Laelia Sky

23 Guestbook Entries

1. Debra says:
   September 14th, 2009 at 2:09 pm

   Your beautiful little girl reminds me so much of my daughter when she was a baby. Although mine has congenital muscular dystrophy, they are similar in many ways. I know what it’s like to go through the surgeries - she’s had some pretty major ones. I remember thinking randomly before her spinal fusion that we had just purchased a van with a lift a few months earlier, and now she was about to have a procedure she might not come through…well, that was five years ago, and she’s still going strong! And we’re about to make the final payment on the van. :0) Like many others, I’ll send special prayers and good thoughts to all of you on the 16th. If you would ever like to talk, feel free to e-mail me! rnilifamily@yahoo.com Blessings,
   Debra

2. Katherine says:
   October 20th, 2009 at 2:43 pm

   I debated on whether or not to post a comment here but have decided I should. I never expected to find this site when I typed Laelia into Google. I was bored and thinking about painting for my girls, both named after flowers, one of them Laelia. Our girls have never experienced physical disabilities which is why I felt inappropriate signing here but as I read some of your first entries, I realized that not only do our daughters share the same first name, they are only 5 months apart. On top of that it sounds like you also rely on God. I am happy to read some of your latest entries, the last one of her eating applesauce, and I just wanted to let you know that I will pray for your Laelia over the years. Mainly just because but a tiny bit is because I have never seen anyone else with my little one’s name and it’s a neat connection. A way for me to remember your little girl. I’ll be one more person praying for her continuing progress and more mobility. Perhaps someday she will be the one updating this site…
   Regards, Katherine.

3. Alison says:
   November 2nd, 2009 at 2:04 pm

   Hello. I felt motivated to sign this guest book, because my 3 1/2 month old has arthrogryposis. It definitely is a condition with many challenges both emotional and physical. But, with the challenges come rewards. Although it takes longer for these little ones to reach milestones, it is soooo rewarding when they do!!!! Laelia is such a beautiful girl and you are so blessed to have her!
   I was looking at some of the therapy equipment you are using and I have questions about some of it. . . .to possibly help out my little one. One of the things I noticed was the wraps around her shoulders and elbow areas. . .does this help her bend at the elbow?? Please email me at: kleistalison@yahoo.com
   I would appreciate ANY help I could get!!!
   Alison Kleist

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