OCTOBER 10, 2007 12:14 PM, CDT
Christina sent me pictures, and Laelia is beautiful. I can’t wait to spoil her rotten! I know this isn’t what you expected. I know that you had different dreams for your baby girl. And you need time to mourn that, to mourn the dream life you had planned for her. And we will help you through that. Daniel and I are here for you no matter what. (We’ve even talked about moving down there!) So, if you need anything, call.
But remember when mom died and everyone told us it was God’s plan. Remember how much we hated that… how much we were disgusted by the people who fell back on that phrase because they ‘had nothing useful to say.’ Well, looking back now, it hurts… but they were right.
My little niece could very well be the most important activist for human rights we will ever see. She could be a math wiz and win a Nobel Prize. She could go on a speaking tour and tell thousands of others about how, she was born disabled in the eyes of the world, but she was perfect in the eyes of God and got to do many things because of her disfigurement that many others only dream about.
I love you all. And I will see you soon!! Only a week and a half more!! Please call if you need to.
Emily Thompson
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WEDNESDAY, OCTOBER 10, 2007 11:46 AM, CDT
I love you guys. I’m crying and rejoicing and praying each day for all three of you. I hope you received our flowers by now and you should be receiving a few things in the mail soon. I know you are overwhelmed but it sounds like you have a lot of support from your pastor, family and friends. Its amazing to read through your guestbook and see the theme everyone agrees with – your strength. They are right and although you may feel weak now, your strength, through Christ, will return. Each day God will give you the strength to keep on going. Allow him to heal your pain and calm your fears. Rejoice in the fact that you have been given a beautiful baby girl. You have been chosen as her parents and I believe God knew what he was doing when he chose the two of you. I so wish we lived closer and were able to help more but you let me know what you need anytime, anyday ok? In the meantime, we will continue to turn our questions and fears and doubts to God. Prayer is powerful and you have a ton of prayer warriors surrounding you. Hold, love and kiss my precious new little cousin for me until I get the chance to meet her. All my love!
Amy Kennedy
Escalon, CA
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WEDNESDAY, OCTOBER 10, 2007 09:34 AM, CDT
Alexis,
I just had my morning sob. I feel for you but can’t even imagine what you and Charly are going through. You are a strong person and you will be a great mom to her. I know you are scared but you should know that you have support around you. She is a very beautiful baby with a great smile who happens to have some other problems. But like Gigi said before, she won’t know life any other way. I just want you to know that I am there for you girly.
Maria Christianson
San Diego, CA
United States
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WEDNESDAY, OCTOBER 10, 2007 06:17 AM, CDT
You know, Lex, when we were growing up, I always thought that you could anything. Sometimes that was good and sometimes that was bad…sometimes that got us into trouble.:) I always wanted to be more like you..ready to take on the world. You were the leader, and I…your trusty sidekick. I still believe that you can do anything, especially with God’s help. You’ve had your share of trials and tribulations, but God always carried you through, and He doesn’t give us anything that He doesn’t think we are capable of handling. The only thing you are missing is your trusty sidekick:), and wish I could be there with you. Charley, you’re going to have to take over the position. I know you’ll do good, though. That little girl has the best parents in the world, and don’t you forget that. I love you honey.
Tiff
We love you so much! You know we’d do anything to take your pain for you, just as you would for Laelia. I”m so glad I got to spend time with you this weekend. My heart broke to see you cry. I’ll send you the pictures I took soon. Just hold on to the reminder that Laelia IS perfect to God, and someday she’ll be skipping down the Streets of Gold. Until that day, we are so privileged to know her and love her, and we will help you any way we can.
Love, Charilyn
Charilyn Damigo
San Jose, CA
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WEDNESDAY, OCTOBER 10, 2007 12:06 AM, CDT
Sweetie, I have been thinking of you a lot this past week. I was thinking your surgery must be soon.
First, may I say Congratulations to you and Charley on the birth of your *precious* daughter!!! Regardless of the challenges her body may present for you all, inside is a beautiful spirit and valuable little life worthy of celebrating! I’m sure the love, acceptance, and courage you show her will bring that out for everyone to see.
In your journal (which I thank you SO much for bravely sharing!!), the last thing you said was, ‘I just want to feel normal again.’ Honey, your circumstances may not be normal right now, but I’m *totally* confident your feelings are!!!
Please remember I love you and will add my prayers to those already on their way to your and Laelia’s Heavenly Father for an extra measure of strength! I also want to support you in ANY way I can (whether you let me know specifically or I have to guess, hint hint!).
Hugs to you and Charley, kisses for Laelia!
Kate Morgan
Vista, CA
United States
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WEDNESDAY, OCTOBER 10, 2007 12:05 AM, CDT
I once heard that parents do not pick their children, rather children pick their parents.
You were chosen for many reasons, among them to love and support this child.
I wish you both the best during this trying period.
Leah Avilez
San Marcos, CA
United States
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WEDNESDAY, OCTOBER 10, 2007 12:02 AM, CDT
Hey Lexi,
Congrats on your bundle of joy .. I know it’s a hard time right now but look on the positives of life. I’m sure even though I haven’t seen pictures yet that your girl looks like you. You were always pretty and bright and I’m sure Laelia will be the same way. I wish I had stayed in contact with you all this time but it’s been touch and go since I left for Germany and probably even before that. I wish you and Charley the best of luck in parenthood.
Tiffany Fischbach
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TUESDAY, OCTOBER 09, 2007 09:11 PM, CDT
i love you i love you i love you i love you. i can’t see you soon enough, or long enough, but i will be there soon. i am praying, as are my friends. i love you.
Linda Wesley
TUESDAY, OCTOBER 09, 2007 09:01 PM, CDT
Alexis,
I am so sorry to read about what you’ve gone through. We are praying for you in the community group. I know you are down right now & at this point words may not be comforting, but I know God doesn’t make mistakes. Laelia really is a precious child of God. And we will certainly keep you and her in our prayers,
~ Melissa
Melissa Rowe
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TUESDAY, OCTOBER 09, 2007 08:38 PM, CDT
Alexis, I love you very much! I remember when I first say Laelia in the hospital, before she was diagnosed, and I did think to myself & told you that she is the prettiest baby girl I have ever seen & I mean that with all my heart. You are very wise to know that everyone who says that to you possibly may be lying and I hope that you would be able to discern which ones are lying to you so I can beat the $hit out of them…..
I can’t tell you that I know what your’e going through….even with the depression because each depression is different because of what causes it. But I want you to know and I want you to remember that I am here for you. I’m going to learn everything you and charlie have to learn and be there to support you guys in every single way I can!!!
I am glad that you have this website up so you can communicate to all of those who love you what is going on. It took a lot of courage to do that.
rachel morales
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TUESDAY, OCTOBER 09, 2007 08:15 PM, CDT
Alexis as I read your journal I just wanted to let you know that I was in tears… as you know my sister is “handicapped” and everyone who tells me that they are sorry for me I just tell them that God made her for His reasons and she is just who HE wants her to be! She IS perfect in His eyes and we love her just as much as if she were physically perfect in everyone else’s eyes. I love you so much and I can’t wait to see the precious daughter that you brought into the world. I’ll be praying for you always, and your little one, and even though we are miles and miles apart I want you to know that all my prayers are right there with you.
November 27th, 2011 at 6:41 pm
Alexis,
I finally took a few minutes to read your blog. Thanks for putting down these words that can help other moms as our babes grow up! I will be thinking of you all as the next trials approach. As I’m faced with painful/unpleasant things in my life I just try to keep my mind far enough in the future to imagine the benefits to come; sometimes it helps.
Melissa
April 28th, 2011 at 11:05 am
Hi There
I am writing to you all the way from the UK. I was reading your blog and just find you so inspirational and a amazing mom. I just know excately what you went through and going through. My son was born 14 October 2010 with arthrogryposis and his hips, legs and feet looked exactely like your daughters his arms are not affected as much only some stiffness in his shoulders and elbows. We just knew about his clubfeet at the 20w scan, but did not know about contracted knees, weak muscles in legs and hips and was a shocked when the doctor diagnosed him with arthrogryposis after he was born. It has taken some time to come to terms with what might be in his future, but now so over it and just enjoying him for being him. They are just exceptional kids and I can already see that he will have the determination to do what ever he wants to.
I will keep on reading your blog as gives me hope and shows me that anything is possible.
I wish you and Laelia all the best for the future
Dedre
London
UK
April 19th, 2011 at 4:15 pm
hello i was givin this website link by my mother in law. it is truly amazing to see. my daughters name is brayden lee dame she is about 2 and a half months old and has arthrogryposas/ amyoplasia congenita and its very hard to go through but we take it one step at a time. she cant move her arms and dosent move her legs much but we can open them up. she has lots of strengthin her back and neck. but no joint movement she also has a problem with her hips and much more. i dont know really what to expect but i do know that i love her is she is the most amazing person in the world. she seems to amaze me and surprise me everyday. its nice to know that were not alone in the world as being young parents everyne seems to think its going to be even harder on us but it was a blessing to us that she is even here today. i will keep reading up on your little one this is very inspiring and im so happy you did this it really gives my family hope.
love the dame family,
charlotte
junior
and baby brayden
April 17th, 2011 at 1:08 pm
I stumbled across your blog and I have found myself spending a long time reading up on your amazing little family and this strong, beautiful little girl! The strength of this little girl is inspiring, thank you for sharing this!
Milwaukee, WI
January 16th, 2011 at 7:29 pm
Hi Guys,
We are friends of the Parfet family….My husband has known Don for many years….Megan just sent us your link. We too have a disabled child and understand some of the challenges you face…would love to be a confort and sounding board if you ever need that. We attend the Rock Church and our son is in the disabled class….we have forwarded your link to the staff and families who are part of this program in hopes that somewhat has a suggestion that can help. (one suggestion was to check into regional center?…don’t know if you have tried that?) Anyway, God Bless you guys and the courage to continue!!!
Love,
Bill, Linda and Nicholas Mackey
December 26th, 2010 at 2:40 pm
Hello Alexis,
It was a pleasure meeting you at Clairemont Emmanuel Baptist Church this morning. Laelia was a joy to have in child care. We hope we will have the opportunity to see you again.
Please email me if you are interested in further recommendations for doctors. My wife and I know many throughout town. Dr. Schwartz had quite a reputation, it was sad to hear about his passing, and he will be missed by many.
Todd
November 1st, 2010 at 6:04 pm
Hello!
The last time I signed your guest book was when our little one was about 3 months old. She is 15 months old now. Our little one also has arthrogryposis. We are doing therapy 3 times a week, and still working on head and neck control soo much. I know every child with arthrogryposis is unique in their own way, but do you recall when your daughter could sit up without her head dropping down? We would appreciate any feedback.
I definitely have enjoyed reading your posts and looking at pictures! Your daughter is beautiful and has obviously come such a long way. . good job mom!!!
We are also doing surgery soon. . .this Friday! She is having a capsular release on the elbow to help her bend, and repositioning bones with pins in her foot.
Anyway, if you could email me I would soo appreciate it:o)
Blessings,
Alison Kleist
June 11th, 2010 at 2:56 am
I really hope your daughter does well. With a mom like you I’m sure she’ll do great.
I’m 25 and I have arthrogyposis as well, although it only affects my wrists, elbows and shoulders. My parents were and continue to be amazing, but I don’t think I ever really thought about what my parents might have faced while I was growing up. So I really enjoy reading this.
I’ve had my share of ups and downs with this disorder, but I feel like maybe this was something I was meant to face and overcome. It feels so good to accomplish something when you know that you had to do it deifferently but still suceeded. And now I am proudly a registered nurse. And I chose this profession because thorughout all my surgeries, I remember certain nurses who made my day so much better. So I chose this profession so maybe I can give some of that back to others who might need it.
I wish you both the best of luck.
April 12th, 2010 at 3:47 pm
Alexis- you are such an amazing mom. watching you today with Laelia was jsut priceless. she is an amazing little girl bc she has an amazing mother. you kindness and love show all over that little girls face.
hugs dana
April 3rd, 2010 at 7:55 pm
Thanks for the report.
I was praying for your trip.
We thank God for your daughter and your love for her.
I had another question which I’ll ask when we see you
November 2nd, 2009 at 2:04 pm
Hello. I felt motivated to sign this guest book, because my 3 1/2 month old has arthrogryposis. It definitely is a condition with many challenges both emotional and physical. But, with the challenges come rewards. Although it takes longer for these little ones to reach milestones, it is soooo rewarding when they do!!!! Laelia is such a beautiful girl and you are so blessed to have her!
I was looking at some of the therapy equipment you are using and I have questions about some of it. . . .to possibly help out my little one. One of the things I noticed was the wraps around her shoulders and elbow areas. . .does this help her bend at the elbow?? Please email me at: kleistalison@yahoo.com
I would appreciate ANY help I could get!!!
Alison Kleist
October 20th, 2009 at 2:43 pm
I debated on whether or not to post a comment here but have decided I should. I never expected to find this site when I typed Laelia into Google. I was bored and thinking about painting for my girls, both named after flowers, one of them Laelia. Our girls have never experienced physical disabilities which is why I felt inappropriate signing here but as I read some of your first entries, I realized that not only do our daughters share the same first name, they are only 5 months apart. On top of that it sounds like you also rely on God. I am happy to read some of your latest entries, the last one of her eating applesauce, and I just wanted to let you know that I will pray for your Laelia over the years. Mainly just because but a tiny bit is because I have never seen anyone else with my little one’s name and it’s a neat connection. A way for me to remember your little girl. I’ll be one more person praying for her continuing progress and more mobility. Perhaps someday she will be the one updating this site…
Regards, Katherine.
September 14th, 2009 at 2:09 pm
Your beautiful little girl reminds me so much of my daughter when she was a baby. Although mine has congenital muscular dystrophy, they are similar in many ways. I know what it’s like to go through the surgeries – she’s had some pretty major ones. I remember thinking randomly before her spinal fusion that we had just purchased a van with a lift a few months earlier, and now she was about to have a procedure she might not come through…well, that was five years ago, and she’s still going strong! And we’re about to make the final payment on the van. :0) Like many others, I’ll send special prayers and good thoughts to all of you on the 16th. If you would ever like to talk, feel free to e-mail me! rnilifamily@yahoo.com Blessings,
Debra
September 14th, 2009 at 2:08 pm
Your beautiful little girl reminds me so much of my daughter when she was a baby. Although mine has congenital muscular dystrophy, they are similar in many ways. I know what it’s like to go through the surgeries – she’s had some pretty major ones. I remember thinking randomly before her spinal fusion that we had just purchased a van with a lift a few months earlier, and now she was about to have a procedure she might not come through…well, that was five years ago, and she’s still going strong! And we’re about to make the final payment on the van. :0) Like many others, I’ll send special prayers and good thoughts to all of you on the 16th. If you would ever like to talk, feel free to e-mail me! rnilifamily@yahoo.com Blessings,
Debra
May 7th, 2009 at 7:17 pm
Thanks for letting me read about your adventures with this wonderful little girl. I just started reading today because of a random phrase that I googled after a vivid dream. I know God works miracles through medicine and technology and that is so apparent in your lives. Thanks again for posting about your life…I will continue to follow your blog and Laelia’s achievements. God Bless you.
Jody
April 1st, 2009 at 2:43 pm
I loved reading your posts and looking at the pictures. I am in a Doctor of Physical Therapy program and wondered if I could use some of your pictures in a presentation I am giving in my Advanced Pediatrics class on Arthrogryposis?
Keep up the faith!
April
October 15th, 2008 at 8:26 pm
Hello.
The natural photo of the new arrival, taken by Emma Tallulah’s dad,
Bye.
August 26th, 2008 at 1:06 pm
Hi Alexis,
My name is Christine and I went to high school with Charlie. I stumbled upon your page from Missy Gore’s myspace. I have to tell yoou that Laelia is in my daily thoughts and prayers. Parenting is the hardest job anyone can have but you both seem strong enough to get through it! Take care and keeping kissing that beautiful baby!
Christine
May 24th, 2008 at 5:24 pm
Charles and Alexis,
Your baby is so adorable. I love reading about her and yall and watch the pictures and videos. I had a sibling who was disabled and I know the frustrations you go through and also the joy when she does something small but to you amazing. I love reading about you all and her everyday. please email or call one of these days to catch up. In his name. Doug
May 22nd, 2008 at 5:23 pm
Charlie & Alexis,
Miss you so much!!! What a beautiful baby you have! Her giggles on the videos brighten up my day!!! Your website is so clever and fun! Your episode with vertigo (how awful, Im sorry you have to suffer through that!) reminds me I need to keep a journal of all my “crazy” episodes that keep Doug up half the night. We love looking at your blog and seeing the hope and determination you have in providing the best care for Laelia! Although we are far away, your blog makes us feel closer! Love you!
Carol Chase
March 24th, 2008 at 12:27 pm
Hi Alexis,
We met this past weekend at your baby shower and again at pastor ron’s house for easter. What a great website you have.
this way I won’t have to ask endless questions about Laelia, that you have answered many times before.
You are in my prayers.
Mariann
February 22nd, 2008 at 10:15 am
Lexie and Charlie,
We are so thankful that Laelia is moving her arms and feet. God can work beyond what any physician says. We have been praying for you and your baby. Wynema and Marilyn have been keeping us posted. With love and prayers, Bob and Cathy
February 20th, 2008 at 8:11 am
Alexis,
Soooo excited to see the videos. I am so glad that progress is being made. Many do not understand the joy that comes when your child does something that is closer to “normal” than what they were before. To know that they are doing more than stupid doctors told you they would. I am so excited. I understand the joy that comes when she does something you never thought possible. I agree with the others, you are doing a great job.
January 31st, 2008 at 6:25 pm
Hi Alexis, Charles and Laeila,
I found your blog through a friend who’s daughter also has Arthrogyposis. Laelia is beautiful!! I’ve been reading a lot of your entries and I a lot of what you’ve written is what I think my Mom would have written if she had kept a journal when I was born with Arthrogryposis 20 years ago. I loved watching the videos of Laeila moving her arms for the first time, it just made heart leap for Joy, those movements will probably continue to come! I’ve seen you post a few times on amcsupport.org, I didn’t respond there but I hope you find a doctor who is willing to treat her legs how you hope! I had one leg in hyper extension and one leg in mild flexion but my arms looked almost identical to Laeila’s and I am now able to do many things that looked impossible when I was born.
Take Care,
Tracey
traceyschalk@gmail.com
January 11th, 2008 at 6:30 pm
You are an amazing person. I read your entries and admire your strength. I look at your little girls face and she makes me smile. When I hear mothers complain about their children acting up, I tell them to read your story, and think again about their situation. You have a great bond with your husband and daughter. Thank you so much.
January 10th, 2008 at 7:36 pm
Dear Charles and Alexis,
My heart is heavy tonight after reading your latest entry. What a challenge you all have in front of you. But as I continued reading further, what touched me more was the love you have for each other and for your precious little girl – and she is so precious. Stan and I pray every day for your family. For strength, comfort, answers and patience for you two, and for a miracle to occur in sweet Laelia’s body.
We love you – I just wish we were closer so I could have answered the “emergency” call – what an honor that would have been!
Sharon Coppinger
January 1st, 2008 at 7:58 pm
Hi Alexis, Charlie and Laelia,
I have been following all your record of Laelia’s progress and have laughed with you, cried with you and prayed for you. The gals in our S.S. class at GCBC are praying too. Hope you received our card. Keep looking up (and by the way, you don’t have anything to blame yourself for. You are doing a terrific job). Love you, Frances
December 27th, 2007 at 8:57 am
Hope you had a nice Christmas. Loved the picture of her looking at the teddy bear. She is so precious!
December 20th, 2007 at 11:01 pm
Thank you for all the pictures and updates. You are right, life does suck when such a beautiful little girl has to go through such pain. You are a wonderful Mother and she is lucky to have you and your husband as her parents. Take care of yourselves. Happy Holidays.
November 29th, 2007 at 1:02 pm
Thank you for all the pictures. They are wonderful.
November 24th, 2007 at 9:22 am
Love the new site and especially the many new pictures. Couldn’t help but think that Laelia will grow up knowing there’s a world of people who love her, and that’s a wonderful thing for any child.
Hope you’re having a great visit at home and that the trip has not turned out to be too daunting. Happy Thanksgiving!
Love and hugs.
lr
November 17th, 2007 at 11:16 pm
WEDNESDAY, NOVEMBER 14, 2007 11:26 PM, CST
. I love it!!
Hey you guys! I was just stopping by to catch up on the journal, and figured I’d drop a note as well! I’m very glad to hear about ‘little’ blessings… like insurance cooperating and Aces up sleeves
I love you guys, and will keep praying!
Becky Casselberry
Denver, CO
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WEDNESDAY, NOVEMBER 14, 2007 09:04 PM, CST
Hi Alexis and Laelia,
It was so awesome to see you both today at DSP!
Laelia is so beautiful and adorable! I’m really glad you stopped by so I could see you two before I leave this Friday on vacation. We’re driving back east for Thanksgiving. It’s going to be a very long drive but it’ll be fun! Can’t wait! 
Laelia is very blessed to have you and Charley as her parents. She’s a very special little laelie bug.
Jeff and I send you our love. Hang in there! Stay strong!
Sending hugs and kisses your way,
Jeff and Carolyn
Carolyn Hemmerly natvpbgal@gmail.com
San Diego, CA
United States
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WEDNESDAY, NOVEMBER 14, 2007 04:35 AM, CST
I received the link to your website from my friend Annita. I just wanted to introduce myself and invite you to our website and into our family. I know how difficult it is to have a child you knew only as being “typical” inside of you growing, and to be faced with challenges once she arrived. Our daughters’ diagnosises are different but I am here to offer you a shoulder, or an ear, or just to be someone who knows what it’s like to deal with medical personnel who don’t get “it”. And to feel dumbfounded at what to say when people ask, “how do you do it?” Please feel free to visit our family’s page, or email me privately.
Living in (“Holland”) San Diego,
Kristin
http://www.caringbridge.org/visit/emmasinford
Kristin Hetrick jennaemmamom@cox.net
San Diego, CA
United States
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TUESDAY, NOVEMBER 13, 2007 12:47 PM, CST
Dear Lexi & Charlie,
You don’t know me but I am a friend of your Aunt Linda’s. She shared your story at a women’s meeting Saturday and I was deeply touched. I asked if I could have a picture of Laelia –I want to have her engraved on my heart, I want to pray for you and your family. She is precious, she is beautiful! I admire your courage and your sincerity, sharing a story of unconditional love and patience. I don’t know what to say. Here is my prayer for today: Heavenly Father, tend to Lexi and Charlie as their Shepherd, gather Lailia in your arms, carry her close to your heart. Lead her parents gently, guiding them every minute of the day, giving them strength and endurance, in Jesus’ Name. Amen
Joann Smith smithjoann@verizon.net
Manteca, CA
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MONDAY, NOVEMBER 12, 2007 11:24 AM, CST
LOVE THE PICTURE OF DADDY AND BABY! Thank you for sharing. Annita
Annita Sibert
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THURSDAY, NOVEMBER 08, 2007 03:30 PM, CST
Dear Three,
I read somewhere recently that we all suffer and the only thing that makes it bearable is when we let someone else know we care what they are going through.
I care and I am very sorry for the difficulty of what you are going through.
I had the impresssion today as I read about Laelia getting her casts that it is very important that you write as you do. You write so honestly. You tell the story. You don’t spiritualize and try to make it hunky dory. You tell the hard parts and the little sweet things that also happen.
I don’t know anything except to say I have a heart full of love for the three of you.
Love, Jan (David Ringer’s work colleague)
Janet Crowell
Fort Worth, TX
United States
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WEDNESDAY, NOVEMBER 07, 2007 11:27 PM, CST
Just read your latest journal entry! That was beautiful. You are amazing.
Annita Sibert
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WEDNESDAY, NOVEMBER 07, 2007 10:33 PM, CST
Just read the latest journal entry and continue to be amazed at how quickly you and Charley are growing into your new parent roles. They’re bigger than most, but you’re handling them so well.
I love the explanation about God not “making” Laelia as she is, that she had an accident, and that God knew it and allowed it to happen. This is such a perfect way to explain the situation without making God the bad guy, which He never is nor ever will be, and in terms that even the youngest child can understand. It also encompasses a critical principle that most people don’t quite get. God may well look at most interventions as meddling, even when we think they would make such incredible and desperately needed differences in our lives. We have so much to learn, but most of that has to be done exactly as you are doing it now… day by day, sometimes only minute by minute and slogging through intense suffering.
Just as every choice that you made before Laelie was born was done with love and her best interests at heart, so is every choice that you now make. They won’t all be the right choices, but that’s just normal parenthood, and even when they aren’t exactly right, each and every one will be made with love, with hope for the very best for your beautiful daughter, and with the sure knowledge that you are, in fact, doing your best.
Keep at it! And we’ll keep trying to convince God that intervention is warranted in this particular situation.
Love and hugs.
Linda Record
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WEDNESDAY, NOVEMBER 07, 2007 09:04 PM, CST
Just checking in again to cheer you on–I did my volunteering today at Chrildren’s and was just wishing I could do something to help you. All new mommies get tired, but your exhaustion must be nearly unbearable. Glad you’re feeling a little better and Laelia is getting acquainted with her casts. Keep up the good work! (I know you’re thinking, what choice do I have?) Sincerely, Suzanne
Suzanne Cuppage
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MONDAY, NOVEMBER 05, 2007 10:10 PM, CST
Charles and Alexis…I know today was the day for the arm casts and I am praying for the three of you! Please do not hesitate to call if you need anything!
Sarah Walsh sarahandbill@aol.com
San Diego, CA
United States
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SATURDAY, NOVEMBER 03, 2007 03:56 PM, CDT
You guys are so brave. I hope you know that Jason and I weep with you in your pain and rejoice in your triumphs like so many others do. I’ve been told that God cares far more about the character of his children than he does their comfort. From my observation of life I believe this is true. There is reason in His design for us. Remember when you are doing therapy with Laelia that you are doing the right thing for her even though every parental instinct inside of you screams that this can’t be what being a parent was supposed to be like. I know that someday your daughter will be grateful for the sacrifices you have made for her and your strength to follow through with her even though it is so painful for all of you both emotionally and physically. BTW, I love your going to Holland analogy.
Sheri Record
Spanish Fork, UT
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FRIDAY, NOVEMBER 02, 2007 11:01 PM, CDT
Good night, precious Laelia. Sweet dreams, darling.
You don’t care about such things as birthdays and milestones yet, but tomorrow you will be one month old. In that SHORT time, you would not *believe* the number of people your little life has touched!! And the number of hearts your Mommy and Daddy’s courage, strength, love, and openness have melted!! I bet its already more people than most of us could hope to positively impact in our entire lifetime!!!
Your little legs may or may not carry you through life; we’ll have to wait and see. But Sweetie, the courage inside you, the love around you, and the Power above you most definitely will!!
Here’s a big hug for everybody!!
Kate Morgan
Vista, CA
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FRIDAY, NOVEMBER 02, 2007 12:39 AM, CDT
I’m sure this must be so hard and so painful and I really don’t have any idea what you are going through, but God does. I wish I could offer some new words of wisdom and comfort that you haven’t heard before, but God knows your sorrow and pain; there is a reason that Laelia has been made this way and it may take a long time before you see it. Keep doing what you’re doing, because it seems to be the best thing. I pray that we can look back on this some day and see the whole picture and see where God has taken you and Laelie as a result. Don’t give up! We love you! God loves you! Even when we don’t know what’s going on or why something is happening, we know the One who does!
Hey guys. Your last entry made me cry
Tammi Dyrud tiggerphan@cox.net
El Cajon, CA
United States
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THURSDAY, NOVEMBER 01, 2007 10:08 PM, CDT
Dear Laelia,
If you have to have casts, insist on pretty pink and purple ones so they will match all your adorable outfits. Scream loud and long until you get your way.
We love you!
Charilyn Damigo cdamigo@pacbell.net
San Jose, CA
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THURSDAY, NOVEMBER 01, 2007 09:43 PM, CDT
Dearest Charles and Alexis,
Our hearts are broken by the pain and suffering that you, as new parents, and this sweet, new life named Laelia, are going through. I wish I had answers for why life seems so completely unfair at times.
Quite honestly, when I heard about Laelia, the first thing I thought was, “Wow, God must really have a lot of confidence in those 2 people to entrust such a tender and precious life into their care”. Your baby girl is beautiful. Your love for her and for each other is so evident and so touching.
Please know that Stan and I pray for each of you every day. We will continue to pray for a miracle – in whatever shape or form that may come. If I’ve learned anything in all my years, it’s that God’s ways are not our ways, but His way has always been better than my way. When we can’t understand why, and there doesn’t seem to be any answers, we just have to trust His heart, and remember that He loves us and He will never leave us – no matter what.
Reading your updates makes me smile sometimes and weep sometimes – much like this thing called “life” that we have to slog through every day. Our prayer will be for strength and rest for both of you, more comfortable days and nights for sweet Laelia, and connecting to the right people who can make a difference in her life.
We love you.
Stan and Sharon Coppinger
Longview, TX
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WEDNESDAY, OCTOBER 31, 2007 02:37 PM, CDT
Wow! What a powerful dream. There is a lot of meaning in that. Like Linda said—Strength comes in the journey. Hang in there one day at a time.
Sheri Record
Spanish Fork, UT
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TUESDAY, OCTOBER 30, 2007 01:56 PM, CDT
My prayers are with you, I hope you have a better day –
So sorry for the obstacles you’ve been going through with Laelia. Reading through your entries I feel the frustrations… I can’t believe how cold people are, treating her like a problem rather than a human.
~ Melissa Rowe
p.s: There is a reason… in time we’ll all see how God worked through this little girl. I have a strong feeling she’s going to teach the world a few things
Melissa Rowe shesaystome@hotmail.com
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TUESDAY, OCTOBER 30, 2007 12:14 PM, CDT
My Dear Lexi, Charley and Little Laelia,
You are all precious in God’s sight and in mine! You are each amazing and I love you so much. I’m so proud of each of you for the way you are starting the journey you are on. I read somewhere where God doesn’t give you strength before the journey, strength comes IN the journey. You are evidencing strength to those of us who are reading your journal, praying for you and supporting you, even when I know you feel so weak. I think you are doing a great job! Lexi, you seem so “in tune” with Laelia and her needs. You’re a great mom. Charley, thank you for being strong even when you don’t want to be. Job also had to be the strong one at those times when Jennie and I would walk down the hall as far away as possible because we couldn’t bear the crying. I was grateful for him then, and I’m grateful for you now! You are a great dad. I just want to send you a big hug! I’m always here for you. I love you.
“Great” Auntie Linda
Linda Wheeler
Ripon, CA
United States
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TUESDAY, OCTOBER 30, 2007 10:06 AM, CDT
((((BIG HUG!))) lr
Linda Record
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MONDAY, OCTOBER 29, 2007 12:13 PM, CDT
How is Laelia doing with the casts? How long do they keep them on at a time? I’m praying that her discomfort is very minimal. Are you able to give her anything for the pain? My continued thanks for being so open and honest in your journal entries. I won’t get up on my ‘soap box’ today about the medical insurance red tape mess you are going through but I feel your pain. I think you should take Aunt Linda Records advice from her guest book entry and start going ‘over’ their heads!!! Praise God for all the help you HAVE received to date from so many and I’m glad to hear you are challenging your own faith and allowing God to answer your doubts. Complete and total FAITH is a very hard thing to have but it does give you peace and hope and understanding of how powerful and gracious and loving our God really is. We are celebrating what God has done in baby Abi’s life (Jennie’s baby) in just 6 months and now we get to thank God for what He has already done in baby Laelia’s life. God takes care of ALL of His children. I so wish we could make a trip to come see you guys. All my love……..
The cardboard box pix is so precious. I’m sure your cats like the cardboard box too
Amy Kennedy
Escalon, CA
MONDAY, OCTOBER 29, 2007 10:40 AM, CDT
WOW! I can’t believe how much you guys have been through since Friday!
I am so glad that she slept 6 hours!!! it was just taking her a while to get a normal sleeping pattern. I hope and I pray that you will have many many more nights of 6 hours, plus, of Laelia sleeping!!! Praying for God to heal her is good, but I think praying and trusting God that she will: learn to breast feed in one sitting without any complications/breaks, and praying for her to sleep in at least 2 hour incraments all night long; is very important too!
You have been through so much & I know that your insurance will come through and your PT/OT appoints will be scheduled on a regular basis…very soon. My advice for Charley is to call them and continue to yell at them regarding that red tape crap! You shouldn’t have to wait and you should yell at them several times a day!!!!
I’m happy that Laelia can now sit in a car seat with her casts on!
rachel morales
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SUNDAY, OCTOBER 28, 2007 02:14 PM, CDT
As well as the BBB… since your on the phone already.
Praying for you guys, sure hope things change in a hurry! Would CaringBridge have any useful contacts?
Joel Kreider
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SUNDAY, OCTOBER 28, 2007 10:22 AM, CDT
Just read your latest journal entry and cannot imagine how upset and frustrated you must be. The bizarre thing is that by using these tactics to save a few pennies now, the insurance company is actually increasing the likelihood that it would have to pay a lot more later to care for problems that could have been corrected more easily NOW. It seems that even if they can’t see what they are doing is morally and ethically wrong, they could at least see that it was financially counterproductive.
Maybe it’s time to tell them Michael Moore will be arriving with cameras — or that your senator and congressional representatives will soon be calling.
My heart goes out to all of you. I hope that you and your doctors are able to make some headway soon. Hugs. lr
Linda Record
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SUNDAY, OCTOBER 28, 2007 12:18 AM, CDT
Dear Charlie and Alexis, My prayer for both of you is that God would give you the desire and ability to “embrace” all that has been placed before you. He is able to give you far above what you would ask or think – not necessarily the way that we would want, but the way that is best for us.
I am so thankful that both of you have a personal relationship with our Lord because He is with you through all the trials and tribulations that you are in the midst of – He promises to never leave us or forsake us and to walk through the valley of the shadow of death with us.
While I recognize that it is easier to handle trials that only involve us and that it is much more difficult to handle trials that involve our children, may your bottom line be to recognize that God is sovereign and we are not.
I pray that God will give you His perfect peace as you yield yourselves to Him and trust Him to direct your every step.
May God bless you and keep you and your precious, Laelia
Maureen Roscorla eltonlrguard-carebridge@yahoo.com
El Dorado, CA
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SATURDAY, OCTOBER 27, 2007 08:00 PM, CDT
Dear Charlie & Al,
A quick note to remind you that we love you and are praying for your family! God is good all the time.
Please pray for our Sarah, a 16 year old girl hit the gas instead of the break when Sarah was over half way through a 4 way stop. The girl’s Ford Pickup rammed Sarah’s Dodge Neon on the passanger side (thankful Sar was alone), we find out this week if Sarah’s car is repairable or totaled. Sar is sore and hurting alot… but we know God uses all things for His glory and purpose. Our children belong to God and as much as we love them, He loves them infinitely more… He sent His ONLY Son because of His LOVE! (John 3:16).
God bless you and know that we are praying for you,
Glen & Linda Cain xoxo Ps 19:14 Ps 139:1-18
Glen and Linda Cain
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FRIDAY, OCTOBER 26, 2007 07:58 PM, CDT
Hey you two,
I’m still praying for you every day and so are so many people back here. We all love you and miss you. I know that things keep getting harder for you and that as each day goes on it’s different and probably confusing but God will always guide you. Whatever happens you can know it’s His will. This passage out of Ephesians reminded me of what I pray for you and your little family all the time,
Ephesians 3:16-19
16I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being, 17so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, 18may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ, 19and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God.
And with that said, I’ll finish up by reminding you, Alexis, that you are the mother of one of God’s children. One of His image bearers. Remember that what you’ve done by bringing Laelia into the world is to show the world one more spark of how glorious God is. He gave her to you and He is in control of her life and your life and you can rely on Him to never let you go.
All my love,
Hannah
Hannah Anthes
Placerville, CA
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FRIDAY, OCTOBER 26, 2007 04:49 PM, CDT
I’m so thankful you are finding those people who will properly care for Laelia and are sensitive to your needs as well.
Sheri Record
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FRIDAY, OCTOBER 26, 2007 10:40 AM, CDT
Wow!!! So much has been going on!
First, I love Tammy’s letter to Laelia. God created her so she is precious forever and always! It’s just great to be reminded of that!
Im really glad Laelia has casts on her legs and feet. I know it is akward & uncomfortable but just keep your eyes focused on the goal and the long term benefits!
Breastfeeding will get easier. It will be just like it was at first akward and different to hold her because of how her legs were bent into her body. So once you figure out a position that is comfortable for both you and Laelia, breastfeeding then will just have its normal complications
I am so relieved and happy now that you are actually getting answers from PT OT! Having things explained to you, the whys the consequences of not doing it, the benefits of doing it will help out a lot when you have to do the exercises at home.
Laelia will be in discomfort but she will get use to it. Just remember that even though she is a baby she is not glass. She is a strong woman, just like her mommy!!!
I’m excited for the 3 of you and all the new exciting and challenging changes that are going on!!! It will all be worth it when she is older and can walk and dance with other crushes!!! ; )
I’m sure she didn’t mind when the casts were put on since she had a cute handsome doctor singing to her ; ) what more can a girl ask for…..
I love all 3of you!
rachel morales
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FRIDAY, OCTOBER 26, 2007 10:33 AM, CDT
Dear Lealia, Please know that Aunt Charlotte is praying for you! I’m sorry you have to have casts on your legs; I am praying that you will get use to them as much as possible, and that they will help you to be able to walk some day. I’m also praying for your Mom and Dad – you have great parents who care very much for you. And you have an aunt that loves you – Cousin Nathan tells me that you are beautiful, and he got to hold you. I am jealous!! Please know that God loves you, and so do I. Aunt Charlotte
Ben Haley haley105@aol.com
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THURSDAY, OCTOBER 25, 2007 11:32 PM, CDT
Charles, Alexis and Laelia: The casts are beautiful! I know, they are ackward for all of you, but you will learn soon enough to work with them, and I’m confident they will be a good thing, especially since you have them at such a young age! My Bible study group and my family are all praying for you–answers to prayers are evident in your journal entries–two parents who are finding strength, looking to the future, and so loving for their baby. A baby who brings so much joy and so much heartache that it opens you up for deeper, richer personal searching and support for one another.
Laelia, you are a beautiful little girl, looking up at your daddy with such big wide-open eyes at such a young, tender age!
My prayers and best wishes continue for all of you.
Joy Wegner
San Diego, CA
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THURSDAY, OCTOBER 25, 2007 07:10 PM, CDT
Still praying for you guys. Hang in there, you’ve got quite the adventure going on. Look forward to seeing you next week.
- Aduma –
Denver, CO
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THURSDAY, OCTOBER 25, 2007 05:55 PM, CDT
How adorable! I just dropped in to show a friend the site so she could explain to her church and ask them to pray for Laelia, too, when I noticed the new pic. What a difference! Maybe this is an indicator of many good things to come that LB so richly deserves. I’m glad to hear that y’all are currently relatively safe from the fires but will continue to pray that you remain so and that the fires be put out as soon as possible.
Many hugs. lr
Linda Record
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WEDNESDAY, OCTOBER 24, 2007 05:40 PM, CDT
Im glad Laelia gets her casts on soon. I hope the appointment doesn’t get rescheduled due to the fires! It’s normal for babies day/night clocks to be backwards. It happens all the time. As she gets older and will start pre-school that will change. Hopefully it wont take that long!
Sorry I didnt stop by this weekend. I moved to Mission Valley. I can’t wait to have you 3 over!!!
Did Laelia wear her new outfit to church on Sunday???
The growth spurt should be over soon so you can get more rest between feedings!
rachel morales
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WEDNESDAY, OCTOBER 24, 2007 11:40 AM, CDT
Hi Lexi,
What a beautiful little girl! I play Bunco with your cousin Keri Taylor. She told us of your situation and she told us what a great attitude you have and it certainly shows in your journal. I was just curious if you have gone through California Children’s Services in your area? This might be a covered condition and could pick up what your insurance doesn’t cover. Let me know (I work for the program in our county) I could get you the info for your county if you don’t already have it. God bless you and your family! Take care!
Amador County, California
Gina Cook
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TUESDAY, OCTOBER 23, 2007 08:47 PM, CDT
Hey guys. Just checking in. I continue (with so many others) to pray for wisdom for you both as Laelia’s parents. You have a lot of decisions to make and it can’t be easy. Look to Lord for those answers and be at peace knowing that God is still there and still in charge and Laelia is one of His own. Here is a poem/song that came from ‘The Power of a Praying Parent’ book that I thought we could use to pray for our new little neice.
“So much to say and just a lifetime left to say it. How quickly time passes. If I had my way, I’d keep you safe within my arms while the storm of life crashes. I won’t always be with you, my child, but words I can give. When the winds of hope are dying down, these words will live. Above all else, know God’s the One who’ll never leave you. Look to Him above all else. He is love you can depend upon, a heart set to care. If in the darkest night you should be lost, He will be there. He’s the Everlasting Father, In His hands you’ll never fall. He’s the One who holds it all, above all else. He’s the Author of your laughter, He’s the Keeper of your tears, He’s the One who you must fear abvoe all else. He’s the Giver of the kingdom bought for you right from the start, and He’ll ask you for your heart above all else. So much to say and not enough time left to say it. Just love the Lord above all else!”
Did you get the box of clothes? If they don’t fit, let me know….I forgot to send you the gift receipt but I can still do that if you need it. As Aunt Charlotte said, we are willing and ready to do whatever it is you need. Don’t be hesitant to ask.
All my love,
Amy Kennedy
Escalon, CA
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MONDAY, OCTOBER 22, 2007 09:56 PM, CDT
loves:
i know we haven’t talked in a long time, and i don’t even really remember how i came across this website… myspace probably. but i wanted you to know that i’ve found myself entranced by your honesty and thoughts and charley’s faithful fatherhood. very few of us can begin to imagine what you’re feeling, but you have a Lord that loves you, and by the guestbook turnout, many other people’s love as well. you are doing a GREAT job. you’re handeling things better then a lot of new parents that i’ve seen…take pride in that, and have faith that God loves your daughter more then you could ever imagine loving her. He did not create her to watch her fail. and she’s beautiful…and with parents like you she’ll have the confidence to believe that about herself as well.
amanda jimison amanda.jimison@hotmail.com
San Francisco, CA
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MONDAY, OCTOBER 22, 2007 04:26 PM, CDT
Lexi, Charley and Laelia,
You don’t know me, but I know you through your wonderful Aunt Linda. I work with your aunt. I have read your journal and guestbook from day 1. My heart is filled with emotion with every entry that I read. The secretaries here at our office have a weekly prayer group, and Laelia and both of you are our first prayer. I have also sent out to my prayer warriors friends at church and bible study, and they are praying for you also.
I can’t even imagine what you are going thru. My oldest son became temporarily paralysised at the age of 2, and we had him in the hospital for a couple of weeks and I know as a parent you really have to stay on top of everything. No one is watching out for your baby, except you. To the insurance company, you are just a number.
My youngest son (who’s 23) has been sick for the last year and a half, and it’s only because him and I really stayed on top of things and insisted on tests and lab work, that we have gotten things taken care of. Again, he is just a number to Kaiser.
I am so uplifted to read you and Charley’s entries. You are both so open and honest, and I know that God gave you this baby girl because of your love. I can tell from the entries and from talking to your Aunt Linda, that you are two wonderful young people and you care so much for each other and for the Lord.
If you need anything, please let your Aunt Linda what our prayer group can do for you. I know we are way up here in Stockton, but we can reach out and help, even in a small way. We will continue to pray for all of you, as you go thru the next days, weeks and months. I am sure this is going to be emotional this week as you finally get her in to the specialists and therapists. Know that we are here and your wonderful family and friends are all there for you.
Denise Albarran daalbarran@yahoo.com
Stockton, CA
United States
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MONDAY, OCTOBER 22, 2007 11:45 AM, CDT
Alexis,
Breastfeeding is exhausting even under the best circumstances. Hang in there but don’t beat yourself up if you decide not to do it as long as you thought you would.
Sheri Record
Spanish Fork, UT
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SUNDAY, OCTOBER 21, 2007 05:22 PM, CDT
Hi Charley, Alexis and Laelia:
I have been reading your journal, and I’ve got to say, I’m hooked. Your honesty, insight and humor make compelling reading, as well as speaking to my heart. I agree with the others that say Laelia is a fortunate little girl to be entrusted to the care of such loving, caring parents. Yes, they are not perfect, and do seem to have some of those normal doubts and frailties so common to us mortals that don’t live on Mount Olympus, which includes just about all of us. ( Fictional characters like Highlights for Children’s ‘Gallant’ or Little Lord Fauntleroy do not count here)
What is also apparent is your love for each other. Armed with this and your faith in God, you will ‘keep on keeping on’ to the best of your ability just like the rest of us. After all, lets face it, what other choice do we have? And those of us who love you will be following your journey and living it right along with you.
Aunt Kathy
Kathy McDonald mcdonald.jk@frontiernet.net
Carlin, NV
United States
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SUNDAY, OCTOBER 21, 2007 12:10 AM, CDT
Dear Charles, Alexis and Laelia Sky- I feel so priveldged that I was able to come down and visit Laelia during her first hours of life. It is wonderful to see the beautiful little girl that God has blessed you with. She is an amazing little fighter and I know God has great things in store for her life. He has hand picked you as her parents because He knew you could handle this challenge and that you were the best choice for her. I appreciate your honesty in sharing the journal; please know that Rodney and I are praying for you and we hope to see you soon! Love to you all.
Tammi Dyrud tiggerphan@cox.net
El Cajon, CA
United States
SATURDAY, OCTOBER 20, 2007 12:27 PM, CDT
Dear Lexi & Charlie – I’m just figuring how to put a message on here. As you know, I’m computer illiterate!! Please know that there are 18 ladies in my Ladies’ Bible Study that are praying for you three!! And that Ben and I care very much. Charlie – you make me laugh! I’m so glad you are part of our family, and there for Lexi. Lexi, I’m praying that God will make you tough like your Mom was!! You will both be great advocates for Laelia!! Please know I’m only an airplane ride away – we will help you in anyway we can, but you have to let us know!! Give a holler!! Don’t be afraid to ask!!! Aunt Charlotte
Ben Haley haley105@aol.com
San Jose, CA
United States
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FRIDAY, OCTOBER 19, 2007 05:53 PM, CDT
you wrote: ‘I want her to feel attractive.’ in your blog.
I think you have a beautiful baby (truly, she is a pretty little girl and not all are…) and I don’t think you’ll have to worry about her feeling attractive.
There are a lot of fears and worries that go along with being a new parent (even a second and third time parent! lol)…and even when we know better, we still worry
Even parents of the most worry-free text-book easy babies still worry. But you and your husband seem to be supporting eachother really well. Your baby is very lucky to have such wonderful parents!
Sydney Guzman-Wynants
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FRIDAY, OCTOBER 19, 2007 05:16 PM, CDT
I just want you to know how much I love you and pray for you and your family.
Jason Record
Spanish Fork, UT
United States
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FRIDAY, OCTOBER 19, 2007 04:32 PM, CDT
Lexi… 35 pounds in just two weeks!!! I would be nothing but jealous if I didn’t know that the dark valley through which you are now passing was much of the reason. Still…
I love that Charley is working so hard at trying to guide you back toward that “normal” life you want so badly to have back. He sounds like such a wonderful husband and father. I’m sure that his stoicism will help to keep you from shattering into a million little shards. Right now you two are the only ones who can really understand what Laelia’s birth means in your lives, and it’s not even a little bit surprising that your feelings and hopes and fears careen from one end of the spectrum to the other. You’re doing just fine.
Try not to beat yourself up just because you can actually see how difficult the coming years will be. You’re working through what it will take to be the very best mom that you can be for LB. Look how many adaptations you’ve already made, and it’s hardly been any time at all since all of this has come knocking at your door. I can’t even conceive of how much effort it would take to just get out of bed once in awhile right now. That you’re able to truly think — or even have nightmares — about how you can best parent LB while you’re still adjusting is just the most amazing thing.
Like so many others, though, I wish that I could shoulder just a little bit of your burden. I have no such strength, but the Lord does.
Love, “the other Auntie Linda”
Linda Record
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FRIDAY, OCTOBER 19, 2007 04:23 PM, CDT
I enjoy reading your words. I would love to see more pictures of you and the baby. I wish I lived in your area so I could offer help. It sounds like you have a wonderful husband. Be sure you are getting the rest you need. The baby needs you to be strong. Thanks for keeping us all informed. Annita
Annita Sibert
Aptos, CA
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FRIDAY, OCTOBER 19, 2007 12:17 PM, CDT
Hi. It’s me again. Just wanted to share with you the words to one of our favorite songs. Jason often would sing this to our two youngest boys when they had a hard time falling asleep so my ten year old and my four year old both have it memorized. Wish I could send the music with it. Words mean so much more when they are put to music.
‘Where can I turn for peace? Where is my solace
When other sources cease to make me whole?
When with a wounded heart, anger or malice,
I draw myself apart, Searching my soul?’
Where, when my aching grows, Where when I languish,
Where, in my need to know, Where can I run?
Where is the quiet hand to calm my anguish?
Who, who can understand? He only one.
He answers privately, Reaches my reaching
In my Gethsemane, Savior and Friend.
Gentle the peace He finds for my beseeching.
Constant he is and kind, love without end.’
When my four year old, Eric, was two we were at the grocery store one day. As he sat in the cart he started to sing out these words with all his heart and in full two year old volume. The lady standing next to me in the isle looked over at him with a smile on her face and moist eyes and said ‘that’s a great song!’
How grateful I am for men, like my husband and yours, who teach their children to know God.
Sheri Record
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FRIDAY, OCTOBER 19, 2007 12:09 PM, CDT
Hi, I’m Suzanne, Keri’s mom (Oct. 17 entry) who is a friend of Rachel. I volunteer at Children’s San Diego in the NICU. It is both a complete joy to be there but also sad to be with the little sweeties that go through so much in the first few weeks and months of their lives. I’m rooting for all three of you and know you will be able to somehow cope as Laelia does more than squeeze your fingers, smiles right into your eyes and has her first laugh. Unfortunately the paperwork, secretarial, red-tape end of Children’s and any hospital for that matter, is the worst, but when you wade past that and some of the cooler ‘bedside manners’ and get to the real behind the scenes doctors, nurses, therapists and hundreds of loving volunteers there, things will seem a whole lot better. Keep fighting the system for Laelia, never give up because there are people out there who will help her grow strong and will give her their all–you just have to hunt them down!
You are in our prayers, and give beautiful little Laelia a snuggle & kiss in the neck for me–my favorite baby spot! Love, Suzanne
Suzanne Cuppage scuppage@cox.net
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FRIDAY, OCTOBER 19, 2007 11:42 AM, CDT
My Dear Lexi,
I wish you were 5 and I could just pick you up and kiss away your hurt. I just cried through your journal entry. There are no words that seem right, but I do want to assure you that your feelings are okay and I’m so glad you are able to express them. I just wish you hadn’t inherited your mom’s ability to write so well so that I wouldn’t hurt so much when I read them! Between you and me, I don’t think Charlie is past any of these feelings – he is just walking through this time with you being the best husband and father he can be and he’s doing a fabulous job! And I imagine Laelia will be looking for someone just like him when she grows up. I like this little poem, and in fact when I was just barely on the other side of some crummy stuff in my life, Charlotte sent this to me, and I now pass it on to you.
I was regretting the past and fearing the future. Suddenly my Lord was speaking: “My Name is I AM.” He paused. I waited. He continued, “When you live in the past with its mistakes and regrets, it is hard. My name is not I WAS. When you live in the future, with its problems and fears, it is hard. My Name is not I WILL BE. When you live in this moment, it is not hard. I am here. My names is I AM.”
I know this is the hardest thing you’ve ever been asked to do and certainly harder than anything I’ve ever been asked to do. I pray for you daily – many times a day. And so many of my friends are praying for you. Your Lord is there beside you. Let Him guide you, comfort you, hold you and carry you – one day at a time. He is the Good Shepherd and also the Gentle Shepherd.
And when your family is asleep on the couch and you want to talk to someone, please call me – any time of the day or night.
I love you so very much. Auntie Linda
Linda Wheeler
Ripon, CA
United States
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FRIDAY, OCTOBER 19, 2007 10:56 AM, CDT
Dear Alexis,
I just read your words from this morning. My heart goes out to you. I’ve experienced the same kind of emotions in the past ( they still come back from time to time ) so I know what I’m talking about when I say don’t live in the future get away from it as soon as you can and come back to the present and stay there as much as possible.
Stay close to God and he will guide you and strengthen your heart so that you and your precious daughter will be able to endure more than you ever thought either of you could endure.
There is a purpose in even the worst suffering that comes about in this world. Remember that Jesus Christ suffered all and when he was in the garden he not only took on the sins of the world but he felt our pains as well. God is the only one who knows perfectly what you are going through. I trust he will guide you through the times when you feel down and want to panic about your child’s future. It will take time; don’t expect to get strong all at once. It’s o.k. to bounce back and forth as long as you start to learn to not spend as much time in worry mode. You being in worry mode doesn’t help any of you to deal with things so do lots of praying and take time every day to listen to uplifting music. I’ve found that music that expresses our Savior’s love for us is the most comforting to me.
Ten years down the road my own child’s life is getting better in ways I know have come about by us trusting God and teaching him how much he is loved by us and especially how much God loves him.
Sheri Record
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THURSDAY, OCTOBER 18, 2007 07:20 PM, CDT
Shroud, Bev, & Laelia… .:hug:.
Joel K. here,
Ok, let me get out of the way, that I feel like a Heel for not getting on here sooner. I was visiting my parents in PA for my b-day (Oct. 2)… blah, blah, blah… Although had I gotten here earlier, I don’t know that I would’ve been in very good shape, waiting to find out what all was going on… at least this way I can be glad that you are starting to return to your previous emotional states, and can pray for continued encouragement. The Oct. 17th’s entry from Charley was the first out of all the rest that had any semblance of that ol’ humor I’m used to reading. (yeah, I stopped work @~4:27 just to read ‘em all)
Alexis… I’ve probably been sitting here for 20 min. trying to figure out how to tell you that I will never be able to fathom what you (especially) are going through. …So I guess that’s it then. I don’t have any words, y’know. But ‘Lisa from church’ on SUNDAY, OCTOBER 14, 2007 08:54 PM, CDT had some Great stuff, I thought. You can go back and re-read hers just as often as you like, in place of what was not said here. I won’t feel a bit bad.
Laelia… if you read this when you’re older, you’re probably reading it on your iPhone corneal implant… Dearheart, know that your parents have loved you from the very start, and have probably hurt just as much emotionally over the years, as you have physically. I hope and pray that you take the time, and opportunities to bless them, and show the rest of the world things that no one could imagine possible… -Amen.
.:still hugging:.
Joel Kreider
Longview, TX
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THURSDAY, OCTOBER 18, 2007 10:23 AM, CDT
Hugs to all! Just dropped by today to get a much needed update on Laelia and found myself laughing out loud while weeping.
Charley and Lexi, reading your messages is so inspiring. It is so evident that God’s immense love (as well as the goodness of all of your terrific friends and family) is helping to support you through these difficult days, as it will throughout your lives.
If Laelia is blessed to adopt even part of your quirky approach to life, she will be a star wherever life takes her.
Keep up the good work, and I’ll continue to pray for the comfort and healing of your hearts and spirits, even if it may not be possible to convince God to fully heal Laelia’s body.
Love from the other “Auntie Linda”.
Linda Record
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WEDNESDAY, OCTOBER 17, 2007 11:29 PM, CDT
Is it just me or are the kids on the amcsupport.org link some of the happiest kids you have ever seen or what? I just know Laelia will have a wonderful smile and a sense of humor. Charles, you are soo funny. Thank you for helping us laugh too. I know that is something both of your sweet girls need and love. Joy!
Brenda Powell
National City, CA
United States
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WEDNESDAY, OCTOBER 17, 2007 05:51 PM, CDT
Hi you three,
Last night when I was praying for you God gave me a verse that I think He wants you to check out, Plil. 4:19.
Love and hugs, Shirley
Shirley Hale squirrleyh@sbcglobal.net
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WEDNESDAY, OCTOBER 17, 2007 10:56 AM, CDT
I’m a friend of Rachel Morales, and I have three daughters (10, 11, 16) I’m very willing to help out with anything you need. You can get my phone number from Rachel or email me. My mom volunteers at Childrens hospital and is also available if needed. It’s tough having babies, adjusting to their needs and trying to find time for yourself, or friends. Please don’t hesitate to call. I’m also raising some donations from friends, family, and churches to help out with the list of needs you’ve asked for. I’m so glad you are feeling better…and I’m sure glad you are reading!!!
Love,
Keri
Keri Hayes
El Cajon, CA
United States
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WEDNESDAY, OCTOBER 17, 2007 09:42 AM, CDT
Alexis,
I am so glad to hear you are starting to feel better! I’m also glad that you have an entire support system there for you! I have tons I’d like to talk to you about…..See you soon!
rachel morales
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WEDNESDAY, OCTOBER 17, 2007 09:38 AM, CDT
I am so delighted to hear Laelia talk about how wonderful her parents are because it is so true! I think you are the luckiest baby alive because of your great parents. I will make sure to give your mom some more romance books to read to you because I’ve bought at least 5 new ones.
I Love You!
rachel morales
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TUESDAY, OCTOBER 16, 2007 04:37 PM, CDT
Hello Charles and Alexis and Laelia,
Congratulations on the birth of a beautiful baby girl! I was so sorry to hear about her arthrogryposis and the struggles you have been going through, but it sounds like Laelia could not have been born to any better parents. I have to say that I think you are two of the bravest people I’ve ever come across. I will keep you all in my prayers.
–Kristina Crawley
(TLN Sports)
Kristina Crawley
Carlsbad, CA
United States
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TUESDAY, OCTOBER 16, 2007 03:45 PM, CDT
Congratulations on the birth of your daughter, Laelia. What can I say? The Universe has a plan for all of us, even if its a brief moment in time. Laelia is a star that will shine brighter than all of ours put together. She has a purpose for being here and I can bet my life why. She is beautiful and along with time and love, her beauty will shine within and without. You are truly blessed because you and Charlie will be the ones to help her star to shine the brightest. Do not dispair, my friend. Love will guide you and show you the way. I truly believe that and I hope you do too.
Love always to your family
Monique
Monique Barbour m_barbour77@hotmail.com
Vista, CA
United States
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MONDAY, OCTOBER 15, 2007 11:00 PM, CDT
Shroud, Alexis, and Laelia,
My thoughts and prayers are with you guys! I wish I could give you a huge hug right now… I have no other words. Your daughter is beautiful, and I really hope that I get to meet her personally someday sooner than later!
God’s peace to you…
Becky Casselberry
Denver, CO
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MONDAY, OCTOBER 15, 2007 10:31 PM, CDT
Hi Al and Charley,
Little Laelie Sky is beautiful and I love her name. Does it have a special meaning? Every Tuesday morning six of us ladies meet at the church to pray for needs of the church family. You may be living down south, but you will always be considered part of our family and we will be praying for each of you. I will check this page often so we can pray with wisdom of current needs and situations. The notes that you have written give great insight into your hearts. The only words of wisdom that I have, you already know. But it is comforting to know that God has a special purpose and that He never makes a mistake. He will carry both of you and little Laelie.
We will pray! Love and hugs, Jim and Shirley
Shirley Hale
El Dorado Hills, CA
United States
MONDAY, OCTOBER 15, 2007 01:26 PM, CDT
Hello Alexis and Charley, Dawn here from TLN.. I hope you are sleeping well. Everytime I call you getting a few zzzzss. I will be calling you this weekend to see how things are going and to stop by. Don’t forget my invitation still stands any time you 2 need a break call me, I’m yours. God is good all the time. And is always watching over you.
Dawn Contreras
San Diego, CA
United States
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MONDAY, OCTOBER 15, 2007 01:11 PM, CDT
You all don’t know me but I heard about this through Emily Conley/Thompson. While this is one of those situations where in a human perspective it seems to make no sense, it is a comfort to know that nothing takes God by surprise. My youngest sister Kara was also born with Arthrogryposis. At the time of her birth my family asked many of the same questions you are probably asking now. I was only 6 yrs old at the time but I remember the feeling of helplessness watching my little sister have to go through therapy at such a young age. Though it was a painful process to watch, it didn’t take long for my family to realize what a wonderful gift the Lord had given us. I know for a fact that my family is closer to each other and to the Lord because of Kara. As she grew older there was still pain, still frustration, but it was quickly overshadowed by the joy the Lord provided. Today Kara is one of my best friends. She is 19 yrs old and studying pre-med at a Christian college. She still has many physical limitations but she doesn’t let that stop her from using her gifts for the Lord. God has been in the business of planning lives for long time. I hope this note is an encouragement to you.
Kevin Schmidt
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MONDAY, OCTOBER 15, 2007 11:49 AM, CDT
I am praying every day for God’s little miracles to happen. Laelia is blessed to have parents like you 2.
Dawn Contreras
Dawn Contreras
San Diego, CA
United States
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MONDAY, OCTOBER 15, 2007 11:38 AM, CDT
Good morning-
You all don’t know me, I was introduced to your family via your web-site by my dearest and best friend, Amy Kennedy. For several days, I have made every attempt, to send you a message, but I just didn’t know what to say, and still don’t, really. Viewing your daughter’s photos brings a smile to my day, you see, it’s easy for me to see beyond it all and just enjoy the beauty of your little angel. Upon being notified of her birth, I felt an overwhelming feeling of sharing it with all my family and friends and to my surprise, they ALL responded with well wishes and prayers. Some of them got their entire congregations to pray for Laelia and her parents. The power of the internet is phenomenal! Laelia, will be your hero and bring you both and abundance of joy. As tears run down my face, I’m reminded how fortunate you both are to be able to experience the love of a daughter. Daddy, you will be an awesome role model, I enjoy reading your positive messages. Mommy, I don’t even know you, and yet I’m so proud to know of you. For breast feeding assistance of any kind, contact the http://www.pumpstation.com , although, located in Santa Monica, I recommend them highly. They have been in business for over 20 years and they can assist with making breastfeeding a beautiful, peaceful experience. My prayers are with you all.
Mileni Tung thetungs@austin.rr.com
Round Rock, TX
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SUNDAY, OCTOBER 14, 2007 09:25 PM, CDT
Al, Charlie, & Laelia – you are all on my heart and in my prayers. Laelia, you have some very special parents. And God has a pretty amazing purpose for your precious little life. Know you’re all in His everlasting arms.
Bethany Heynen
Illinois Valley, OR
November 17th, 2007 at 11:15 pm
SUNDAY, OCTOBER 14, 2007 08:54 PM, CDT
Hi, it’s Lisa from church. (I’m the one who told you all about my husband Jim’s cat allergies the first time we met …smile)
Congratulations on the birth of your beautiful daughter! Laelia looks just like her mommy! I can’t wait to hold her! I have been praying for all 3 of you ever since the morning of the C-section. I was heartbroken when I first heard of her condition. I asked God “why?? They are a beautiful young couple…this is their first daughter….why do they have to go through this? Why can’t their baby be normal and healthy why does she have to be in pain? This isn’t fair….” Then I remembered that nothing that happens in our life is a surprise to God…it may be to us but it isn’t to God. I took comfort in that.
Then I began to worry about Alexis. I remember how difficult it is to adjust to a newborn. (Remember I’ve had 4 babies in less than 5 years). My first daughter was allergic to cows milk and we didn’t know it for 2 months. I was nursing her but she was getting the cows milk I was eating through my breast milk and it was making her intestines bleed. She would scream in pain for hours and nothing we would do would console her. I would cry because she was crying and I couldn’t console her. Then I was having major problems with breastfeeding. She was latching on wrong and I began to fear trying to nurse her…so it would take me up to 40 minutes to manage to get her on and nursing. She would be hungry and crying and I’d be crying because I couldn’t get her latched on to nurse. I would be in so much pain the whole time….it was awful. I would panic every time she cried because I didn’t know what to do or what was wrong with her and nursing was so difficult. Then I was getting no sleep. I would get her to sleep and lay her down then I’d fall asleep and 15 minutes later she would be screaming and I’d have to get up with her again. I dreaded trying to sleep because I was worried about her and wanted to stay awake and watch her sleep, and then I became resentful that I couldn’t sleep and I would struggle between those varying emotions. I just want Alexis to know that every thing she is feeling is normal. I can completely relate to all of the emotions you have written about. Even without Laelia’s condition it is difficult to have a new baby and heal and adjust to taking care of a baby and learning how to be a mom.
I have been praying that God would keep you and Charley close to each other and to him. I pray that you will lean on him, letting God be your strong tower and your strength. I pray that Laelia will be healed in a miraculous way. I pray that Alexis will heal from her surgery and get some rest. I pray that God will send angels to comfort and guide you in your new journey as parents of such a special little girl. I pray that God will use you to encourage other families going through similar situations. I pray that God will give you peace and show you all of the good that will come from this (All things work together for the good of those who have been called according to his purpose). I pray that God will show me what I can do to help. I pray that little Laelia will accept Jesus and share his love with everyone she meets. I pray that God will use her to do mighty things for his Kingdom.
I am so thankful that you have created this website to share with all of us. It has been a blessing to me. It brings me much peace to be able to see Laelia’s sweet pictures and to read your blogs and to understand her condition by reading those links. I already feel so much love towards Laelia and I haven’t even met her yet.
Alexis I can already tell you are a wonderful mom. You have the most blessed daughter in the world to have you as her mom. It is amazing how much love you feel toward her and how in tune with her needs you are.
Charley, you are an amazing husband and father. You are a Godly man and your sweet little Laelia is so blessed to have you for her daddy. Stay close to God and take good care of Alexis and Laelia!
I want you to know that I am always here to pray for you. If you have any prayer requests just e-mail them to me anytime. If you need advise please e-mail or call I do have some experience with babies (remember 4 babies in less than 5 years) J I’ll keep praying for all 3 of you daily!
Love your sister in Christ,
Lisa Steinkoetter
Lisa Steinkoetter jimnlisastein@yahoo.com
San Diego, CA
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SUNDAY, OCTOBER 14, 2007 05:26 PM, CDT
Dear Lexi and Charlie,
I’m so touched as I read your words and feel your faith in spite of your fears. I understand your feelings Lexi. When you’re a mother of a child who happens to have a disability (whether it’s physical, mental, or emotional) you tend to experience a roller coaster of emotions over the years. You wonder about what kind of pain (physical or emotional) they will have to endure through their life and you wonder if your own heart will be strong enough to endure watching it. In your mind you may know it was not your fault but you can’t help but feel guilt and wonder if somehow you were better in some way this child would somehow have it better. There are no answers but to trust in our Savior Jesus Christ and feel the peace that trust has to offer.
I love what you have written Charley. I don’t know you personally but from your words I can tell that you will be a great strength to your wife and aid in her healing process as my own dear husband (Lexi’s cousin Jason) has done for me.
This is a tough journey you are on. My heart and prayers are with you. And thank you for sharing your life and example with us.
Sheri Record
Spanish Fork, UT
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SUNDAY, OCTOBER 14, 2007 01:42 PM, CDT
Dear Alexis, Charley and Laelia,
Your little girl is so precious and adorable! I would love to hug and hold her.
I know you and Charley will be great parents to her. You both are very special people and she’s very lucky to have you both.
Also wanted to let you know that I would be more than happy to come and help out with the housecleaning and anything you need me to assist you with. I can bring dinner for you guys as well. Alexis, remember you need to eat, drink and take your vitamins!!! It’s very important!! I can also sit with Laelia so you can nap or do whatever you need to do. I’m available anytime after work and on the weekends. Just let me know when. ok? Don’t be shy to ask.
Love to you all, Carolyn
Carolyn Hemmerly
San Diego, CA
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SUNDAY, OCTOBER 14, 2007 04:07 AM, CDT
dear laelia, al and charlie,
wow, i wish so much i could be in the states right now!! it’s moments like these where distance just has to be so confounded inconvenient! but love transcends distance, and so does prayer, so though i can’t be with you in body, know that my love and prayers are right there. and they will continue to be right there. i love you three so much, even the little one i haven’t met, and–Lord willing–will be seeing you next summer. and although from a distance, if there is anything i can do to help, please let me know. i love you all dearly, and send this with a big hug! your friend and sis, erin
erin plaxton
Palau
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SUNDAY, OCTOBER 14, 2007 12:47 AM, CDT
Oh, oh, I wanna help! I can’t wait till I get home so I can do more for you guys than just pray. (not that that’s not important!) But I’d love to stay with you while Charley runs errands, Alexis. Or play with Laelia for a while to give you a break, I might even have a skirt or two you could have… and if you’ll send me your email address I’ll remind you to take your vitamins etc. I love you guys! Ten days and I’ll be back in San Diego and looking forward to visiting and giving each of you a big hug!
Lauren Frehafer lauren.frehafer@gmail.com
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SATURDAY, OCTOBER 13, 2007 07:33 PM, CDT
Precious little Laelia, what a beautiful name you have. I believe God has chose the most perfect parents for you. They love you so very much and I am amazed at how we are all falling in love with you to sweet one. You are an incredible little girl. I looked up your name and was so blown away that Laelia is the name of one of the most beautiful orchids in the world and actually the name Laelia come from the root word “curly” for the orchids curly edges. I believe God gave your parents your name because He knew of your “curly” limbs before time began. Your beautiful story written in this blog is opening up our hearts and eyes to His tremeoundous love. I cannot wait to hold you and smell your sweet little baby head.
Brenda Powell
National City, CA
United States
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SATURDAY, OCTOBER 13, 2007 02:30 PM, CDT
Dear Charlie & Al,
We are praying that God will continue to reveal Himself to you as you “do not let kindness and truth leave you; bind them around your neck, wirte them on the tablet of your heart, so you will find favor and good repute in the sight of God and man. Trust in the Lord with all your heart and do not lean on your own understanding, in all your ways acknowledge Him, and He will make your paths straight. Do not be wise in your own eyes, fear the Lord and turn away form evil. It will be healing to your body and refreshment to your bones” (Proverbs 3:3-8) NASV.
We love you three and are praying for you! Call if you need to talk. xoxo Ps 139
Glen and Linda Cain
Rescue, CA
United States
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SATURDAY, OCTOBER 13, 2007 12:15 PM, CDT
Hello Alexis and Charles,
It’s Beth Francis. We had been communicating a bit before your delivery, but I confess I do not really know you. Actually, 2 weeks ago, I did not even know your names. Now, I think of you every hour and pray for your family so much. Alexis, I just wanted to tell you to try to be kind to yourself. Your body has just spent 9 months ramping up for the growth and delivery of this baby. You had a cesarean section too. You are nursing your child. You are going through so much in the healing of your body. Your hormones are Whack! I remember after the birth of my first child, I was so disappointed in how hard EVERYTHING was and I did not have any additional problems to deal with. The more I think of you and read your blog, I think you are both amazing, honest and funny people. And while it seems that you have been given MUCH to bear, you are actually “chosen among men” to have Laelia entrusted to your care and love. I wholeheartedly believe that you will see miracles and lives changes as a result of your daughter. I look forward to seeing you soon.
Beth Francis
San Diego, CA
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FRIDAY, OCTOBER 12, 2007 06:42 PM, CDT
All my love to you both. She’s beautiful. Lisa,I and all of us are here for you and yours. If you need anything call 530-826-3014
jesse ewing pajesse01@yahoo.com
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FRIDAY, OCTOBER 12, 2007 06:37 PM, CDT
Oh how I wish I could just hold the three of you. God is big enough for all of your questions. Pour your heart out to Him. He promises to be near to the brokenhearted and a very prsent help in times of trouble. I wish I could fast forward your life and allow you to see all the “good” He has planned for you and Laelia. I believe that with all my heart. I love you soooooo much. Auntie Linda
Linda Wheeler
Ripon, CA
United States
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FRIDAY, OCTOBER 12, 2007 05:54 PM, CDT
Dear Ones: This is your computer challenged auntie who finally got lucky and clicked the right buttons to be able to write you and tell you how amazingly overwhelmed and inadequate I feel to be able to express to you my joy at the birth of your daughter and my sadness at what you are all going through. Two things came to mind and one was a book that I read called Maura’s Angel where a guardian angel comes to help a girl who is going through a lot and has to take care of her older mentally challenged sister. She makes a comment to her angel about her sister not being too bright and the angel looks at her without comprehension and says “What do you mean…her soul is VERY bright.” It makes me think of the fact that God sees us on the inside as we really are, whereas man sees only on the outside. And in God’s eyes your little girl is PERFECTION! And the other thing I thought of is that God promises not to give us more that we are able to bear (I have reminded Him of that many times!). I am in awe to imagine how much God must think of you two to entrust His Precious Little Girl to your care. It is also awesome to see how many people love you all over the world. Thank you for trusting us with your hearts’ expressions. We are here for you and will “pray without ceasing”. We love you so much! Auntie Francie and Uncle Neil
Francie Johnson
San Luis Obispo, CA
United States
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FRIDAY, OCTOBER 12, 2007 05:13 PM, CDT
And while we are praying for Laelia — let’s not forget to pray that she will have a tender heart towards the Lord…that she will learn at an early age what it means to ask Christ to forgive her sin…and that she will grow to be a godly young woman who would make any godly young man proud to have her for his wife.
Charilyn Damigo
San Jose, CA
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FRIDAY, OCTOBER 12, 2007 01:44 PM, CDT
Dear Lexi and Charley,
There is little we can say at this time that would alleviate your grief. Please know that our thoughts and prayers are with you. As always, please let us know if we can be of help.
Norm and Evelyn Greenfield
1 Cor 10:13 (I know that you have already heard and thought this, but its good to be reminded)
Norm Greenfield
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FRIDAY, OCTOBER 12, 2007 01:20 PM, CDT
hi. i just wanted to pass along some of the things my friends have been saying. firstly, many, many of them are praying for you laelia, for you alexis and charley, and for me (my roommate lindsay specifically emailed to let me know she is praying). next, my friend becky (you met her at our core group meeting) told me that laelia is absolutely beautiful before i even got to see the pictures. also, friend stephanie (you met her too) said that she is sure laelia is your child, charley and alexis, because you will be the perfect parents for her and other people would not be able to take care of a child with her hurts. i don’t know if it makes sense the way i’ve said it really, but it is a high compliment to your quality as people and as new parents. and a certainty that you will make it through something in which others would have failed. (boy is my english crappy at this moment.) and may i just reiterate: many many are praying. friends from camp, friends at school, praying praying praying. finally, know if it will help that i am with you in grief, perhaps more than i would like to let on. and i am praying too, a lot. thank you for your transparency about what is going on and how you are doing. i love you all so much. i love you charley. i love you alexis. i love you laelia. i will see you in about a week…
linda
linda wesley
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FRIDAY, OCTOBER 12, 2007 01:19 PM, CDT
Good morning Lexi and Charley! Baby Bear will get the care she needs because you are Mama and Papa Bear and will not have it any other way! When I was going to doctor’s appointments with Jennie and Job I told everyone it was like traveling with Mama and Papa Bear! People will scatter to please you! Sending you another hug for today and all my love. Auntie Linda
Linda Wheeler
Ripon, CA
United States
FRIDAY, OCTOBER 12, 2007 12:28 PM, CDT
You have a beautiful daughter, she is a miracle of the Lord, and a blessing to you. It must be wonderful to hold her and kiss her. I would give everything to have my son here with me, like you have your daugther. God will grant her healing through his caring love. Seek advice about her therapy somewhere else, and remember we are praying for you guys here at Crossroads of Life, Duncanville TX.
carmen Ruiz
Dallas, TX
United States
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FRIDAY, OCTOBER 12, 2007 10:22 AM, CDT
She is beautiful! Congratulations, you will have so much joy with this little girl. May God Bless you, Rachel
Rachel Desany
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FRIDAY, OCTOBER 12, 2007 10:01 AM, CDT
Dear Charley & Alexis,
I wish I knew how to say everything I’m thinking and feeling for you all. Congratulations are definitely in order for your precious, beautiful little girl (with a lovely name to match!), but I understand how bittersweet and heartbreaking this time must be for you too. When Natalie was in the NICU after birth, I never really processed my emotions or talked to anyone about what we were going through. I suppose I was afraid of coming across as abnormal or psychotic (I was convinced I was the only new mom ever in history to burst into tears when leaving my baby alone in the hospital). That said, I’m proud of you both for sharing your experience and letting us celebrate and cry and pray with you. I feel for you so much, Alexis, and I hope you realize you’re the best mommy in the world for Laelia! She’s so blessed to have parents who love her unconditionally and fight for her and learn how to be strong in new ways every day.
You’re in our prayers.
Bethany Bassett
Italy
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FRIDAY, OCTOBER 12, 2007 02:25 AM, CDT
Hi Charley and Alexis! Megan just sent me the link to your blog. I cried and laughed my way through your journal entries. Alexis, you are amazing. You continue to be hilarious even through your mixed up emotions. I love that! Charley, I love your perspective on Laelia’s disability. It’s true, the condition of her soul is more important than the condition of her body, which can only improve from here! I can’t wait till I get back to San Diego and can meet the little one myself; I’ll be praying for you all.
Lauren Frehafer
Bucharest
Romania
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FRIDAY, OCTOBER 12, 2007 01:17 AM, CDT
Charles, Alexis, and Laelia, you are all in my prayers.
justin bajema
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THURSDAY, OCTOBER 11, 2007 11:56 PM, CDT
Charley & Alexis~
Ben and I are praying for your new family life. Cherish every minute, they grow so fast. I love how you’ve chosen to share with everyone, I know it’ll make question & answer sessions shorter & fewer misunderstandings. We can’t wait to meet her and watch her grow! God Bless!
Ben & Debbie Graham
Debbie Graham debbeng1@juno.com
San Diego, CA
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THURSDAY, OCTOBER 11, 2007 10:35 PM, CDT
Just wanted to say congratulations on the birth of your precious baby girl. She is beautiful and such a blessing from God. Isn’t it amazing to look at her and realize that she is a product of you and Charley’s love for one another. I hope that God blesses all of you and pray that she will know God’s will for her life and how lucky she is to have you both as parents!!
Patty Johnson
San Diego, CA
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THURSDAY, OCTOBER 11, 2007 10:29 PM, CDT
Hi guys. Just finished reading your new jounral entries from today. I’m sitting here with tears running down my face as I read Lexi’s entry about Laelia squeezing her thumb. What a precious moment. How exciting to feel Laelia reaching out to you!!!!Thank you God for those moments that we will never forget. I pray that there will be MANY more moments just like that – that will encourage you through each new step. Give her a squeeze and a kiss good-night from us. All my love!
Amy Kennedy
Escalon, CA
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THURSDAY, OCTOBER 11, 2007 10:24 PM, CDT
She’s beautiful!
Parenthood is the most amazing experience in the world. Congratulations!
We hope that all goes well for all of you.
With love,
Japheth, Krista and Javan
Japheth Olson japhetholson@gmail.com
Longview, TX
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THURSDAY, OCTOBER 11, 2007 10:19 PM, CDT
Charley and Al,
I love both of you. There are no words to describe what I want to say; how I want to comfort you. You are not alone. I will always be there for you, in thought and in prayer.
I know that Laelia will grow up with two wonderful parents. She will be loved as no other child will be loved. Her spirit will be fed by your care and devotion to her and to God.
May He grant you as abundantly with strength as He has already blessed you with love,
Chris
Chris Ewing
Minot AFB, ND
United States
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THURSDAY, OCTOBER 11, 2007 05:28 PM, CDT
I admire you so much for the dedication you are showing this new person. She deserves the best and you are just the people to give it to her. She is truely beautiful and will be a joy to have in your (and our) lives. Know that God is in everything and He can be your support as well as your guide. We all love you and are so willing to do anything you may want or need us to do. We will be praying. Keep us updated.
Wow. You guys are so amazing. Being new parents and keeping up a blog!
Megan Circo
San Diego, CA
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THURSDAY, OCTOBER 11, 2007 04:37 PM, CDT
She is beautiful! I can smell her sweet little head now! And YES, you will be crowned the breast feeding queen of your house! I wanted you to know that Ron was so proud that he still had the “burping baby gift”! You continue to be in our prayers. We love you guys!
Blessings, Rana
Rana Smith
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THURSDAY, OCTOBER 11, 2007 03:07 PM, CDT
wow she’s adorable … so pretty … so precious … I miss babies … really I do … you guys look so cute together and your journals are awesome to read. Great words btw Charley.
Tiffany Fischbach
Sacramento, CA
United States
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THURSDAY, OCTOBER 11, 2007 02:03 PM, CDT
Dear Charley and Alexis,
I am so sad for you, a sadness that draws me into prayer for you.
I won’t tell you that I understand how you feel, because I surely can’t, but I do understand a little. One of my children was born with a small birth defect–no where near as serious as Laelia’s–but it was/is something that it is easy to blame yourself for. Even years later, when one surely knows better, the temptation to feel guilty is still lurking in the background. Or, a temptation to draw a different logical conclusion: if it isn’t my fault, then it must be God’s fault. May God grant you supernatural grace to accept a very hard situation without having to assign blame.
My prayer for you–beyond the obvious need to get sleep, healing, good care, a routine established–is that God will fill you to overflowing with assurances of his love, presence, and work in your three lives.
Linda Simons
TX
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THURSDAY, OCTOBER 11, 2007 01:51 PM, CDT
Hi guys. I have all kinds of friends and extended family asking about you 3 and praying for you daily. One of them sent me the following info. today and I thought – when you are ready – check it out. It’s about a little girl named Abby who had similar hardships to Laelia and about a doctor who helped her through it out of New York. http://www.forabby.com and the hospital name is NYU Hospital for Joint Diseases. The doctors name is Dr. Harold Van Bosse, MD and his info can be found at http://www.med.nyu.edu/people/vanboh01.html Keep signing the journal (both of you) to keep us posted on how everyone is doing and I know it will also help your own sanity to write your feelings out bluntly and honestly so that you can share your burdens with others. Love you guys! GOD is in control.
Amy Kennedy
Escalon, CA
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THURSDAY, OCTOBER 11, 2007 01:24 PM, CDT
Ohhh, she’s SO adorable!! Can I hold her, can I hold her, please!?!?! Okay… you can have a hug too!!!
Kate Morgan
Vista, CA
United States
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THURSDAY, OCTOBER 11, 2007 01:15 PM, CDT
Welcome to the world, Laelia! I know your dad to be a thoughtful, caring, witty, fun-loving, energetic, focused person, who is unafraid of challenges. After reading your mom & dad’s journal, I think your mom has some of those same traits, as well as a very deep caring for you, her daughter. You are a very blessed little girl, to be born to parents who so care and love you, and to a bigger family of relatives and friends who are holding you and your mom and dad up in prayer and thought every day.
Charles, I too know that our bodies are merely “houses” for souls while on earth, and everyone’s “house” looks different, unique. Laelia’s smile will be unique, and her personality will shine. Her physical challenges as she grows and matures will likely be a constant presence, to all of you. I can already tell that through the pain, suffering, worry and exhaustion you are both experiencing, your love for your daughter is deeper than the challenges. You will likely have to go to that well of emotion so many times in the coming days and weeks.
I applaud you for boldly asking for better medical resources than what was first presented. At the other end of earthly life, my father needed an advocate as he dealt with a debilitating disease. Naive me, thought the whole medical world just automatically gave one the best and cared about each person individually. Not so, at least for some. You will need to challenge medicine, look out for Laelia’s best interests even when it seems impossible.
I rejoice in the birth of new life, I cry with your pain and suffering, and most of all I pray that the gracious Lord of all will bring each of you what you need to meet the challenges and find the strength.
My prayers are for all three of you right now…Joy
Joy Wegner
San Diego, CA
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THURSDAY, OCTOBER 11, 2007 12:21 PM, CDT
Wow, I would say that this little girl is already blessed beyond then normal newborn. She has godly parents with a heavenly perspective, a praying church, and a great fellowship of friends. Laelia, the Sky is the limit. You are beautiful and blessed. Thanks for letting me burp you! We love you guys. It’s great to be your pastor.
Ron
Ron Smith
San Diego, CA
United States
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THURSDAY, OCTOBER 11, 2007 11:24 AM, CDT
) Love, Auntie Linda
Thank you for posting the pictures and your “amazing” words Charley. I told you that you guys were amazing and had an amazing little girl. We have an amazing God. (Did I say “amazing”?!!) Sending you love and a hug today! (HUG = Hope, Unconditional Love and Grace) Verse for today = Isaiah 41:10. (Lexi, remember Tim cried for 8 months!!
Linda Wheeler
Ripon, CA
United States
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THURSDAY, OCTOBER 11, 2007 11:09 AM, CDT
Charles and Alexis,
Thanks for being so communicative about what you’re going through. I loved your paragraph about the “diagnosis”; we’re all dying, aren’t we?
Well, as far as I can tell from the little photo, she is cute as a button. And I’ve seen some pretty cute buttons in my time!
God bless you guys. You’re amazing people. May you find the right doctors and the right friends to be his ministers of assistance.
Lynn Swanbom
Spokane, WA
THURSDAY, OCTOBER 11, 2007 10:14 AM, CDT
Praying for all of you.
-Fjord
Curtis Hawthorne
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THURSDAY, OCTOBER 11, 2007 09:31 AM, CDT
My Alexis,
I love you so much and I know I can’t say that enough! I am so delighted that your family, friends and strangers are all supporting you! That is a wonderful gift, because not everyone has that in their life (I’m refering to myself). I’m glad you have a great support system with grandma & grandpa but remember Chris’ parents send their love, and they have lots of love. I’m glad that the comments…especially mine about kicking ppl’s ass’ you give you a hard time….cheered you up!
I’m glad to know that she has started her therapy already and I’m looking forward to hearing about her new, older, and experienced phyiscal therapist. That must have been hard but I’m so proud that you stood up and asked for a different doctor!
I love you all and I can’t wait to see you.
Just remember even though we have no clue why God gives us difficult situations in life He always gives us the strenght and wisdom to get through them plus he usually sends angels your way to help you out
rachel morales
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THURSDAY, OCTOBER 11, 2007 02:10 AM, CDT
I’m praying for you three that God provides strength, comfort, and healing to your beautiful child.
~Schmorg
Geoff Darling
Sachse, TX
United States
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THURSDAY, OCTOBER 11, 2007 01:25 AM, CDT
I don’t know you, my niece sent me this link, but you have a beautiful baby. I am a grandmother of two girls, and my heart goes out to you. Be strong, and most of all take care of yourself. Know that many people are thinking of you and your family.
Annita Sibert
Aptos, CA
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THURSDAY, OCTOBER 11, 2007 12:22 AM, CDT
Laelia, Alexis and Shroud,
Laelia Sky is such a beautiful name! Praying for you in Texas. Thank you so much for writing.
– Ludwhig
Josh Jones
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WEDNESDAY, OCTOBER 10, 2007 11:39 PM, CDT
Missy passed your website onto me, you all will be in my thoughts and prayers as well. I wish I still lived in San Diego so I could offer to be more helpful in person, but if there’s anything I can do for you from Arizona, please just let me know.
Carolyn Allen
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WEDNESDAY, OCTOBER 10, 2007 06:10 PM, CDT
Dear Lexi and Charley,
I am praying and loving you from a distance. Oh how I wish I were closer, but I’m only a phone call (or e-mail) away! I will help in any way possible – just let me know what you need. I’ve already told you Lealia is truly beautiful. Her eyes are gorgeous and I see an amazing little girl. And I know she has amazing parents! I can’t wait to hold her. I truly believe you will be amazed at what God does on your behalf. Get lots of rest and hold on tight to God and to each other. I love you so much and send you hugs.
Auntie Linda
Linda Wheeler
Ripon, CA
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WEDNESDAY, OCTOBER 10, 2007 05:48 PM, CDT
Laelia, Alexis and Shroud,
I’m praying for each of you.
Adam Mitchell
Cedar Rapids, IA
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WEDNESDAY, OCTOBER 10, 2007 04:41 PM, CDT
Laelia,
I love you, sweetheart. And your parents love you more.
Do you know how special those two are? They are two of the kindest people I’ve ever met. They are suffering, and I wish there were anything in the world I could do to lessen it. But that doesn’t always work.
If you aren’t perfect (none of us are), you ARE precious. You are loved beyond any comprehension. You are a treasure. Peace and comfort to your family.
Lynn Swanbom
Spokane, WA
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WEDNESDAY, OCTOBER 10, 2007 04:26 PM, CDT
David Ringer is my friend. He just shared with me what you are going through. I will be praying for your little threesome family. The most important thing is, give Laelia all the love you are able to give her. I do hurt for you, the parents. Just remember you are not adequate to deal with this situation, but Jesus in you both is fully able. He pours His love into your hearts without measure (Romans 5:5). For your grief, He is the God of all comfort and the Father of compassion.
I too have something wrong with me. I have 50% hearing. But God has given me a special life because I have this physical lack.
I pray with all my heart that Laelia will grow up to be a confident, lovely woman of the Lord and that she will bring you joy everyday of your lives. Accept her exactly she is.
Accept one another then just as Christ accepted you in order to bring praise to God. Romans 15:7.
I have never met you or seen you but I love you three intensely with the love that comes from the Lord Jesus to each of us His dear children.
Lots of love, Jan
Janet Crowell
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WEDNESDAY, OCTOBER 10, 2007 12:50 PM, CDT
Well, I saw the pictures of Laelia Sky before I heard about the sad news. I actually thought she was a gorgeous looking girl, and I was going to send a message to you. Well, beauty is truly in the eyes of the beholder. Laelia will be blessed a child if you and Charly believe she’s beautiful, never mind her obvious physical limitations. I learned an important mantra of life when I had my babies. Love conquers all. It really does. Of all three things — love, faith, and hope, only love will move mountains (Corinthians 13). Go and teach that girl to move mountains. But first, take it one day at a time….till you fully recover from the caesarian surgery.
marla
Marla Hatrak
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WEDNESDAY, OCTOBER 10, 2007 12:14 PM, CDT
Christina sent me pictures, and Laelia is beautiful. I can’t wait to spoil her rotten! I know this isn’t what you expected. I know that you had different dreams for your baby girl. And you need time to mourn that, to mourn the dream life you had planned for her. And we will help you through that. Daniel and I are here for you no matter what. (We’ve even talked about moving down there!) So, if you need anything, call.
But remember when mom died and everyone told us it was God’s plan. Remember how much we hated that… how much we were disgusted by the people who fell back on that phrase because they ‘had nothing useful to say.’ Well, looking back now, it hurts… but they were right.
My little niece could very well be the most important activist for human rights we will ever see. She could be a math wiz and win a Nobel Prize. She could go on a speaking tour and tell thousands of others about how, she was born disabled in the eyes of the world, but she was perfect in the eyes of God and got to do many things because of her disfigurement that many others only dream about.
I love you all. And I will see you soon!! Only a week and a half more!! Please call if you need to.
Emily Thompson
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WEDNESDAY, OCTOBER 10, 2007 11:46 AM, CDT
I love you guys. I’m crying and rejoicing and praying each day for all three of you. I hope you received our flowers by now and you should be receiving a few things in the mail soon. I know you are overwhelmed but it sounds like you have a lot of support from your pastor, family and friends. Its amazing to read through your guestbook and see the theme everyone agrees with – your strength. They are right and although you may feel weak now, your strength, through Christ, will return. Each day God will give you the strength to keep on going. Allow him to heal your pain and calm your fears. Rejoice in the fact that you have been given a beautiful baby girl. You have been chosen as her parents and I believe God knew what he was doing when he chose the two of you. I so wish we lived closer and were able to help more but you let me know what you need anytime, anyday ok? In the meantime, we will continue to turn our questions and fears and doubts to God. Prayer is powerful and you have a ton of prayer warriors surrounding you. Hold, love and kiss my precious new little cousin for me until I get the chance to meet her. All my love!
Amy Kennedy
Escalon, CA
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WEDNESDAY, OCTOBER 10, 2007 09:34 AM, CDT
Alexis,
I just had my morning sob. I feel for you but can’t even imagine what you and Charly are going through. You are a strong person and you will be a great mom to her. I know you are scared but you should know that you have support around you. She is a very beautiful baby with a great smile who happens to have some other problems. But like Gigi said before, she won’t know life any other way. I just want you to know that I am there for you girly.
Maria Christianson
San Diego, CA
United States
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WEDNESDAY, OCTOBER 10, 2007 06:17 AM, CDT
You know, Lex, when we were growing up, I always thought that you could anything. Sometimes that was good and sometimes that was bad…sometimes that got us into trouble.:) I always wanted to be more like you..ready to take on the world. You were the leader, and I…your trusty sidekick. I still believe that you can do anything, especially with God’s help. You’ve had your share of trials and tribulations, but God always carried you through, and He doesn’t give us anything that He doesn’t think we are capable of handling. The only thing you are missing is your trusty sidekick:), and wish I could be there with you. Charley, you’re going to have to take over the position. I know you’ll do good, though. That little girl has the best parents in the world, and don’t you forget that. I love you honey.
Tiff
Tiffany Damigo
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WEDNESDAY, OCTOBER 10, 2007 12:08 AM, CDT
Charley & Lexi (All right, Alexis)
We love you so much! You know we’d do anything to take your pain for you, just as you would for Laelia. I”m so glad I got to spend time with you this weekend. My heart broke to see you cry. I’ll send you the pictures I took soon. Just hold on to the reminder that Laelia IS perfect to God, and someday she’ll be skipping down the Streets of Gold. Until that day, we are so privileged to know her and love her, and we will help you any way we can.
Love, Charilyn
Charilyn Damigo
San Jose, CA
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WEDNESDAY, OCTOBER 10, 2007 12:06 AM, CDT
Sweetie, I have been thinking of you a lot this past week. I was thinking your surgery must be soon.
First, may I say Congratulations to you and Charley on the birth of your *precious* daughter!!! Regardless of the challenges her body may present for you all, inside is a beautiful spirit and valuable little life worthy of celebrating! I’m sure the love, acceptance, and courage you show her will bring that out for everyone to see.
In your journal (which I thank you SO much for bravely sharing!!), the last thing you said was, ‘I just want to feel normal again.’ Honey, your circumstances may not be normal right now, but I’m *totally* confident your feelings are!!!
Please remember I love you and will add my prayers to those already on their way to your and Laelia’s Heavenly Father for an extra measure of strength! I also want to support you in ANY way I can (whether you let me know specifically or I have to guess, hint hint!).
Hugs to you and Charley, kisses for Laelia!
Kate Morgan
Vista, CA
United States
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WEDNESDAY, OCTOBER 10, 2007 12:05 AM, CDT
I once heard that parents do not pick their children, rather children pick their parents.
You were chosen for many reasons, among them to love and support this child.
I wish you both the best during this trying period.
Leah Avilez
San Marcos, CA
United States
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WEDNESDAY, OCTOBER 10, 2007 12:02 AM, CDT
Hey Lexi,
Congrats on your bundle of joy .. I know it’s a hard time right now but look on the positives of life. I’m sure even though I haven’t seen pictures yet that your girl looks like you. You were always pretty and bright and I’m sure Laelia will be the same way. I wish I had stayed in contact with you all this time but it’s been touch and go since I left for Germany and probably even before that. I wish you and Charley the best of luck in parenthood.
Tiffany Fischbach
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TUESDAY, OCTOBER 09, 2007 09:11 PM, CDT
i love you i love you i love you i love you. i can’t see you soon enough, or long enough, but i will be there soon. i am praying, as are my friends. i love you.
Linda Wesley
TUESDAY, OCTOBER 09, 2007 09:01 PM, CDT
Alexis,
I am so sorry to read about what you’ve gone through. We are praying for you in the community group. I know you are down right now & at this point words may not be comforting, but I know God doesn’t make mistakes. Laelia really is a precious child of God. And we will certainly keep you and her in our prayers,
~ Melissa
Melissa Rowe
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TUESDAY, OCTOBER 09, 2007 08:38 PM, CDT
Alexis, I love you very much! I remember when I first say Laelia in the hospital, before she was diagnosed, and I did think to myself & told you that she is the prettiest baby girl I have ever seen & I mean that with all my heart. You are very wise to know that everyone who says that to you possibly may be lying and I hope that you would be able to discern which ones are lying to you so I can beat the $hit out of them…..
I can’t tell you that I know what your’e going through….even with the depression because each depression is different because of what causes it. But I want you to know and I want you to remember that I am here for you. I’m going to learn everything you and charlie have to learn and be there to support you guys in every single way I can!!!
I am glad that you have this website up so you can communicate to all of those who love you what is going on. It took a lot of courage to do that.
rachel morales
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TUESDAY, OCTOBER 09, 2007 08:15 PM, CDT
Alexis as I read your journal I just wanted to let you know that I was in tears… as you know my sister is “handicapped” and everyone who tells me that they are sorry for me I just tell them that God made her for His reasons and she is just who HE wants her to be! She IS perfect in His eyes and we love her just as much as if she were physically perfect in everyone else’s eyes. I love you so much and I can’t wait to see the precious daughter that you brought into the world. I’ll be praying for you always, and your little one, and even though we are miles and miles apart I want you to know that all my prayers are right there with you.
All my love,
Hannah
Hannah Anthes
CA
United States